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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Thanks Sarah!  I'll sleep better tonight as I recall the beautiful heart-shaped cloud.  I'm so glad you started this post!!! Good night :) Robin

    July 11 at 2:05 AM view post
    • RobinMB has replied to a post on the message board

      Sometimes I think the reason I don't want to get rid of my husband's things just yet is because I still really want to feel his presence around the house.  I don't want him to be totally gone even though I know he is.  I hope that doesn't sound strange.  I have a friend who didn't start to get rid of her deceased husband's things until he was gone for six years.  I read this quote somewhere: "Th...

      July 11 at 1:53 AM view post
      • RobinMB has replied to a post on the message board

        These posts are so intriguing to me.  Sometimes I think I received a sign, and then I dismiss it as wishful thinking.  But, when I read that someone else also saw a heart-shaped cloud, I couldn't believe it.  I was sitting in my car at the marina (we used to have a boat) watching the boaters while crying my heart out, and suddenly I looked up and smack dab in front of me was a beautiful heart-sha...

        July 11 at 1:43 AM view post
        • RobinMB has replied to a post on the message board

          You took the words out of my mouth.  I understand how you feel about the last month.  My husband lost his ability to speak for a little over a month as well.  I was able to tell him everthing I needed to say, but I worry his capacity to understand was gone.  Sometimes I listen to the messages I saved on my phone just to hear him tell me he loves me. I know what you mean about switching place...

          July 11 at 1:31 AM view post
          • RobinMB has replied to a post on the message board

            Hearing your story and knowing you and your sister are so young causes me to think that you have a lot of weight on your shoulders.  The hospital should have social workers who can provide resources for you.  There are more advancements in brain tumor research happening these days.  Don't lose hope just yet.  Along with taking good care of yourself (staying healthy and getting counseling), try to...

            July 06 at 10:24 PM view post
            • RobinMB has replied to a post on the message board

              Hello Ariel, I am not a doctor so I am not offering you any advice. I don't want to give you false hope, but I've read that patients are stopping Novocure too soon.  It takes a while to begin working.  When did your husband start using the device?  And, if the Avastin is working and not causing any side effects, I hope Rico will be able to continue it.  I've read that there is a rebound affect w...

              July 03 at 4:57 AM view post
              • RobinMB has replied to a post on the message board

                Thank you to everyone for your support and compassionate words.  I think my financial situation and the loss of my husband's UPS pension as well as the retirement of his co-worker triggered my anger.  I bought a card and a gift for the co-worker, but I will not be attending the retirement party.  It would be too overwhelming at this time.  I felt better knowing that you understood how I was feeli...

                June 30 at 3:08 PM view post
                • RobinMB has replied to a post on the message board

                  I am so sorry to hear about your diagnosis.  You came to the right place for advice.  There are so many people on this site who are extremely helpful. Based on what you said about being a single mom, you could contact a social worker who might offer some good suggestions for you and your child.  Maybe there are some services who could provide transportion for you.  I am concerned that t...

                  June 29 at 2:09 AM view post
                  • RobinMB has created a new message board discussion

                    My husband passed away 6 months ago from brain cancer. I thought I was making some progress.  I wasn't crying as often, and I actually cooked a couple of meals for myself. (I was, basically, existing on cereal for the longest time.  I used to love to cook, but I totally stopped once my husband was gone.)  Lately, I feel so angry.  It has gotten to the point where I don't even want to talk to anyo...

                    June 25 at 2:26 AM view discussion
                    • RobinMB has replied to a post on the message board

                      Look at the research on ICT-107 and also check out immunotherapy for brain cancer.  Your son will have to have his surgery at the center where the treatment is offered, or, perhaps, he can have the treatment without the surgery.  I would definitely get more opinions; send those MRI's out to as many NO's as you can.  Check outwww.clinicaltrials.govfor immunotherapy, ICT-107 and dendritic cell treatment...

                      June 16 at 2:14 AM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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