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MarcyS's Recent CancerCompass Activity

  • MarcyS has replied to a post on the message board

    I agree, the waiting is the hardest part of all.  My husband was diagnosed in fall of 2010 and we almost lost him.  His RCC had spread to both lungs, both adrenal glands and both kidneys by the time he was diagnosed.  Be thankful yours was caught early.  He is now in complete remission but has been having scans every 6 months.  Next month will be his 3 year scan and if still clear, the onc w...

    May 04 at 3:30 PM view post
    • MarcyS has replied to a post on the message board

      By all means get him to a kidney cancer Specialist.  Kidney cancer does not respond the way other cancers do.   My husband was diagnosed in the summer of 2010.  Cancer in both kidneys, both adrenals, both lungs and he had lost 50 lbs.  One kidney removed with a football sized tumor.  He started High Dose IL2 in Novemer of 2010.  Saw results so it was repeated in spring 2011.  He ha...

      May 01 at 10:54 PM view post
      • MarcyS has replied to a post on the message board

        My husband had his kidney out at UW in 2010 and went under the care of Dr. Scott Tykodi, kidney cancer specialist with Seattle Cancer Care Alliance.  They are affiliated with UW.  He was stage 4 with mets in the other kidney, both adrenal glands and both lungs.  We almost lost him.  Under Dr. Tykodis care he has been cancer free now for almost 3 years.  He is on no medication at all.   ...

        March 01 at 11:51 PM view post
        • MarcyS has replied to a post on the message board

          Our onc told us that kidney cancer does not produce the heat that other cancers do so Pet scans are not effective.

          March 01 at 11:45 PM view post
          • MarcyS has replied to a post on the message board

            My husband also was diagnosed with Stage IV kidney cancer.  HUGE tumor removed.  He underwent HDIL2 and has now been clear for over 2 years.  He is very thankful that he did try the IL2.  He is on no meds at all.  He goes in every 6 months for scans.  His next scans are the week of Thanksgiving.  Wish us luck!  Marcy    

            November 19, 2013 view post
            • MarcyS has replied to a post on the message board

              Congratulations!  You must be ecstatic!   When we got the 1st set of scans back on my husband after his 1st IL2 treatment they recommended the exact same thing  . . . more IL2.  He did another round and we are now closing in on 2 years of remission.  He is taking no medication at all and they are scanning every 6 months.  This next scan will be the 2 year mark and then they will go...

              March 13, 2013 view post
              • MarcyS has replied to a post on the message board

                Don't wait until Feb.  See your oncologist now!  I don't want to scare you but I have a friend who had a couple of bumps on her neck.  She is prone to fatty cysts and thougth nothing of them.  Even her doctor was not concerned.  They decided to biopsy them as a precaution and she has stage IV lung cancer.  She had even just had lung xrays that were clear.  She is in chemo and beati...

                January 22, 2013 view post
                • MarcyS has replied to a post on the message board

                  I am so sorry!  Good luck to you.  Keep posting. Marcy

                  January 22, 2013 view post
                  • MarcyS has replied to a post on the message board

                    Melissa- I'm so sorry about your father.  The best advice that I can give you is to MAKE SURE you see an oncologis the specializes in kidney cancer.  That is so very important as kidney cancer is totally different than other cancers when it comes to treatment.   I don't think they would biopsy.  Most of the time they know.  Biopsy will create a risk of spreading the cancer.  Goo...

                    January 15, 2013 view post
                    • MarcyS has replied to a post on the message board

                      It took several weeks for the fluid to go away completely but he got partial reflief fairly quickly. I'm sorry I didn't get to respond before this.  We were on the road for 3 days. You will find the 2nd week is worse than the 1st.  It seems that the side effect kick in immediately right where they left off.  He probably won't be able to tolerate as many doses the 2nd week of treatment.  It is n...

                      December 10, 2012 view post
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                      About MarcyS

                      Kidney Cancer
                      Cancer Treatments, Naturopathic Medicine, Side Effects, Supplements

                      Orville and I live in Seattle, WA and both are in the real estate market.

                      Orville was diagnosed with stage IV kidney cancer in August of 2010. He had surgery to remove the kidney and a football sized tumor on Sept. 1, 2010. So far he has undergone 2 separate cycles of IL2, this 1st 2 week cycle in Nov and the 2nd 2 week cycle in March.

                      I am happy to update this (4/4/2012) by saying that the last 2 scans showed a complete remission! The IL-2 worked it's magic! We are now 6 months between scans! Next scan is May.

                      We have 2 adult children and our granddaugher who is 17 lives with us.

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