PiperPilot

PiperPilot's Recent CancerCompass Activity

• PiperPilot has replied to a post on the message board

  It is essential to combine Sutent with either Zometa or Xgeva in order to get any response to bone mets. I only have bone mets. I have been taking Sutent (50mg/day) with Xgeva since last August. My mets were first discovered in July. I have had great success so far.  All my bone lesions have been shrinking or stable or are only showing new bone growth. Using Sutent alone is typically not very effective against...

  Yesterday at 12:30 AM view post

• PiperPilot has replied to a post on the message board

  I have metastatic RCC (mRCC) with mets to my sacrum (base of my spine) and left femur (thigh/hip).  My original tumor (11cm) was also chromophobe.  I was NED (No Evidence of Cancer) for 2+ years after surgery before those mets were discovered in me last July. It is absolutely essential that you take either Xgeva (Denosumab) or Zometa (Zoledronic Acic) in addition to whatever other targeted therapy they rec...

  Yesterday at 1:44 PM view post

• PiperPilot has replied to a post on the message board

  Yes, the lab values will be different.  However, your numbers are fairly typical for folks who are running on one kidney like myself. Normal BUN range is between 8-26 mG/dL. Mine is 24, just like yours. Normal Creatinine level is between 0.5-1.2 mG/dL. My value is 1.0.  Yours is a little high.

  May 14 at 11:46 PM view post

• PiperPilot has replied to a post on the message board

  Here are two novel suggestions for dealing with Hand-Foot Syndrome.  I do not have any idea if or how well they may work as I do not suffer from HFS: 1) http://xelodasideeffects.blogspot.com/2009/02/keeping-it-simple.html I, for one, would be very interested to know how this works if you do try it. 2) I can also point you to another therapy that is a US patent application: United States Patent Application #...

  May 12 at 2:56 PM view post

• PiperPilot has replied to a post on the message board

  Thanks so much for that update. However, I need to correct a key misconception.  The problem with sugar(s) and/or high glycemic carbohydrate consumption is not because glucose feeds cancer cells. You cannot "starve" tumors in this fashion. The real reason is because these agents can cause rapid and uncontrolled upward spikes in Insulin levels.  Along with this Insulin comes another hormone - Insulin-like ...

  May 09 at 5:25 PM view post

• PiperPilot has replied to a post on the message board

  Well it sounds like he had good response initially. When you go off of a TKI like Sutent many people can experience "flare" - an aggressive recurrance of tumor growth. But that should be brought right back in check now that he has restarted on it. What is his dosage?

  May 09 at 3:15 PM view post

• PiperPilot has replied to a post on the message board

  Hi Gavino, Well my guide is now over 65 pages long as I continue to add the results of more research - including papers presented at this years AACR (American Association for Cancer Research) Annual Meeting held a few weeks ago in Washington, DC. However, you will need to send me a private message with your email address so I can send it directly to you.

  May 09 at 1:08 PM view post

• PiperPilot has replied to a post on the message board

  Not necessarily.  I have been taking Sutent at maximum dosage (50mg/day) 4 wks on followed by 1 wk off since last August.  I have had no significant side effects to date.  However, I have also modified my diet and added certain specific supplements to it which I am convinced have given me these results. Regardless, my lastest CT and full-body nuclear bone scans (I have bone mets) show that Sutent (plu...

  May 09 at 12:31 PM view post

• PiperPilot has replied to a post on the message board

  "Talk to your doctor before using pazopanib together with dexamethasone. Combining these medications may decrease the blood levels and effects of pazopanib. If your doctor does prescribe these medications together, you may need a dose adjustment or more frequent monitoring to safely use both medications. It is important to tell your doctor about all other medications you use, includingvitaminsand herbs. Do not stop u...

  May 08 at 12:12 PM view post

• PiperPilot has replied to a post on the message board

  I am not sure that is sufficient. I am pretty certain he should be on it routinely. With the TKI's like Sutent (which I take) either Zometa or Xgeva (which I also take) work synergistically against bone mets.  I am not sure if the same is also true for the mTOR's - but I think it is. You might want to seek a second opinion.

  May 06 at 3:34 AM view post