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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    If you visit,www.virtualtrials.com, you will find results of clinical trials for GBM.

    November 11 at 10:19 PM view post
    • RobinMB has replied to a post on the message board

      I am so sorry to hear about your sister.  GBM is a devastating diagnosis.  But, you are doing the right thing by getting your sister to Sloan Kettering or Duke.  My husband was treated at Roswell Park.  I live in a suburb outside of Buffalo, NY.  I was happy with the neurosurgeon, Dr. Robert Fenstermaker, but I was NOT happy with the neuro-oncologist.  He does not stay current with avail...

      November 11 at 10:08 PM view post
      • RobinMB has replied to a post on the message board

        I am so sorry to hear about your sister's passing.  I lost my sister 8 years ago.  She was only 43 years old when she died.  It was so devastating.  I understand how you feel.  It is heartbreaking!!! Take one day at a time.  It is the best advice I have ever been given. Your sister was so lucky to have you in her life! Robin

        November 03 at 1:41 AM view post
        • RobinMB has replied to a post on the message board

          Oh Melanie, you are truly right about saying how a brain tumor changes everyone's lives.  I have traveled that road.  It is torture.  I pray for a cure each day. Stay strong, Robin

          November 03 at 1:38 AM view post
          • RobinMB has replied to a post on the message board

            I am so sorry to hear about the loss of your beloved son, Jeff.  It sounds like you are a very strong woman with great faith.  These things will see you through as well as all of the people who loved your son and love you.  We are all here for you if you ever need us to listen again in the future!  Keeping you in my prayers, Robin

            November 03 at 1:34 AM view post
            • RobinMB has replied to a post on the message board

              Dear Nancy, I am so sorry to hear about Tony.  I recall reading some of your posts when my husband was battling GBM.  You were so positive, and you kept me thinking positive.  Thank you.  Cancer is so cruel.  And, you and your daughter have so much to deal with.  Life is so unfair.  Some people are given too much to bear. Please know that you are in my thoughts and prayers. Wit...

              November 01 at 1:44 AM view post
              • RobinMB has replied to a post on the message board

                Yes, I am also dreading winter. I know I am going to be stuck in my house all alone for many nights.  My husband won't be there to keep me warm.  He won't be there to keep me feeling safe when we get snow storms/blizzards.  He showed me how to use the generator when the power goes out, but it's pretty scary having to do all of this on my own.  At my age (early 50's) most of my friends are married...

                November 01 at 1:36 AM view post
                • RobinMB has replied to a post on the message board

                  Dear Kerry, Sometimes the hurt is too big for words.  This is one of those times.  I truly do not have the right words to express how deeply sorry I am for your loss.  All of us on this site who have lost a loved one understand the incredible pain you are feeling. Keeping you close in thought and prayer! Robin

                  October 26 at 10:43 PM view post
                  • RobinMB has replied to a post on the message board

                    Stephen, I hope you have a comforting journey.  The things you write about are so relevant to all of us dealing with the loss of our loved ones. Please let us know how things went when you return home! All my best, Robin

                    October 26 at 10:35 PM view post
                    • RobinMB has replied to a post on the message board

                      Glitzy, I love your idea of a message in a bottle!  That is so sweet.  Definitely stay close to your friends who are uplifting.  They will be a source of great strength for you.  It reminds of a song:  "Smile when your heart is breaking."  Then, when you are done smiling, cry because your heart is breaking.  Do whatever your heart desires.  Sometimes I feel like I just want...

                      October 14 at 11:06 PM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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