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MarcyS's Recent CancerCompass Activity

  • MarcyS has replied to a post on the message board

    My husband had his kidney out at UW in 2010 and went under the care of Dr. Scott Tykodi, kidney cancer specialist with Seattle Cancer Care Alliance.  They are affiliated with UW.  He was stage 4 with mets in the other kidney, both adrenal glands and both lungs.  We almost lost him.  Under Dr. Tykodis care he has been cancer free now for almost 3 years.  He is on no medication at all.   ...

    March 01 at 11:51 PM view post
    • MarcyS has replied to a post on the message board

      Our onc told us that kidney cancer does not produce the heat that other cancers do so Pet scans are not effective.

      March 01 at 11:45 PM view post
      • MarcyS has replied to a post on the message board

        My husband also was diagnosed with Stage IV kidney cancer.  HUGE tumor removed.  He underwent HDIL2 and has now been clear for over 2 years.  He is very thankful that he did try the IL2.  He is on no meds at all.  He goes in every 6 months for scans.  His next scans are the week of Thanksgiving.  Wish us luck!  Marcy    

        November 19 at 9:33 PM view post
        • MarcyS has replied to a post on the message board

          Congratulations!  You must be ecstatic!   When we got the 1st set of scans back on my husband after his 1st IL2 treatment they recommended the exact same thing  . . . more IL2.  He did another round and we are now closing in on 2 years of remission.  He is taking no medication at all and they are scanning every 6 months.  This next scan will be the 2 year mark and then they will go...

          March 13, 2013 view post
          • MarcyS has replied to a post on the message board

            Don't wait until Feb.  See your oncologist now!  I don't want to scare you but I have a friend who had a couple of bumps on her neck.  She is prone to fatty cysts and thougth nothing of them.  Even her doctor was not concerned.  They decided to biopsy them as a precaution and she has stage IV lung cancer.  She had even just had lung xrays that were clear.  She is in chemo and beati...

            January 22, 2013 view post
            • MarcyS has replied to a post on the message board

              I am so sorry!  Good luck to you.  Keep posting. Marcy

              January 22, 2013 view post
              • MarcyS has replied to a post on the message board

                Melissa- I'm so sorry about your father.  The best advice that I can give you is to MAKE SURE you see an oncologis the specializes in kidney cancer.  That is so very important as kidney cancer is totally different than other cancers when it comes to treatment.   I don't think they would biopsy.  Most of the time they know.  Biopsy will create a risk of spreading the cancer.  Goo...

                January 15, 2013 view post
                • MarcyS has replied to a post on the message board

                  It took several weeks for the fluid to go away completely but he got partial reflief fairly quickly. I'm sorry I didn't get to respond before this.  We were on the road for 3 days. You will find the 2nd week is worse than the 1st.  It seems that the side effect kick in immediately right where they left off.  He probably won't be able to tolerate as many doses the 2nd week of treatment.  It is n...

                  December 10, 2012 view post
                  • MarcyS has replied to a post on the message board

                    they gave Orville Demoral for the rigors.  In fact, they had the syringe all ready and within 2 minutes of calling for the nurse they were there ready.  Orville gained over 40 pounds through capillary leakage.  The good news is, it did go away quickly.  Thank you for writing about this.  Good bless. Marcy

                    December 06, 2012 view post
                    • MarcyS has replied to a post on the message board

                      How about making a scrap book with all the pictures of fun times in his life? 

                      December 03, 2012 view post
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                      About MarcyS

                      Kidney Cancer
                      Cancer Treatments, Naturopathic Medicine, Side Effects, Supplements

                      Orville and I live in Seattle, WA and both are in the real estate market.

                      Orville was diagnosed with stage IV kidney cancer in August of 2010. He had surgery to remove the kidney and a football sized tumor on Sept. 1, 2010. So far he has undergone 2 separate cycles of IL2, this 1st 2 week cycle in Nov and the 2nd 2 week cycle in March.

                      I am happy to update this (4/4/2012) by saying that the last 2 scans showed a complete remission! The IL-2 worked it's magic! We are now 6 months between scans! Next scan is May.

                      We have 2 adult children and our granddaugher who is 17 lives with us.

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