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Nettty's Recent CancerCompass Activity

  • Nettty has replied to a post on the message board

    Hello, My husband was on 75mg for a month or two, but the side effects got too difficult to tolerate. He then went in to Afinitor for 3 months, and sadly passed away 2 months later. I wish you luck in your battle! It's tough, and then 100 times tougher after they pass. I'm sorry I couldn't give you more positive information. All the best, Nettty

    October 18, 2013 view post
    • Nettty has replied to a post on the message board

      Hi Kelly, I've only posted a few times on the Kidney Cancer site, but I have been reading many of the Caregivers comments. I read with envy the caregivers comments now as loved ones are still with them. I too had the ups and downs of the caregiver, and many times was completely overwhelmed by the situation, but sadly my darling hubby lost his fight 3 weeks ago. I'd do ANYTHING to have him back. It's very hard when th...

      June 28, 2013 view post
      • Nettty has replied to a post on the message board

        He is at home. According to McK there isn't any other chemo drug that can help him :-0....you can imagine our shock. It's just awful. Hope things stay good for you. You're in my thoughts. Nettty

        May 07, 2013 view post
        • Nettty has replied to a post on the message board

          Hi MelbSufferer, I wish that I could say things were good, but unfortunately it's not going so well here with my poor, poor hubby. He has stopped the Afinitor, and we are keeping him as comfortable as possible. His body is exhausted. He is very sleepy. It's heart wrenching! Enjoy every moment! Things can change quickly. I hope that things continue well with you. Take care and all the best. Nettty

          May 06, 2013 view post
          • Nettty has replied to a post on the message board

            He has often had the Zometa every two weeks due to the hypercalcemia. It's a tough one!!

            May 06, 2013 view post
            • Nettty has replied to a post on the message board

              Hi, Yes he has been given Zometa every time the calcium levels go up. Nettty

              May 05, 2013 view post
              • Nettty has created a new message board discussion

                Hi Everyone, I need your help. My hubby (RCC, stage I'V, 2011, many mets to bones), has been on Sutent (a year) and now Afinitor for 3 months. His last scan showed stable disease, but our Oncologist wants to stop the Afinitor as he is getting more frail & weak, and feels that he has only weeks to go. He has had on going problems with hypercalcemia. What do we do? Have any of you stopped treatment and done nothing...

                May 05, 2013 view discussion
                • Nettty has replied to a post on the message board

                  Hi Melb Sufferer, I sent you a private reply, let me know if you didn't get it. I'm thinking about you & hoping that all is progressing well! All the best, Nettty

                  April 10, 2013 view post
                  • Nettty has replied to a post on the message board

                    Hi Melbsufferer, Great to hear from a local. Where are you being treated & who is your oncologist? My hubby was diagnosed in Oct 2011, aged 51. He has been on Sutent and due to the formation of more bone tumours he is now on Afinitor. He is being treated at Epworth Private, Box Hill. It's really tough. So hard to see him in pain and suffering side effects of the drugs not to mention that it's robbed us of ...

                    March 21, 2013 view post
                    • Nettty has replied to a post on the message board

                      Oh I can relate to the constant feelings of guilt! Going out feels so liberating, but then so self indulgent, that I just want to get back home again! I had a shop yesterday with my mother & sisters and felt guilty! It's terrible.... Luckily we are still able to go out for dinner occasionally but it's not easy. What's your husbands history? Mine has kidney cancer, diagnosed 17 months ago. It's been a slow decline in ...

                      February 28, 2013 view post
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