RandiJoy

RandiJoy's Recent CancerCompass Activity

• RandiJoy has replied to a post on the message board

  What are rescue shots?  That's good you're getting the shots that frequently.  Are the 30mg?  I know Dr. Woltering says the octrotide blood levels should be over 5,000 which requires 30mg 2x monthly & ideally blood levels should be well over 5,000.  My dad just had his first shot and he's only going to be getting the shots every 30 days :(  What doctor/clinic are you being seen at?

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Thanks for you reply!  I'm so sorry to hear about your dad's cancer :(  Insurance situations like this, and so many other insurance battles make me livid! The crazy thing is, just becaue a doctor is considered a "specialist" in this field doesn't mean they really are.  We've learned the hard way.  The doctor he's seeing now is the Chief of encology at a prominent hospital and has some experience ...

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Hi Jen, Thank you for your reply.  I'm sorry to hear you're going through this :(  I REALLY hope they will operate.  They go the aggressive route even when it's at this point.  It just depends on angigenisis (sp?)(blood vessels) & locations.  Each tumor has different characteristics and respond differently to the different therapies and this is one of the reasons they like to get a m...

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  That's OK, Gayle :) Hubby, dad.....still a family relation lol

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  God bless you too Mary.  I'm sorry you're going through this too :(  Please just know that you have control over your treatment so educate yourself and remember that the doctors work for you.  Take care and please let me know how you're doing!!

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Hi Gayle, Thank you very much for your reply!  Unfortunetely, NETS are slow growing so they could take years to cause problems but that's a whole different issue then them spreading. Slow growing, per tumor, has nothing to do with them spreading :( As far as Steve Jobs, that's also unfortunte. He did DNA testing and didn't do some of the things he should of (bad doctor advice and he went to Stanford!)  ...

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Thank you for your reply, SO much!  I see there are a few replies I must respond to.  One lady has compared breast cancer and that NETS are slow growing so they could take years to cause problems but that's a whole different issue then them spreading.  Slow growing, per tumor, has nothing to do with them spreading.  Thank you again! xo

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Thank you for your reply, SO much!  I see there are a few replies I must respond to.  One lady has compared breast cancer and that NETS are slow growing so they could take years to cause problems but that's a whole different issue then them spreading.  Slow growing, per tumor, has nothing to do with them spreading.  Thank you again! xo

  October 22, 2011 view post

• RandiJoy has replied to a post on the message board

  Thank you for your reply!  I've heard of Sloan Kettering. Have you heard of the Neuroendocrine Program at Oschner Medical Center? If so, what were some of the deciding factors to choose Sloan Kettering Ochsner Medical Center over this one? From what I understand, Dr. Woltering has worked closely with Dr. Richard Warner who's out of Mount Sinai and the a "guru". He's Director of the Carcinoid Foundation. &nb...

  October 20, 2011 view post

• RandiJoy has created a new message board discussion

  Hello.  My dad was just diagnosed with NETs in his stomach, intestines & lymphnodes. I've learned so much in the last month & a half, I'm SURE I know more than the doctor he's seeing who's the head of oncology at Univerisity Seidmans Cancer Center in Cleveland, Ohio.  It's very upsetting :(  He just received his first Octreotride shot yesterday (30mg). None of the tumors are inoperable but they...

  October 19, 2011 view discussion