I was diagnosed with stage 3 colon cancer back in June, 2009. I got the diagnosis when leaving a memorial service for my brother John, who passed away on June 15th due to an accidental fall, at the age of 54. I am 59 years old and just completed my chemotherapy on February 18th. I went thru the full 6 months but did have a couple of breaks sprinkled in. I am having an awful time with the effects of the neuropathy right now. I had returned to work in November and had been going into work on my off week, and also at the beginning of the weeks I received my chemo treatments. Like most of the patients I have read about on this website, I received the FolFox regimen of Oxaliplatin, leucovorin, and 5FU. I had to leave work a few weeks ago because I was having too much difficulty with commuting back and forth. I just felt exhausted by the end of the week. Plus the neuropathy had reached a point that by the end of the day I limping home from work from the foot pain.
My doctor just put me on Neurontin which I have been taking now for better than a week. So far I have not experienced any difference with the neuropathy. I also continue to take L Glutamine and B6 daily. I am thankful I have completed treatment, and know that I will now be undergoing some additional tests. However the neuropathy pain has become really bad, and I just wish I could get some relief from all of this.
I am not only experiencing the numbing and tingling feelings in my hands and feet, but I also experience it in my lower lip and jaw, and it spreads to my nose and affects my voice by the end of the day. Any body who is suffering with these side effects I would love to hear from. I am also open to any other suggestions.