PhilV

Other than some pretty bad head ache's my seizures were of a strange episode. I would have a loss of rememboring simple little words like cat and dog and I couldn't remember my wife and kids name but I knew who they were. Also I would have images that seemed like they was floating around the back of my head. When I would awake the next day I would be back to normal.

I was diagnosed with Oligo in 2002 deep in my left temporal lob witch controls a lot of your memory and other things. I had to make a month long trip to MD Anderson in Houston and they were able to remove 85% and a year on chemo was able to take care of the rest.

I'm at 9 years now but still working on recovery because it took a while for me to be able to read and right or even remember simple words and names of friends. This was all mainly because of the location. Another oligo survivor in a group I'm with has been going threw a totally different situation. He has had to have two operations in a short period of time and is now on  Temodar. His memory is still good and does all the family book work..

My last MRI's have all looked good.

Good luck and I hope it all goes well.

My memory loss hit me a few weeks after my surgery at MD Anderson when I started my Chemo but I never had the thought that it was from the chemo but I my have to look into it. My tumor was in my left temporal lobe that controls short term memory. I lost pretty much all short term memory where I couldn' read or wright three letter words, remember names or simple words just wouldn't come out. It took me a few years and some work to get it going again. It may take some time but I hope it all comes back for her.

Mine did the same thing where I use to have pretty large veins to one's that looked like a valley down is side my skin. This was primarily during my chemo and steroid days and finely came back to normal. When I did queston some of my doctors, they didn't seem to think much about it so I figured that it was just part of the process.

Glad everything is going well

I'm an eight year survivor of Oligodendroglioma in my left temporal lobe. Surgery at MDAnderson and a year on Chemo took me awhile to recover because of the location I lost a lot of memory and couldn't read or right, but a lot of things are working now. The thing about Oligo's is that they are slow in growing and may take years to really cause and effect. They say I may have had mine 5 to 6 yrs before I had any symptoms and when I did started getting them it was beause it was starting to advance.

I still have to keep a close watch because Oligo's can come back or advance to a higher grade tumor. I have to keep having MRI's twice a year.

I'm a eight year survivor of an Oligo grade 2/3 located deap in my left temprol lobe. Surgry at MDAnderson and a year on chemo has put it to a stop. My first coulpe of years were pretty rough but staing active really helped in many ways. I'm 54 now and I fell every year is a blessing.

Hi Brenda, Sorry for your loss.

I found this national group that covers a lot of areas in Ontario. http://www.braintumour.ca/braintumour.nsf/eng/home

Phil

Brain Cancer Awareness is in the first week of May. Bad thing about that is here in Louisville thats Derby week. So we moved our walk to the second week.

My voice was never great to begine with but after the surgury, steriods and chemo I've gone to a real low mumbly sound.

Sorry I ment your moms