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Mel5787's Message Board Messages

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RE: Stomach Cancer Stage 4

by Mel5787 - January 30, 2013

Hi All!

Just thought I would join in and let you know about some options you have.

I am a Stage IV gastric cancer survivor. In June of 2009, at the age of 49...I was diagnosed and given 6-9 months to live. It had metz'd to my liver. I had 6 rounds of chemo which consisted of Cisplatin, Taxotere and 5FU. After 3 rounds, I was cancer free...but I had the full 6. In December 2009, I had a total gastrectomy and also had my gall bladder and part of my liver removed.

Like Jeanne, my drs did not expect me to make it.. but here I am. I have stopped working and now volunteer for an organization called Can't Stomach Cancer... I highly recommend that you all contact them. I met our founder, Debbie Zelman, while I was on the Dr Oz show.. she is on the cutting edge of the latest treatments available.

Her Dr is out of MD Anderson in TX. His name is Dr Ajani and he is one of the foremost experts in gastric cancer in the US. Debbie had a similiar story to mine but her liver showed 70% involvement. She was not a given the choice to have a gastrectomy... under his direction, she has remained cancer free like me for over 3 yrs now.

I had my treatment done at the Cancer Institute of NJ which is affliated with the National Cancer Institute... I can highly recommend them as well but I still think that if my cancer ever comes back, I will run to MD Anderson to see Dr Ajani.

Also, we have a few people that are undergoing new clinical studies that are out for gastric cancer and they are seeing wonderful results... so I really think you should contact Bonnie Ross at Cantstomachcancer.org to get the full story of what is out there for you all!!

Much love.. and Jeanne, it is always great to hear from you.. someday we have to meet halfway for lunch!!!

Mel

On Sep 19, 2012 3:17 PM rickjenn wrote:

It has been just over 4 years since surgery for a stage 3 adenocarcinoma at the gastroesophageal junction.  My latest CT showed not signs of recurrence in the area of the stomach, but it did show what appeared to be two new masses in the pelvic region.  First we tried to biopsy them via a colonoscopy, but that didn't work.  The next plan was to get a biopsy via laparoscopic surgery, but the surgeon couldn't find the mass, so they opened me up to search further.  By the end of surgery no foreign masses were found and all biopsied organs and lymphnodes were negative.  They believe the two "masses" were actually parts of the intestines that didn't take the contrast die and thus on the CT scan looked like they should be there.  So, at the end of the day, my scan was clean, it just took a lot more work this time to confirm it.  I just ended up with a 6 inch scar as a souvenir.  Rick

Wooohoooo!!! I knew you were going to be a survivor...

You and I and everyone else here are going to be around for a long time.... so, so happy to hear!!!

XXOO

Mel

 

RE: stomach surgery

by Mel5787 - August 26, 2012

I have no stomach as well and work with a great group at Can't Stomach Cancer... I highly recommend that you speak to someone there. My cancer had hit my liver so in December of 2009, I had a total gastrectomy, my gallbladder removed and part of my liver.

I dont avoid sugar or dairy products... everything in moderation. I eat like a pig  LOL.... I eat pizza, ice cream, I love cottage cheese and yogurt. Too much sugar is not good for anyone so I have a few cookies here and there.

Unfortunately, it will be trial and error... but you will find what works best for you.

At Can't Stomach Cancer, you will speak to people that have been there and done that....it is a wonderful group of people.

Tell them that Mel sent you  :)

 

 

RE: stomach surgery

by Mel5787 - August 25, 2012

On Aug 25, 2012 8:56 PM LettJack wrote:

I am having stomach surgery on Aug. 29 2012 at 7 am at Boulder Community Hospital in Boulder Co.  I am very afraid because I have stage 3 stomach cancer.  I dont even know what are my chances beating this cancer

Well, LettJack, I can tell you that I had stage IV stomach cancer. I was diagnosed in 2009 and was given 6-9 months to live. That was almost 3 years ago and I just had another clean CAT scan. This disease is beatable :)

Hi All!

Jeanne, so glad to hear from you :)

I just heard from a friend of mine that there are currently 15 new drugs in clinical studies for GA cancer.

I highly recommend that you all contactwww.cantstomachcancer.org . They have the "in" to find out where these treatments are taking place and to get you in touch with the Dr that can help you.

Best of luck to all of you!

XXOO

Mel

Libbi..... so glad to hear that.. they are wonderful there. Robert and Bonnie are great people.

If you need anything else let me know. That is what I am here for... all the best to you!!!!

XXOO

Mel

 

RE: Stomach cancer

by Mel5787 - July 19, 2012

Hi!

I am a stage IV stomach cancer survivor. It had hit my liver.

I have been cancer free for almost 3 yrs now... I had a chemo regime of Cisplatin, Taxotere and 5fu.. no pills, all liquid iv drips.

I had my stomach, part of my liver and gallbladder removed in Dec 2009.

I belong to Cant stomach cancer... please contact them... they are a wonderful group!!!

If you have any other questions let me know.. best of lucl to you!

Mel

 

Hi Maryjj!

So sorry to hear of your diagnosis... but I am a survivor. I had stage IV with liver mets.

I had 6 rounds of Cisplatin, Taxotere and 5fu and was cancer free. I had a total gastrectomy in Dec 2009. I am almost 3 years cancer free.

Jeanne, Mugi (Lana) and I kinda went thru this process together so if you have any questions... ask away  :)

Chemo sucks but it can save your life... hang in there!

Mel

 

Carole,

I am so sorry to hear that it has returned. It is heartbreaking.

What are they going to do? Chemo and radiation again? Is she strong enough to have the entire stomach removed this time?

Try the Ensure and Boost. One of them gave me intense diarrhea but I forget which one it was. It is worth the try cuz she needs the nutrition right now.

You are in my thoughts and prayers.

Mel

 

 

I ended up at the Cancer Institute of NJ... Sloan Kettering only gave me 6-9 months to live and that was 3 years ago...

At the CI, they believe that everyone is curable and that fit my attitude...

Sorry to hear that MD Anderson was not a good choice for you, Atlanta. I hear that Dr Ajani is wonderful and is on the cutting edge for stomach cancer.

 

Mel

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About Mel5787

Patient
Stomach Cancer
Cancer Nutrition, Diet, Emotional Support, Side Effects, After Treatment

Hi! I am a 53 yr old female that was diagnosed with Stage 4 stomach cancer June 2009. It had spread to my liver as well. After 6 rounds of chemo which consisted of cisplatin, taxotere and 5FU, I was cancer free. In December 2009, I had a gastrectomy, part of my liver, gall bladder and nodes removed.
I just passed my 4th year of being cancer free. I have a 25 yr old son and have been married for 28 yrs. My husband has been my strength. He has been so supportive.
I have lost 65lbs. At my last office visit I had gained 9 lbs!! I eat a large variety of foods and without a stomach, one would think that isnt possible. But thru trial and error, I have found what works for me.
I have learned not to sweat the small stuff and look at everyday as a gift. Being sick has taught me so much. It is a shame that it took something so severe to make me realize what is important to me.
I am always here to answer any questions anyone might have. Experience can be the best teacher.

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