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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Hi Geni, My brother has MRSA.  It is his third bout with it.  He just can't seem to get rid of it.  He is my only sibling left.  My sister was killed 6 years ago in an accident. I don't know about you, but, sometimes, I look around and think:  Why have all these terrible things happened to my family?  There are some people who go through life with absolutely nothing going wrong.&n...

    Yesterday at 10:55 PM view post
    • RobinMB has replied to a post on the message board

      Dear Joanne, I was so sorry to hear of your husband's passing.  My heart breaks for you.  I, too, lost my husband to cancer.  Just like you, I was able to hold my husband as he passed.  I feel honored to have been there during his last moments.  I am thankful he was not alone.  Surely, our husbands found comfort in our loving arms.   Your beautiful family will help you g...

      Yesterday at 10:48 PM view post
      • RobinMB has replied to a post on the message board

        Yes, me too.  I still can't believe it sometimes.  How could such a healthy guy get diagnosed with brain cancer?  There is such a void in my life.  I don't really feel very alive anymore either.  I am very depressed, but I know I have to go on.  Yet, I am not able to find enjoyment in much.  I guess my grandkids are the only thing that I enjoy these days.  But, I don't enjoy t...

        Yesterday at 2:21 AM view post
        • RobinMB has replied to a post on the message board

          I am so sorry to hear this.  I understand what you are going through.  We had the same experience with Hospice when my husband was on Hospice care for the last 5 weeks of his life.  They only stopped out once a week.  I provided the majority of his care.  Basically, their goal was to provide morphine to minimize any pain.  They wanted me to give him morphine even when he didn't want it a...

          Monday at 5:38 PM view post
          • RobinMB has created a new message board discussion

            As many of you know, my husband passed away four months ago.  I am still crying myself to sleep every night. Unfortunately, my life is starting to sound like a sad country song.  Yesterday, I had to take my little dog to the vet for a discharge from his eye.  Would you believe my dog has to have his eye removed?  He has an ulcer in his cornea.  I am so incredibly upset.  On top of that...

            April 17 at 1:52 AM view discussion
            • RobinMB has replied to a post on the message board

              Most of the research I have read states that brain cancer is not hereditary.  When we go through a traumatic cancer journey, I think we begin to worry excessively about all forms of cancer.  But, there's one thing I've learned about worrying after traveling the cancer journey:  worrying just makes you live life less happier.  Once you get through that doctor appointment to check your daughte...

              April 17 at 1:44 AM view post
              • RobinMB has replied to a post on the message board

                Glitzy, I TOTALLY relate!!!  When my husband was in the last stages of cancer, someone said:  "Wow, you look really great!  You're holding up very well."  Another friend told me that I was doing a lot better than she did after she lost her husband.  I think there's just more drama for everyone in this world when we fall apart.  They have more to talk about.  What can we expect???&n...

                April 01 at 1:40 AM view post
                • RobinMB has created a new message board discussion

                  One Drug to Shrink All Tumors 26 March 2012 3:05 pm 217 Comments Fotosearch Survivor. When mice with human tumors received doses of anti-CD47, which sets the immune system against tumor cells, the cancers shrank and disappeared. A single drug can shrink or cure human breast, ovary, colon, bladder, brain, liver, and prostate tumors that have been transplanted into mice, researchers hav...

                  March 30 at 11:25 PM view discussion
                  • RobinMB has replied to a post on the message board

                    Hi Glitzy, I truly understand how awful this step is to take.  My husband has been gone 3 months, and I still have all of his things.  Would you believe, at the wake, an old neighbor of ours told me to keep him in mind when I was ready to sell my husband's boat?  People just don't think.  Until you have to go through this type of loss, it is very difficult to understand all of the different ...

                    March 30 at 9:13 PM view post
                    • RobinMB has replied to a post on the message board

                      There are no perfect words for you at this devastating time of your life.  I lost my husband 3 months ago from brain cancer.  I held him and felt his heart stop.  He was at home in Hospice for 5 weeks.  He was a youthful 53 year old.  I understand the pain and the loneliness.  It seems so unfair; I wish we didn't have to endure this.  My mind does exactly what yours does; I think of...

                      March 27 at 11:03 PM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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