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PiperPilot's Recent CancerCompass Activity

  • PiperPilot has replied to a post on the message board

    Very sorry to hear about your husband. However, due to their large size Votrient molecules do not penetrate the blood-brain barrier - so this drug cannot work directly on brain mets. Is it possible that your husbands abrupt change in personality is due to the brain mets - or as a side effect to some other drug(s) he is taking?

    Yesterday at 12:07 PM view post
    • PiperPilot has replied to a post on the message board

      Yes I have.  Generally you start at 5mg twice a day.  If no severe side effects you gradually titrate up to 10mg twice a day - or as close to that as you can tolerate. Inlyta did not work for me even though Sutent did (for about 14 months). Register at: www.SmartPatients.com where you can read about the experience of dozens of Inlyta users.

      October 16 at 12:28 PM view post
      • PiperPilot has replied to a post on the message board

        Guy, If you really want to learn more, please consider registering at: www.SmartPatients.com

        September 09 at 7:37 PM view post
        • PiperPilot has replied to a post on the message board

          Don't feel bad, Peggy.  The only reason I knew this is because I attended a presentation by the head of research at Amgen (maker of Xgeva) years ago.  Based on his presentation I became concerned that I was being allowed to continue on Xgeva while I was in a clinical trial for an anti-PDL1 drug. I was concerned that Xgeva might be acting as a mild immune suppressing agent. Later it turned out that the lea...

          September 03 at 10:01 PM view post
          • PiperPilot has replied to a post on the message board

            Hi Peggy.  Just a minor nit-pick. Only Zometa is a bisphosphonate. Xgeva achieves the same end but it is a completly different animal.  It is a monoclonal antibody. -PP

            September 03 at 9:47 PM view post
            • PiperPilot has replied to a post on the message board

              Hi Nathalie, I am very sorry to hear about your ongoing experiences. I have already sent you my guide so please let me know if you do not receive it. Although a vegetarian diet may be helpful in the short term after months of research (guided by exploring what exactly happens at the cellular level) you will find that I recommend a low carb/high fat diet for cancer patients.  It is the only approach that makes...

              August 30 at 6:17 PM view post
              • PiperPilot has replied to a post on the message board

                Enough already: http://scienceblogs.com/insolence/2014/07/10/medical-marijuana-and-the-new-herbalism-part-1/ http://scienceblogs.com/insolence/2014/08/18/medical-marijuana-and-the-new-herbalism-part-2-the-cult-of-cannabis-cures-cancer/

                August 19 at 6:53 PM view post
                • PiperPilot has replied to a post on the message board

                  This post is a joke, right? Many of your cells lining your gastrointestinal tract also experience "rapid cell growth" which is why many chemo treatments end up targeting them alone with the cancer. So, does that make them fungus cells??? I suggest you do a little research in basic biology to learn what the characteristics of fungus cells are.  Sheesh.

                  August 17 at 2:01 PM view post
                  • PiperPilot has replied to a post on the message board

                    Hi Peggy.  Just a clarification.  Cabozantinib is not an immune-stimulant. It is a small molecule inhibitor of the tyrosine kinases known as c-MET and VEGFR2. In this regard it is similar to Sutent or Votrient, etc. but with the new addition of c-MET inhibition. It has been approved for the treatment of Thyroid cancer (so far) but not renal cancer.  It is marketed under the tradename Cometriq. It ha...

                    May 22 at 1:05 PM view post
                    • PiperPilot has replied to a post on the message board

                      Not sure if this message was for me or not. But I am happy to send you a copy of my guide to nutrition via direct email (it is a 65-page .pdf file). To do so, send me a private message including your email address and I will then send it directly to you. Best wishes, -PP

                      May 14 at 2:16 PM view post
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                      About PiperPilot

                      Left nephrectomy in May 2010.
                      Chromophobe RCC
                      Furman Grade 3 with extensive necrosis
                      Primary Tumor = pT2
                      Lymph Nodes = pNX
                      NED until July 2012.
                      July 2012 = Lytic lesions involving anterior T4 & right anterior T5 bodies; Expansile grade right sacral coccygeal lesion 4.3cm x 2.6 cm; Left proximal femoral lytic metastases.
                      On Sutent-50mg/day and Xgeva (monthly)

                      I have had no significant side effects taking Sutent/Xgeva for over 8 months now.

                      I have written up what I have discovered and what I am doing to minimize side effects, etc. in a .pdf document that I am happy to share with anyone interested. In particular it outlines the science and rationale behind the diet and supplements that I take.

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