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Lorre_G's Recent CancerCompass Activity

  • Lorre_G has replied to a post on the message board

    I wanted to update you - Charlie Wolf actually passed away in January 2009.  He was 6 1/2 years from diagnosis at that time. 

    December 18 at 5:36 PM view post
    • Lorre_G has created a new message board discussion

      MD.. Anderson Children's Cancer Center is expected to begin enrolling eligible patients soon in a new clinical trial of treatment for pediatric brain cancer, an advocacy group has announced. The Noah's Light Foundation on Tuesday announced the FDA's approval of the investigative treatment for several types of pediatric brain cancer. The treatment is known as the NOAH Protocol, which stands for "New opportunity ad...

      November 07 at 4:28 PM view discussion
      • Lorre_G has replied to a post on the message board

        I know how hard it must be to reach out for answers and not get any.  Spinal GBMs are not common.  Even in a clinic that specializes in brain & spinal tumors, you don't see them in large numbers.  Are you being seen by a neuro-oncologist and at a center that specializes?  Has a neuro-surgen given you any indication that surgery is possible.  My advice for now is get a second opnion and do...

        October 24 at 4:26 PM view post
        • Lorre_G has replied to a post on the message board

          You did not mention what kind of tumor.  I have a few patients that have had tumors and completed surgery and chemo and/or radiation and have gone on to start families.  Two that I can think of right off hand each have 2 children several years old and it has not caused them to have a recurrence.  Another has a son several months old and she is also doing quite well with no sign of tumor recurrence.&nbs...

          October 16 at 4:04 PM view post
          • Lorre_G has replied to a post on the message board

            The giadel wafers were chemo , so he did have some at the time of surgery.  Not totally unusual. This may be all he requires for a while.  Lorre

            October 10 at 5:23 PM view post
            • Lorre_G has replied to a post on the message board

              There are many thresds onhere regarding Dr. Burzynski.  People either love him or hate him.  You'd have to be your judge on this one.  He is very controversial. Lorre

              October 02 at 5:33 PM view post
              • Lorre_G has replied to a post on the message board

                One thing to be aware of - Avastin isnota chemotherapy drug.  It is a biotherapy drug.  It will not have the same side effects as chemo. Lorre

                October 02 at 5:26 PM view post
                • Lorre_G has replied to a post on the message board

                  GBM by definition is a grade 4 brain tumor.  There is no Grade 1 GBM.

                  September 19 at 2:15 PM view post
                  • Lorre_G has replied to a post on the message board

                    I have a couple of patients (men and women) who have gone on to successfully conceive.  Two of the men each have 2 children and two of the women have two children.  It does happen.  I'm not sure how long they waited, however. 

                    June 24 at 4:12 PM view post
                    • Lorre_G has replied to a post on the message board

                      My brother was 59 years old.  Diagnosed with spinal disease and was told is was spreading so fast the doctors only predicted he would last a week.  No teartments were suggested.  He died 3 weeks later.

                      April 29 at 3:20 PM view post
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                      About Lorre_G

                      Brain Cancer

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