Larisa

Larisa's Recent CancerCompass Activity

• Larisa has replied to a post on the message board

  I’ve been told by my husband’s NO that on average Avastin works for 4 months;  a few of his patients have been successfully using Avastin for about 2 years, while others only experience improvement during the first few treatments.  Also, according to the available data, Avastin is only effective for about 40% of brain tumor patients. My husband happens to be among this 40%. Without Avastin, most...

  May 17 at 12:04 AM view post

• Larisa has replied to a post on the message board

  Thank you for sharing this, Robin. My husband just started using Dixie drops. He is on Avastin and blood thinners (Lovenox). Perhaps the combination of Lovenox and hemp oil, along with Avastin could put him be at an even greater risk of bleeding. Hmm... will need to discuss it with his NO.

  May 15 at 5:03 AM view post

• Larisa has replied to a post on the message board

  Jan,If I have a choice, I would certainly go with a clinical trial first. As Jon4156 mentioned, Avastin would still be an option if the clinical trial failed. We were desperately looking for some clinical trials; unfortunately, due to my husband’s uncontrollable tumor growth through all the treatments, he didn’t qualify for any trials. We’ve been told at UCLA that he needed immediate treatment (Avas...

  May 15 at 4:48 AM view post

• Larisa has replied to a post on the message board

  Ativan works well for my husband. He tried other anti-anxiety medications, but they made him even more anxious. I also bought him Valerian Root capsules (at Costco, Trunature brand). He takes it before bedtime in addition to Ativan and it helps him to relax and sleep better at night.

  May 15 at 4:45 AM view post

• Larisa has replied to a post on the message board

  Hi Sarah, Thank you for sharing this. I just checked their website and I think I will go ahead and order some Dixie Botanical drops as well. I know it’s not a cure or a miracle. But you are right, we are looking for some hope and if these drops will ease my husband’s pain, it would be a little ‘miracle’ for us. By the way, why do you prefer their drops to the pills? I just thought pills might...

  May 05 at 5:42 AM view post

• Larisa has replied to a post on the message board

  De, you are so sweet--thank you so much for such an incredibly insightful response. I am so sorry you lost your mom to this horrible illness only 13 months after her diagnosis. My heart goes to you and to everyone on this discussion board affected by brain cancer. It’s such an ugly monster and I wish that none of us had to go through this. I wish one day there will be a cure—this is my hope and praye...

  April 25 at 4:51 AM view post

• Larisa has created a new message board discussion

  I haven’t posted here for a long time. It’s been a very tough 10 months since my husband’s GBM diagnosis in July 2012. As some of you know, nothing really had worked for him and his tumor was growing uncontrollably through all the treatments, until we started Avastin. We had two good MRIs with Avastin; one showed the tumor was shrinking and the other MRI was stable. During this process I was doing e...

  April 24 at 6:01 AM view discussion

• Larisa has replied to a post on the message board

  My mom showed me your post because she felt I could relate. I am also a college student who is losing their dad due to GBM. Our dads situations are very similar, he was also diagnosed this summer and after radiation/temodar the MRIs showed my dads tumor was even bigger and more aggressive, spreading to both parts of the brian. All I want is my dad back, even if it is for a couple of hours. It is so hard seeing the ma...

  December 19 at 10:06 PM view post

• Larisa has replied to a post on the message board

  Sally, thank you for providing the link. Hmm, a small stroke…This is an interesting thought—I will certainly discuss it with his NO. My husband is on blood thinners (Lovenox)because he developed blood clots in his lungs. Apparently, he has a higher risk of bleeding/stroke. Thanks Sally for sharing this thought.

  December 02 at 12:14 AM view post

• Larisa has replied to a post on the message board

  Thanks Karyn, Was your husband using narcotic pain pills as well for his headaches? Wow, the headaches went away after your husband’s stroke... Brain tumor is so unpredictable!

  December 02 at 12:11 AM view post