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Pauna's Recent CancerCompass Activity

  • Pauna has replied to a post on the message board

    My niece has been diagnosed with a DIPG one month ago. She's under radiotherapy.

    You've talked about some children who were cured. Do you know one of them ? Can you tell me what kind of treatment they had ?

    I hope all your children are doing well.

    All my support to your families.

    Pauna


    October 12, 2011 view post
    • Pauna has replied to a post on the message board

      My niece has been diagnosed with a DIPG one month ago. She's under radiotherapy.

      You've talked about some children who were cured. Do you know one of them ? Can you tell me what kind of treatment they had ?

      I hope all your children are doing well.

      All my support to your families.

      Pauna

      October 12, 2011 view post
      • Pauna has created a new message board discussion

        Hello eveyone, I am new on this forum and I would like to have some informations about treatments agains diffuse intrinsic pontine glioma (DIPG). In fact, a DIPG has been diagnosed to a little girl of my family in September and we are thinking about alternative treatments. She is under radiotherapy but it won't cure her. Moreover, she has a biopsy that indicates she's not receptive to any chimiotherapy. Then we a...

        October 12, 2011 view discussion
        • Pauna has replied to a post on the message board

          Hello eveyone, I am new on this forum and I've also heard about Burzynski clinic. I live in France and it's pretty hard to have an opinion about it because our doctors don't know / trust it. In fact, a diffuse intrinsic pontine glioma has been diagnosed to a little girl of my family in September and we are thinking about alternative treatments. She is under radiotherapy but it won't cure her. Moreover, she has a b...

          October 12, 2011 view post
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          About Pauna

          Brain Cancer
          After Treatment, Alternative Treatments, Cancer Treatments, Clinical Trials and Research, Diet, Lifestyle, Support

          A diffuse intrinsinc pontine glioma (DIPG) has been diagnosed to a a little girl in my family (oligoastrocytoma) in September 2011. She is under radiotherapy and we are looking for alternative treatments once the radio will be over. We have no alternative because she doesn't have any recepto to chemio.
          We live in France but I am looking for any information about treatments worldwide in which she could be elegible.
          Thank you for your help.

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