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Maria_Ildonete's Recent CancerCompass Activity

  • Maria_Ildonete has replied to a post on the message board

    Earl, I just wrote a letter to you adressed to:epaine. Sorry for my mistake. Please try to find it. My name is Maria Ildonete Graf. My note is asking for you ta take a blood test called GLUCAGON. You would be luck if you do not have it elevated. Because if it is, you are there for a big surprise. Ildonete

    September 21 at 12:54 AM view post
    • Maria_Ildonete has replied to a post on the message board

      epaine, I would advise you ta take a blood test called GLUCAGON. I had one tumor that wouldn't grow on the tail of the pancreas. Neoendocrine also. Had a surgery, took it out. 5 years later cameback. No one could understand. But is one of the rarest cancer one could imagine: 1 person in 20 million world wide, a year is diagnosted with it. The name of it is GLUCAGONOMA. No one had hear that name before. Don't wa...

      September 21 at 12:22 AM view post
      • Maria_Ildonete has replied to a post on the message board

        I have put on my notes: Ask for a Glucagon test, and an Octereotide. Do not let them opperate you without a second opinion! If your Glucagon is elevated, then ask for the Octereotide test. Good Luck! And may God bless you and give you strenght1 maria Ildonete Graf

        May 01 at 8:34 PM view post
        • Maria_Ildonete has replied to a post on the message board

          Hi, The spleenectomy didn;t cause the cancer. The cancer was there the whole time. It was just too hard to be diagnosted. You may ask asmany question as you want, I will be happy to answer. Good luck! Maria Ildonete

          February 27 at 3:25 PM view post
          • Maria_Ildonete has replied to a post on the message board

            Hi, I had my spleen removed along with 40% of the my pancreas(tail). I had a tumor on size of a golf ball. The pathology said it was an Islet cell benign tumor. It was just few years later that I found out I have this rare type of neo-endocrine  cancer. Very slow growing, but very stubborn type. I have been real blessed find the best Doctors ever: One an Indocrinologist (in California) who diagnosted me, a...

            February 25 at 4:23 AM view post
            • Maria_Ildonete has replied to a post on the message board

              Hi, I had my spleen removed, when I had a surgery to take 40% of my pancreas. I had a tumor size of a golf ball on the tail of my pancreas. The only thing I have to do for the spleenectomy is to take a Pneumovax shot, because your body loses the imunizations to fight infections. You might be vunerable for pneumonia. The pathology didn't accuse Cancer at the time, but it was. Only few years later I found out I have a...

              February 25 at 3:57 AM view post
              • Maria_Ildonete has replied to a post on the message board

                Hi, My spleen was removed when I had  40% of the tail of my pancreas removed. I do not have to take antibiotics at all. The only thing I take is a Shot for pneumonia., called Pneomovax. I do not know why they will take the whole pancreas? Good luck, Maria I. Graf

                February 17 at 7:41 PM view post
                • Maria_Ildonete has replied to a post on the message board

                  Hi! I have been reading all this little informations here, and decided to put mine. Hopefully it will be of some help.  I am a 22 years neoendocrine cancer surviver. There are different lines of neoendocrines. The one I have is one of most rare if not THE RAREST ever. It is one in 20 million a year diagosted over the world. (Steve Jobs from Apple Computers died with it). The first sympthoms I had was in 1992. ...

                  February 05 at 4:44 AM view post
                  • Maria_Ildonete has replied to a post on the message board

                    Hi! I would recomend you to ask your Doctor to have a blood test done called: GLUCAGON. If it is high becareful. I have this rare type of cancer that started with a tumor on the tail of my pancreas. May God bless you Maria I. Graf

                    December 11, 2013 view post
                    • Maria_Ildonete has replied to a post on the message board

                      Hi Eliane, I am in California, USA, but my treatment was done at MD Anderson Hospital, in Houston, Texas, also USA. May Good bless you, MariaI. Graf

                      October 18, 2013 view post
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                      About Maria_Ildonete

                      Patient
                      Pancreatic Cancer
                      Chemotherapy

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