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by Lsbmom -
I am sorry that you are having such a bad experience. My suggestion is to go to the Dr.s office and demand a copy of your pathology reports and then get a second opinion from a gynecological oncologist! Those path reports are yours and if they refuse to give them to you I would report them to whatever medical board you have access to. I can not stress enough the importance of going to a gyn/onc. They are the experts in this field and will provide the best treatment options.
I am also a single Mom and understand the anxiety you must be feeling. Please trust your instincts and listen to your body. I hope everything works out for you on all levels.
I had a hysterectomy, but I would recommend that you go to www.hystersisters.com and post your question on the cancer concern board. The women on that site have been a wonderful source of information and support for me during this time. I know there are quite a few women there that have had a trachelectomy.
I wish you the best of luck!!!!
I truly do not want to scare you, but here is my story. I had a normal pap in 2005 one year after my daughter was born. In 2006, my pap came back abnormal. I went in for the colposcopy and was told that it was mild dysplasia, not to worry and come back in 3 months for a re-pap. I did that, it came back even worse and I had another colposcopy. This time I was told I needed a LEEP, but that would take care of it. I went in the day of my LEEP and my Dr. performed another colposcopy prior. It turned out that she opted not to perform the LEEP, said it didn't look bad and to come back in 6 months. I left feeling afraid and unsure. I was having cramping after intercourse and strange pains that I had never had before. On the urging of my friends and family I got a second opinion. They performed biopsies which came back as moderate to severe dysplasia and scheduled me for a LEEp the following week. Six days after my LEEP I was called back into the office for the results. It turned out they found invasive cancer stage 1a2 and had me scheduled to see a gynecological/oncologist the next day. I had a hysterectomy 9 weeks ago and they were able to remove all of the cancer cells and there was no lymph system involvement.
Please follow up with your gyn and if you don't feel comfortable with what they are telling you please obtain a second opinion. I truly believe that getting a second opinion saved my life!!! I wish you all the best and feel free to ask any questions you may have.
I am so sorry that you are going through this at such a young age. There are many different outcomes from a LEEP. It sounds like your dysplasia is mild/moderate and so the LEEP could remove the dysplasia and you could require no further treatment. The LEEP could reveal cervical cancer in which case you could opt for a radical trachelectomy in which your fertility would be perserved or a hysterectomy could be recommended.
There are many women who have a LEEP performed and then go on to conceive and deliver healthy babies.
If after the LEEP, the dysplasia was not completely removed I implore you to seek the opinion of a gynecological/oncologist. They are the experts in this field and treat pre-cancer as well as cancer.
I wish you the best of luck and email me anytime if you hav questions.
Hi: I was diagnosed with cervical cancer stage 1a2 following a LEEP. I had a radical laproscopic hysterectomy with 12 lymph nodes removed in 5/07. The pathology report showed that the cancer did not spread. I now follow-up with my gyn/onc every 3 months for the next 2 years.
I wish you the best and I hope that your appt. goes well.
I am so sorry you lost your mother to this horrible disease! I was wondering if they took and biopsied any of her pelvic lymph nodes? My gyn/onc removed 12 of mine and had them biopsied to see if the cancer spread into my lymphatic system. That would be the only additional thing that might have shown the cancer spread.
I hope that this helps and I will keep you in my thoughts.
Let me start by saying that I am very sorry that you have to go through this at such a young age. You are absolutely doing the right thing by seeing a gyn/onc. They are the experts where cancer is concerned and will be able to provide the best treatment possible. Make sure that you have a friend or family member go with you when you have the appt and have all your records with you. The consultation will likely take an hour or more and having someone with you as an extra set of ears really helps. I don't know if you want to have children in the future, but ask him about performing a trachelectomy or a another LEEP to perserve your fertility.
I wish you the best and ask all the questions you need.
I am so sorry that you are going through this!!! I just had a hysterectomy for stage 1a2 and was told there was a 5-10% of recurrence. I did not have the radiation though.
My only words of advice are to get a second opinion, especially from a cancer center. There are plenty of clinical trials out there that you may be able to participate in. That sounds like a radical surgery and I would look at all my other options first.
Good luck and stay strong!!!
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