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Maria_Ildonete's Recent CancerCompass Activity

  • Maria_Ildonete has replied to a post on the message board

    I have put on my notes: Ask for a Glucagon test, and an Octereotide. Do not let them opperate you without a second opinion! If your Glucagon is elevated, then ask for the Octereotide test. Good Luck! And may God bless you and give you strenght1 maria Ildonete Graf

    May 01 at 8:34 PM view post
    • Maria_Ildonete has replied to a post on the message board

      Hi, The spleenectomy didn;t cause the cancer. The cancer was there the whole time. It was just too hard to be diagnosted. You may ask asmany question as you want, I will be happy to answer. Good luck! Maria Ildonete

      February 27 at 3:25 PM view post
      • Maria_Ildonete has replied to a post on the message board

        Hi, I had my spleen removed along with 40% of the my pancreas(tail). I had a tumor on size of a golf ball. The pathology said it was an Islet cell benign tumor. It was just few years later that I found out I have this rare type of neo-endocrine  cancer. Very slow growing, but very stubborn type. I have been real blessed find the best Doctors ever: One an Indocrinologist (in California) who diagnosted me, a...

        February 25 at 4:23 AM view post
        • Maria_Ildonete has replied to a post on the message board

          Hi, I had my spleen removed, when I had a surgery to take 40% of my pancreas. I had a tumor size of a golf ball on the tail of my pancreas. The only thing I have to do for the spleenectomy is to take a Pneumovax shot, because your body loses the imunizations to fight infections. You might be vunerable for pneumonia. The pathology didn't accuse Cancer at the time, but it was. Only few years later I found out I have a...

          February 25 at 3:57 AM view post
          • Maria_Ildonete has replied to a post on the message board

            Hi, My spleen was removed when I had  40% of the tail of my pancreas removed. I do not have to take antibiotics at all. The only thing I take is a Shot for pneumonia., called Pneomovax. I do not know why they will take the whole pancreas? Good luck, Maria I. Graf

            February 17 at 7:41 PM view post
            • Maria_Ildonete has replied to a post on the message board

              Hi! I have been reading all this little informations here, and decided to put mine. Hopefully it will be of some help.  I am a 22 years neoendocrine cancer surviver. There are different lines of neoendocrines. The one I have is one of most rare if not THE RAREST ever. It is one in 20 million a year diagosted over the world. (Steve Jobs from Apple Computers died with it). The first sympthoms I had was in 1992. ...

              February 05 at 4:44 AM view post
              • Maria_Ildonete has replied to a post on the message board

                Hi! I would recomend you to ask your Doctor to have a blood test done called: GLUCAGON. If it is high becareful. I have this rare type of cancer that started with a tumor on the tail of my pancreas. May God bless you Maria I. Graf

                December 11 at 3:08 PM view post
                • Maria_Ildonete has replied to a post on the message board

                  Hi Eliane, I am in California, USA, but my treatment was done at MD Anderson Hospital, in Houston, Texas, also USA. May Good bless you, MariaI. Graf

                  October 18 at 8:19 PM view post
                  • Maria_Ildonete has replied to a post on the message board

                    Hi, I did have it metassed to the liver, and there were about 35 tumors. Two dominant ones, and the others small. I had 21 rounds of  very strong combination of 3 types of chemo. At that point 2/3 of the tumors were gone, and became dorm for 2 years. Now I just finished with 18 month on AFINITOR. Have gaine about 10 lb. Doing just fine, believing that God's Will,will be done. Maria I. Graf

                    October 18 at 1:18 PM view post
                    • Maria_Ildonete has replied to a post on the message board

                      Hi, I had a surgery to take a tumor from the tail of my pancreas. It was in 1999. They took 40% of my pancreas and the spleen was removed. It was a big surgery. The tumor was 5.2cm. I had to have a drenage for few days, and my stay at the hospital was about 10 days. I took morfin for few days, after coming home. I never lost my appitite, and could drink just fine. It took 6 weeks for my Doctor give permision to go b...

                      October 18 at 4:25 AM view post
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                      About Maria_Ildonete

                      Patient
                      Pancreatic Cancer
                      Chemotherapy

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