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Luvingwife's Recent CancerCompass Activity

  • Luvingwife has replied to a post on the message board

    RobineK62 I don't get on the web as often as I used to, but I want to reply to your post thinking it might give you a more positive scenario to consider. My DH was digx w/ GBM in 2004 in left frontal lobe. He had the standard surgery, radx, 6 months temodar and a radx "boost" with IMRT.  He worked throughout all the treatments and retired in 2008. Now 69 yo. He has some deficits, is forgetful and impulsive...

    April 01 at 5:06 PM view post
    • Luvingwife has replied to a post on the message board

      Bill, Yes, my husband had this treatment and it was very successful after only 2 months; then disease was 'stable.' He was on this treatment after recurrence in 2006; had 20 infusions every 2 weeks until May 2007. He used Emend the day of treatment and 2 days following for anti-nausea, also ativan the day of treatment for anticipatory nausea.  The CPT 11 was the toughest chemo he has been on, but he contin...

      January 07 at 3:51 AM view post
      • Luvingwife has replied to a post on the message board

        Dear Snowdr: Sorry that you and hubs are new to this group, but you will find some good information here. A good resource for info iswww.virtualtrials.com  there is a good article 'for the newly diagnosed', links to some survivor stories and a great, but very long article written and updated by Dr. Ben Willliams, a long term GBM survivor. His article discusses many treatments, supplements and the side effe...

        January 05 at 4:36 PM view post
        • Luvingwife has replied to a post on the message board

          Lola1: We know that awful 'deer in the headlights' feeling with this diagnosis. Yes, to answer your question about your mom being up and around.  So much depends on the location of the tumor/surgery site.   My husband was up and about after surgery, back to work within a few days.  He worked all through his radiation and 6 months of Temodar.  Learn all you can about this disease an...

          January 01 at 3:37 PM view post
          • Luvingwife has replied to a post on the message board

            There is an article about Toca511 at this web site www.virtualtrials.com   http://www.virtualtrials.com/tocagen/   good luck,  

            December 27 at 7:15 PM view post
            • Luvingwife has replied to a post on the message board

              KimmieAnne, Thanks for the reply.  Hubby's neuro onc attributes his 'no disease progression' to the Tarceva, although I guess we will never really know if that is the reason unless he stopped taking it.  It is very expensive! Even the co-pay is hard for us. Currently it is covered by his medicare advantage policy, although it is an off-label use.  He is a veteran and I am going to look into seeing if ...

              November 13 at 6:09 PM view post
              • Luvingwife has replied to a post on the message board

                KimmieAnne, I am usually posting on the Brain Cancer board, but I am looking for info about patients who have been on Tarceva for a long time. My DH (diagx w/ primary brain tumor GBM4 in 2004) has been on Tarceva since 2008. This is 'off label' use for his diagx so there is no standard treatment schedule.  Does your oncologist attribute your success to the Tarceva? Will you continue on Tarceva indefinitely, ass...

                November 12 at 1:35 AM view post
                • Luvingwife has created a new message board discussion

                  All: I usually post on the brain cancer board b/c my husband is diax with primary brain tumor (GBM4). I am looking for information re: veterans benefits and if it was helpful for you from a treatment, financial and caregiving point of view. He has one RX that is very expensive and although his insurance plan covers it the co-pay is tough to make. Also, we are nearing a phase of this journey when he not be able to be...

                  November 10 at 7:50 PM view discussion
                  • Luvingwife has created a new message board discussion

                    Friends: My husband is a veteran, although his GBM4 is not service related and he has never used the VA medical benefits. He is currently insured on a medicare advantage plan. But I want to look at every option. Have any of you been treated for your bt at a VA facility? or rec'd your prescription drugs under the VA health plan?  Especially interested in Tarceva.   thanks, Laurie

                    November 10 at 6:34 PM view discussion
                    • Luvingwife has replied to a post on the message board

                      Good luck! My husband did not have too bad a time w/ Temodar, and the side effects were managable; he worked, including traveling the entire time.  Laurie V  

                      October 21 at 2:14 PM view post
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