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RhondaKVD's Message Board Messages

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Hello again.  Glad yesterday was a very good day.  Afinitor was the 2nd med that they used w/ Wm after a study drug, Tivozanib, which was great for minimal side effects, but didn't hold the tumor. Just like the other pt. that answered, watch out for the "cough".  It is inflammation of the lungs and once it gets going, I don't think it's worth holding out. They can control it w/ steroids but, there are other drugs instead.  The other side effects, mainly, terrible fatigue, weren't worth it to Wm.  He wasn't controlling his fevers at the time.  It might have been more tolerable if he had.  Dr. Vogelzang's next choice would have been Inlyta, a new drug on the market, but after studying its' side effects, Wm. refused and switched himself to Protocel 23. Elonna of "Elonna's Corner" who was cured of breast cancer with Protocel, recommended Protocel 50 because of his mets and we will change as soon as we run out of the first bottle.

My husband w/ stage 4 kidney mets to the liver and diaphram started Protocel 2 weeks ago and Paw Paw 1 week later.  I don't remember sweats being a side effect of protocel, but Bill suffers nightly from tumor fever breaking into sweats and chills.  Watching his minerals by adding Pedialyte or Gatorade during the day and taking 1 Tylenol when the fever begins helped a lot with the terrible fatigue he's been dealing with.

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About RhondaKVD

Caregiver, Doctor
Kidney Cancer, Renal Cell Cancer
Cancer Nutrition, Cancer Treatments, Diet, Lifestyle, Recipes

My husband developed renal cell carcinoma in 2009 along w/ coincidental prostate cancer and a basal cell carcinoma. All were removed successfully, but the renal cell returned in the adrenal gland, then again in the fossa. It has a local metastastasis in the liver and the muscle of the diaphram and is inoperable. An experimental drug, Tivozanib helped stabilize it for 4mo. but it grew and he was dropped from the study. Afinitor was so dreadful he said he'd rather die of the cancer than the drug and discontin- ued for Protocel (2weeks as of 6/9/12)and Paw Paw x 1 week.

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