Nettty

Nettty's Recent CancerCompass Activity

• Nettty has replied to a post on the message board

  He is at home. According to McK there isn't any other chemo drug that can help him :-0....you can imagine our shock. It's just awful. Hope things stay good for you. You're in my thoughts. Nettty

  May 07 at 12:52 AM view post

• Nettty has replied to a post on the message board

  Hi MelbSufferer, I wish that I could say things were good, but unfortunately it's not going so well here with my poor, poor hubby. He has stopped the Afinitor, and we are keeping him as comfortable as possible. His body is exhausted. He is very sleepy. It's heart wrenching! Enjoy every moment! Things can change quickly. I hope that things continue well with you. Take care and all the best. Nettty

  May 06 at 11:51 PM view post

• Nettty has replied to a post on the message board

  He has often had the Zometa every two weeks due to the hypercalcemia. It's a tough one!!

  May 06 at 10:25 AM view post

• Nettty has replied to a post on the message board

  Hi, Yes he has been given Zometa every time the calcium levels go up. Nettty

  May 05 at 9:27 PM view post

• Nettty has created a new message board discussion

  Hi Everyone, I need your help. My hubby (RCC, stage I'V, 2011, many mets to bones), has been on Sutent (a year) and now Afinitor for 3 months. His last scan showed stable disease, but our Oncologist wants to stop the Afinitor as he is getting more frail & weak, and feels that he has only weeks to go. He has had on going problems with hypercalcemia. What do we do? Have any of you stopped treatment and done nothing...

  May 05 at 6:31 PM view discussion

• Nettty has replied to a post on the message board

  Hi Melb Sufferer, I sent you a private reply, let me know if you didn't get it. I'm thinking about you & hoping that all is progressing well! All the best, Nettty

  April 10 at 11:06 AM view post

• Nettty has replied to a post on the message board

  Hi Melbsufferer, Great to hear from a local. Where are you being treated & who is your oncologist? My hubby was diagnosed in Oct 2011, aged 51. He has been on Sutent and due to the formation of more bone tumours he is now on Afinitor. He is being treated at Epworth Private, Box Hill. It's really tough. So hard to see him in pain and suffering side effects of the drugs not to mention that it's robbed us of ...

  March 21 at 5:39 AM view post

• Nettty has replied to a post on the message board

  Oh I can relate to the constant feelings of guilt! Going out feels so liberating, but then so self indulgent, that I just want to get back home again! I had a shop yesterday with my mother & sisters and felt guilty! It's terrible.... Luckily we are still able to go out for dinner occasionally but it's not easy. What's your husbands history? Mine has kidney cancer, diagnosed 17 months ago. It's been a slow decline in ...

  February 28 at 3:31 PM view post

• Nettty has replied to a post on the message board

  Hi all, I fully understand where you are all coming from. What a depressing situation we find ourselves in, as care givers. As our once, hard working, kind, generous and loving husbands become grumpy, in constant pain and frail, what can we do to truely help them....so little, I feel. Out life changed 3 weeks after we moved into a brand new house that took 2 years to design and build. What a SHOCK it was when...

  February 28 at 2:47 PM view post

• Nettty has replied to a post on the message board

  Hi, Has the Avastin helped with the reduction in number or size of bone mets? That's our biggest challenge..... Nettty

  January 16 at 5:34 PM view post