Load more activity
PrettyPains's Recent CancerCompass Activity
If any of you need any help with
With Post Mastectomy Pain Syndrome please go to this group at Facebook, I belong to it and it may be of help.
Look for this:
Post Breast Therapy Pain Syndrome
And ask to enter. We are a closed group and we can only be added by the owner (for security reasons)
Tell them that Loli-La Pains Ibarrola sent you.
I have received a lot of of help from there, hope I can help someone to...
February 17 at 5:01 AM
It seems more than common to find that our doctors would not mention to us any pain as an effect of a double mastectomy.
Please make the appointment at the Pain Specialist as soon as you can. The sooner, the better. You will find the riight answer there. It took me 1 year and half of waiting to the irght answer for my pain, but neither the oncologist or the plastic surgeon cared. So please, if your doctor ...
March 18, 2013
We all suffering from pain, have the same opinion: Nobody can understand us, unless they have suffered from the same pain. There should be a place where you find somebody to talk that could understand you. There's a group in Facebook that some of us are members there, called: Post Breast Therapy Pain Syndrome. I bet you will read and feel identified with many of them.
I am taking amitriptyline of 25mgs...
January 28, 2013
We should not be questioning if we were right or wrong about the mastectomy. I understand perfectly the pain, but WE ARE ALIVE.
The only thing I regret was to be confident that the oncologist and the plastic surgeon were giving me the right answer when I told them I was in pain. It took me 1 year and a half to really find out that I should go to a Pain Clinic and I must thank this great web page who rea...
January 26, 2013
Thank you very much!! I will read it!! I am already in at the Facebook group. It's such a relief that we are not alone with this.
I commented with my Oncologist about the post-mastectomy pain syndrome, and between us, let me tell you that even though she's a nice person, it seemed to me that she couldn't care less.
I will forward this article to her anyway!
December 30, 2012
I bet for you has been much more difficult than for some of us. My best regards for you and all my admiration for having such a great attitude.
December 18, 2012
Please check this link about the pain syndrome I talked to you about.
December 18, 2012
Yes, your surgeon is right, having the expanders was terrible and uncomfortable. In my case I was already having neuropatic pain, not muscular pain.
Just pay attention to your body. There's no reason why you should suffer and ask for what it's necessary about pain.
Hopefully in case you don't have any neuropatic pain, after the implant surgery you'll feel fine. In case you continue with pain, pleas...
December 18, 2012
Hi dear LizaMarie,
Let me explain you and this is not a matter of being scared ok? I had the last reconstruction this January 6th, next month it will be a year. On May 2011 I had the double mastectomy and they put the expanders. Last January they exchanged them for the implants (silicone).
I have spent about 1 year and a half dealing with neuropatic pain and shifting between the oncologist and the plastic surgeon w...
December 17, 2012
I know it's been many years now since your double-mastectomy. May I ask how is your pain now?? Hope one day you read this message.
I'm a breast cancer survivor, I had a dm on May 2011. I've suffered from pain and just as Lucy, all the doctors seem just to don't understand why I am in pain. Incredible, Isn't it??
I have tried Neurontin. But the side effects just knock out me. The pain is still there and...
November 17, 2012
Loading more activity
After Treatment, Side Effects, Support