Loading...

Lorre_G's Recent CancerCompass Activity

  • Lorre_G has created a new message board discussion

    MD.. Anderson Children's Cancer Center is expected to begin enrolling eligible patients soon in a new clinical trial of treatment for pediatric brain cancer, an advocacy group has announced. The Noah's Light Foundation on Tuesday announced the FDA's approval of the investigative treatment for several types of pediatric brain cancer. The treatment is known as the NOAH Protocol, which stands for "New opportunity ad...

    November 07 at 4:28 PM view discussion
    • Lorre_G has replied to a post on the message board

      I know how hard it must be to reach out for answers and not get any.  Spinal GBMs are not common.  Even in a clinic that specializes in brain & spinal tumors, you don't see them in large numbers.  Are you being seen by a neuro-oncologist and at a center that specializes?  Has a neuro-surgen given you any indication that surgery is possible.  My advice for now is get a second opnion and do...

      October 24 at 4:26 PM view post
      • Lorre_G has replied to a post on the message board

        You did not mention what kind of tumor.  I have a few patients that have had tumors and completed surgery and chemo and/or radiation and have gone on to start families.  Two that I can think of right off hand each have 2 children several years old and it has not caused them to have a recurrence.  Another has a son several months old and she is also doing quite well with no sign of tumor recurrence.&nbs...

        October 16 at 4:04 PM view post
        • Lorre_G has replied to a post on the message board

          The giadel wafers were chemo , so he did have some at the time of surgery.  Not totally unusual. This may be all he requires for a while.  Lorre

          October 10 at 5:23 PM view post
          • Lorre_G has replied to a post on the message board

            There are many thresds onhere regarding Dr. Burzynski.  People either love him or hate him.  You'd have to be your judge on this one.  He is very controversial. Lorre

            October 02 at 5:33 PM view post
            • Lorre_G has replied to a post on the message board

              One thing to be aware of - Avastin isnota chemotherapy drug.  It is a biotherapy drug.  It will not have the same side effects as chemo. Lorre

              October 02 at 5:26 PM view post
              • Lorre_G has replied to a post on the message board

                GBM by definition is a grade 4 brain tumor.  There is no Grade 1 GBM.

                September 19 at 2:15 PM view post
                • Lorre_G has replied to a post on the message board

                  I have a couple of patients (men and women) who have gone on to successfully conceive.  Two of the men each have 2 children and two of the women have two children.  It does happen.  I'm not sure how long they waited, however. 

                  June 24 at 4:12 PM view post
                  • Lorre_G has replied to a post on the message board

                    My brother was 59 years old.  Diagnosed with spinal disease and was told is was spreading so fast the doctors only predicted he would last a week.  No teartments were suggested.  He died 3 weeks later.

                    April 29 at 3:20 PM view post
                    • Lorre_G has replied to a post on the message board

                      I have approx. 135 long term survivor's of high grade brain tumors at our institute.  Long term is considered at 3 or more years from diagnosis.  I have many who are celebrating 10, 11 15, 23 years etc. 

                      April 09 at 1:33 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About Lorre_G

                      Brain Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.