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Lorre_G's Recent CancerCompass Activity

  • Lorre_G has replied to a post on the message board

    I did an intermnet search and found several distributors on line here in the US.  Give it another shot. Lorre

    August 04 at 2:17 PM view post
    • Lorre_G has replied to a post on the message board

      Flying on a commerical airline with pressurized cabins is perfectly fine.  If you are concerned, please check with your physician. Lorre G

      July 23 at 2:52 PM view post
      • Lorre_G has replied to a post on the message board

        Ask for a social worker, patient care coordinator or patient navigator or even a case manager.  These are all names used for someone who can help you either in the doctor's office or the hospital itself.  Lorre

        July 16 at 4:59 PM view post
        • Lorre_G has replied to a post on the message board

          Our gathering is for patients of the Colorado Neurological Institute - we are in Englewood, CO.  This year we are scheduled to celebrate on Sept. 16th.  I don't have an invitation list ready yet, but it will be well over 100 patients and their families. Lorre G

          June 24 at 2:43 PM view post
          • Lorre_G has replied to a post on the message board

            Please go to the web site www.brainhospice.com.  It can give you some basic guidelines.  It really is helpful. God bless you with peace and comfort. Lorre G

            June 18 at 4:40 PM view post
            • Lorre_G has replied to a post on the message board

              One school of thought is to do chemo up front for low grade tumors and hold off on radiation in case the tumor comes back as a higher grade.  Each neuro-oncologist has thier own plan of treatment and strategy for cure.  You must find a physician you are comfortable with and go with their protocol.  There is no right or wrong way to treat. Lorre G

              March 25 at 5:39 PM view post
              • Lorre_G has replied to a post on the message board

                I agree with everythig Dodger has said.  One added comment.  If you are feeling like you are not getting answers, it is always good to get a second opinion. Lorre G

                January 15 at 4:23 PM view post
                • Lorre_G has replied to a post on the message board

                  Help with Side Effects - Radiation Therapy There are several types of radiation therapy. Side-effects depend on the type of radiation you receive and the total dosage. Your physician and nurse can tell you which ones you are likely to experience. The following are suggestions for living with some of the potential side-effects of conventional radiation therapy. Hair loss Hair loss will probably be th...

                  January 13 at 4:18 PM view post
                  • Lorre_G has replied to a post on the message board

                    I wanted to update you - Charlie Wolf actually passed away in January 2009.  He was 6 1/2 years from diagnosis at that time. 

                    December 18 at 5:36 PM view post
                    • Lorre_G has created a new message board discussion

                      MD.. Anderson Children's Cancer Center is expected to begin enrolling eligible patients soon in a new clinical trial of treatment for pediatric brain cancer, an advocacy group has announced. The Noah's Light Foundation on Tuesday announced the FDA's approval of the investigative treatment for several types of pediatric brain cancer. The treatment is known as the NOAH Protocol, which stands for "New opportunity ad...

                      November 07 at 4:28 PM view discussion
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