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Lorre_G's Recent CancerCompass Activity

  • Lorre_G has replied to a post on the message board

    Our gathering is for patients of the Colorado Neurological Institute - we are in Englewood, CO.  This year we are scheduled to celebrate on Sept. 16th.  I don't have an invitation list ready yet, but it will be well over 100 patients and their families. Lorre G

    June 24 at 2:43 PM view post
    • Lorre_G has replied to a post on the message board

      Please go to the web site www.brainhospice.com.  It can give you some basic guidelines.  It really is helpful. God bless you with peace and comfort. Lorre G

      June 18 at 4:40 PM view post
      • Lorre_G has replied to a post on the message board

        One school of thought is to do chemo up front for low grade tumors and hold off on radiation in case the tumor comes back as a higher grade.  Each neuro-oncologist has thier own plan of treatment and strategy for cure.  You must find a physician you are comfortable with and go with their protocol.  There is no right or wrong way to treat. Lorre G

        March 25 at 5:39 PM view post
        • Lorre_G has replied to a post on the message board

          I agree with everythig Dodger has said.  One added comment.  If you are feeling like you are not getting answers, it is always good to get a second opinion. Lorre G

          January 15 at 4:23 PM view post
          • Lorre_G has replied to a post on the message board

            Help with Side Effects - Radiation Therapy There are several types of radiation therapy. Side-effects depend on the type of radiation you receive and the total dosage. Your physician and nurse can tell you which ones you are likely to experience. The following are suggestions for living with some of the potential side-effects of conventional radiation therapy. Hair loss Hair loss will probably be th...

            January 13 at 4:18 PM view post
            • Lorre_G has replied to a post on the message board

              I wanted to update you - Charlie Wolf actually passed away in January 2009.  He was 6 1/2 years from diagnosis at that time. 

              December 18 at 5:36 PM view post
              • Lorre_G has created a new message board discussion

                MD.. Anderson Children's Cancer Center is expected to begin enrolling eligible patients soon in a new clinical trial of treatment for pediatric brain cancer, an advocacy group has announced. The Noah's Light Foundation on Tuesday announced the FDA's approval of the investigative treatment for several types of pediatric brain cancer. The treatment is known as the NOAH Protocol, which stands for "New opportunity ad...

                November 07 at 4:28 PM view discussion
                • Lorre_G has replied to a post on the message board

                  I know how hard it must be to reach out for answers and not get any.  Spinal GBMs are not common.  Even in a clinic that specializes in brain & spinal tumors, you don't see them in large numbers.  Are you being seen by a neuro-oncologist and at a center that specializes?  Has a neuro-surgen given you any indication that surgery is possible.  My advice for now is get a second opnion and do...

                  October 24 at 4:26 PM view post
                  • Lorre_G has replied to a post on the message board

                    You did not mention what kind of tumor.  I have a few patients that have had tumors and completed surgery and chemo and/or radiation and have gone on to start families.  Two that I can think of right off hand each have 2 children several years old and it has not caused them to have a recurrence.  Another has a son several months old and she is also doing quite well with no sign of tumor recurrence.&nbs...

                    October 16 at 4:04 PM view post
                    • Lorre_G has replied to a post on the message board

                      The giadel wafers were chemo , so he did have some at the time of surgery.  Not totally unusual. This may be all he requires for a while.  Lorre

                      October 10 at 5:23 PM view post
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