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Reellucky's Recent CancerCompass Activity

  • Reellucky has replied to a post on the message board

    Oh, one more thought to share.  I saw a sign recently in a cancer center.  It read: "CANCER IS A WORD....NOT A SENTENCE!" Took me a minute to obsorb the true meaning but it has stuck with me and encapulates the meaning of my prior advice to you. Again, my best to your Aunt. Charlie 

    August 23 at 9:42 PM view post
    • Reellucky has replied to a post on the message board

      The first thing I would say to you is that "Where there is life, there is hope."  I am a 60 yr old male who had a cantelope size tumor on my left kidney.  I had it removed 5.25 years ago.  One year later, it became Stage 4 and spread to my lungs.  Thanks to a miracle pill form of chemo called Sutent, I lead an almost normal life today and am currently clear of all tumors. I wont pretend it has be...

      August 23 at 9:38 PM view post
      • Reellucky has created a new message board discussion

        I am currently a 5.25 RCC survivor, with Stage 4 and on Sutent for almost 4 years.  I did almost 3 years on the schedule of 4 weeks on, and 2 weeks off.  Since it was working really well, I was afraid to change it. After a rogue tumor appeared and broke some ribs, and the constipation/spincter side effect became almost unbearable, I switched to 2 weeks on, and 1 week off.  A fistula appeared (hole in ...

        August 23 at 9:14 PM view discussion
        • Reellucky has replied to a post on the message board

          I had a cantelope size tumor removed with my left kidney 5.25 years ago.  One year later 2 tumors showed up, one on my left lung and one near the old kidney site.  Both removed with surgery.  3 months later, 4 more tumors appeared on my left lung.  Went on Sutent (4on2off).  My RCC had sarcomotoid properties making it the more aggressive version.  I was 56 years old then.  Two oncol...

          August 23 at 9:01 PM view post
          • Reellucky has created a new message board discussion

            Went for almost 3 years on Sutent cancer free taking 50 mg four weeks on two weeks off. Then a tumor appeared on my left lung which eroded into my number seven and number eight rip causing a fracture. I'm about halfway through focused radiation treatments to help the ribs heal. My oncologist feels that I should probably stay on Sutent but the side effect of the anal sphincter shrinking and painful bowel movements ha...

            September 03 at 4:58 PM view discussion
            • Reellucky has replied to a post on the message board

              Hi bjsell, Sorry to hear about the new met on your lung.  Did that appear before or after you modified you dose of Sutent? I havent resolved my constriction issue, but I have learned how to manage it more or less.  Because of the super-liquid diareah which I get around the end of week 4 when the constriction hits, I do a balancing act using just enough anti-diareah pills (1/2 pill at a time) to keep the r...

              March 14, 2014 view post
              • Reellucky has replied to a post on the message board

                Just passed my 2 year anniversary on Sutent 50mg/4on/2off and I am now NED (NO EVIDENT DISEASE!!!).  The 4 mets that appeared on my lungs after 1.25 years following kidney removal are now so small that they do not even show up on a ct scan.  Cant say the side effects are not noteworthy, but given the alternatives, I have told my oncologist I can live with them 30 or 40 more years (I'm 59).  BTW, that i...

                February 04, 2014 view post
                • Reellucky has replied to a post on the message board

                  Hey Lynn, I am in San Diego, CA.  I have been on the 4 on, 2 off schedule with Sutent for 2 years this month.  I have an external hemoroid/leision which also bleeds a fair amount when the sphinkter issues happed late in Week 3 on into early Week 1 off. I saw several postings on Cancer Compass about people saying their tumors returned after going off Sutent for a breaks and the tumors seemed to be resistan...

                  October 30, 2013 view post
                  • Reellucky has replied to a post on the message board

                    Lynn,  Misery loves company and I really you reaching out to me with your story. Surgery?  Wow....keep me posted if you go that route.  My GP doctor have me a prescription for a solution called Enulose....2 tbl 2x a day.  It tastes like caro syrup, kinda sweet, but it it loosens stools close to diarhrea but without the acid or cramping.  Basically it makes the couch more like a pillow to sho...

                    October 29, 2013 view post
                    • Reellucky has replied to a post on the message board

                      Thanks for the Response.  The other posting I read said they felt like they had a "tearing" action during their bowel movement causing the bleeding.  I think the vaso-constricting nature of Sutent is affecting my sphinters ability to open.  I had the too loose stools side-effect, which was actually more like uncontrollable projectile diahrea along with really bad heartburn until I started regular use o...

                      October 13, 2013 view post
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                      About Reellucky

                      Kidney Cancer

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