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Lorre_G's Recent CancerCompass Activity

  • Lorre_G has replied to a post on the message board

    I have approx. 135 long term survivor's of high grade brain tumors at our institute.  Long term is considered at 3 or more years from diagnosis.  I have many who are celebrating 10, 11 15, 23 years etc. 

    April 09 at 1:33 PM view post
    • Lorre_G has replied to a post on the message board

      Just a bit of clarification.  GBMs are by definition a grade 4.  Brain Tumors are not staged.  Lorre

      January 31 at 2:39 PM view post
      • Lorre_G has replied to a post on the message board

        I know a neurosurgeon in Little Rock.  J.D. Day, MD at the University of Arkansas Medical Center.  He is a good doctor.  I know he does skull base surgery and gamma knife.  If he is not who you need perhaps his office would be a good referral source.  (501) 686-7000. Lorre

        January 06 at 3:32 PM view post
        • Lorre_G has replied to a post on the message board

          This year, 2013, I invited over 130 patients to a long term survivor's party.  This year we added low grade survivors to the mix of invitees.  They are considered long term after 100 months of survival from diagnosis.  Th majority of the patients we see are GBM.  These are also the majority of our long term patients.  We consider high grade long term survivors as 3 or more years from diagnosi...

          January 06 at 3:16 PM view post
          • Lorre_G has replied to a post on the message board

            These are the same thing.  Temodar is the manufacturer's brand name and temozolomide is the pharmaceutical name.

            January 03 at 1:28 PM view post
            • Lorre_G has replied to a post on the message board

              I'm sorry.  You posted this on the brain cancer site.  You might try asking this on the breast cancer pages. Lorre

              January 02 at 6:46 PM view post
              • Lorre_G has replied to a post on the message board

                Neurologic (brain-related) effects Potential side-effects of radiation therapy are classified into three groups: acute, early delayed (also called sub-acute), and late. Acute Reactions Acute reactions occur during or immediately after radiation is finished. These reactions are caused by radiation- induced brain swelling (edema). Symptoms can mimic the symptoms of your brain tumor, like speech problems or muscl...

                December 23 at 5:31 PM view post
                • Lorre_G has replied to a post on the message board

                  I am at the Colorado Neurological Institute Brain & Spinal Tumor Program.  We are in Englewood, CO,  suburb of Denver, and are on the campus of Swedish Medical Center. Our neuro-oncologist is Edward Arenson, MD.  We recently had another neuro-oncologist come to the campus, Michael Pearlman, MD. 

                  December 20 at 1:36 PM view post
                  • Lorre_G has replied to a post on the message board

                    When you pull up a message - right to the left there is a place to "Report Abuse".

                    December 10 at 4:37 PM view post
                    • Lorre_G has replied to a post on the message board

                      Dr. Freidman is very much an advocate for the use of Avastin.  He is honest about the fact that not everyone responds to it.  He feels it has a real place in the treatment of brain tumors.  He readily admits that we have a long way to go in finding cures for brain cancer, but it optimistic when you realize that the stats show that many patients are living longer with a diagnosis of brain tumor.  T...

                      October 25 at 1:43 PM view post
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                      Brain Cancer

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