Loading...

Libra57's Recent CancerCompass Activity

  • Libra57 has replied to a post on the message board

    Hi BWilson, my husband's story is very similar to your wife's, he was diagnosed Feb 2008, had surgery/radiation/temodal and Dr Mason at Princess Margaret was also his doctor. Scott has recurrence of the tumor in August 2011, and was switched to 2 rounds of CCNU. Then it was 7 treatments of Avastin. Nothing has worked, so Scott is now in palliative care stage after 4 years and 3 months. The palliative care team told m...

    May 23, 2012 view post
    • Libra57 has replied to a post on the message board

      My husband is in almost identical stage as yours, after 49 months, he was taken off of Avastin, as it was no longer effective (after 7 treatments). We have had some rapid decline, hospice is now here 3 times a week and all of the stages noted inwww.brainhospice.comare occurring. Scott had his first seizure this week since 2010. Monday will mark 51 months for Scott, and while we believe quality of life is more importa...

      May 05, 2012 view post
      • Libra57 has replied to a post on the message board

        Hi AllyBlue. My husband is a 4+ year survivor of GBM. Surgery February 2008, radiation, chemo, symptom free for almost 2 years, then suffered grand mals. We decided to adopt a regimen of LAU - Life As Usual. No changes in diet, or additional fitness, just lots of water to stay hydrated and removal of any stress I could from his life. He has declined since hitting the 4 year mark, and is now mostly bedridden and in a ...

        April 30, 2012 view post
        • Libra57 has replied to a post on the message board

          I agree with Jon, the facts don't quite match up with your analysis of GBM and/or chemo effects on indivdiuals. M my husband has celebrated 4 years survival with great quality of life - he eats sugar every day, smokes a pack of Colts cigars and basically sleeps when he needs to and stays hydrated. That's his total 'regimen' other than recently eschewing caffeine as recommended while taking Avastin infusions. He is ve...

          March 29, 2012 view post
          • Libra57 has replied to a post on the message board

            Congrats! May you have many more 'anniversaries'! we just celebrated 4 years since surgery to remove GBM, and while we have had our challenges, we find at least 1 thing to laugh about every day, have said everything we need to say and do "LAU" - Life As Usual, which keeps me (the caregiver) sane.    

            March 22, 2012 view post
            • Libra57 has replied to a post on the message board

              Hi Ellen. My husband was on CCNU and when that stopped working, the NO put him on Avastin. He has had 7 infusions so far and it seems to be doing the trick, an MRI scheduled for April 5th will give us the results, but no real side affects so far. We are in Canada, and Avastin is generally prescribed when new growth appears and CCNU stops working, so we are taking this as a good sign. Good luck, keep us posted! &nb...

              March 22, 2012 view post
              • Libra57 has replied to a post on the message board

                Whonew, I am so sorry for your loss. I hope memories of good times gone by, help you through this journey. You did all the right things and were an inspiration. Be kind to yourself.   Libra

                March 13, 2012 view post
                • Libra57 has replied to a post on the message board

                  Hi, my husband has been on Avastin since December. After almost 4 years since his surgery, the tumor started to grow again and 2 types of chemo didn't help (Temodar and CCNU). The side effects seem to be mostly fatigue and a slight loss of appetite. Scott sleeps more now than he is awake, but is of good cheer when he is awake. I've noticed this week that his balance is off and he is no longer using his left arm that ...

                  March 13, 2012 view post
                  • Libra57 has replied to a post on the message board

                    Hi, just a note on Avastin, my husband started it in December 2011 after Temodar and then CCNU didn't work. He had his surgery Feb 2008 to remove GBM, did radiation then Temodar.  THe Avastin seems to have zero side effects for him, he suffers from some fatigue but that is it so far. No impact on sleep/appetite or general well being. No discomfort or pain.  He had an MRI after 4 infusions (8 weeks as h...

                    March 07, 2012 view post
                    • Libra57 has replied to a post on the message board

                      HI, my husband is 49 months into this GBM battle. He did all the standard treatments here in Canada (surgery/radiation/temodar). He was very stable for 2 years, but then suffered some grand mals and is now on anti seizure meds (Dilantin and Keppra) daily and also started Avastin in december 2011. He has an infusion every 2nd week, oncology checkup every month and MRI every 2 months. So far the Avastin seems to be kee...

                      March 07, 2012 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About Libra57

                      Caregiver
                      Brain Cancer
                      Support

                      My husband Scott was diagnosed Feb 2008 with GBM, had it resectioned and was doing really well. Initial prognosis was 14 months, we are about to hit 25 months, he did suffer a grand mal seizure on Feb 8th 2010. I am wondering what signs to look for etc, he will be 53 in April. I work part time from home (consultant) and we have 3 sons, ages 20, 22, 23. So much to look after, sometimes hard to keep it all together, wondering how others are coping.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.