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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Dear Nancy, I am so sorry to hear about Tony.  I recall reading some of your posts when my husband was battling GBM.  You were so positive, and you kept me thinking positive.  Thank you.  Cancer is so cruel.  And, you and your daughter have so much to deal with.  Life is so unfair.  Some people are given too much to bear. Please know that you are in my thoughts and prayers. Wit...

    7 hours ago view post
    • RobinMB has replied to a post on the message board

      Yes, I am also dreading winter. I know I am going to be stuck in my house all alone for many nights.  My husband won't be there to keep me warm.  He won't be there to keep me feeling safe when we get snow storms/blizzards.  He showed me how to use the generator when the power goes out, but it's pretty scary having to do all of this on my own.  At my age (early 50's) most of my friends are married...

      7 hours ago view post
      • RobinMB has replied to a post on the message board

        Dear Kerry, Sometimes the hurt is too big for words.  This is one of those times.  I truly do not have the right words to express how deeply sorry I am for your loss.  All of us on this site who have lost a loved one understand the incredible pain you are feeling. Keeping you close in thought and prayer! Robin

        October 26 at 10:43 PM view post
        • RobinMB has replied to a post on the message board

          Stephen, I hope you have a comforting journey.  The things you write about are so relevant to all of us dealing with the loss of our loved ones. Please let us know how things went when you return home! All my best, Robin

          October 26 at 10:35 PM view post
          • RobinMB has replied to a post on the message board

            Glitzy, I love your idea of a message in a bottle!  That is so sweet.  Definitely stay close to your friends who are uplifting.  They will be a source of great strength for you.  It reminds of a song:  "Smile when your heart is breaking."  Then, when you are done smiling, cry because your heart is breaking.  Do whatever your heart desires.  Sometimes I feel like I just want...

            October 14 at 11:06 PM view post
            • RobinMB has replied to a post on the message board

              Sarah & Stephen, I understand how you are feeling.  My husband will be gone 10 months now.  His birthday was back in August.  Some friends and my kids all went out to dinner.  I just couldn't go.  I knew I would cry the entire night. And, I did.  So, I think it was just better that I wasn't there.  It's not that I don't want to honor my husband's memory, it's just that it hurts...

              October 14 at 10:53 PM view post
              • RobinMB has replied to a post on the message board

                My husband was always very passionate about music.  So, I think he's trying to reach me through this medium. Here's an example:  I ALWAYS listen to the same radio station in my car.  For some reason, one day I was tired of the station and changed it to a different station.  I NEVER DO THAT!!! Well, I heard a song that I, truly, haven't heard in over 25 years.  It was the theme song from Dr. ...

                October 03 at 12:46 AM view post
                • RobinMB has replied to a post on the message board

                  Hello Maria, I have to agree with you.  I am slowly getting rid of the anger I have with the neuro-oncologist who treated my husband.  My husband was rushed into surgery, and I was the one doing a ton of research on various treatments.  If I didn't ask about different treatments, the NO would have just given my husband STUPP Protocol (which we always referred to as STUPID Protocol).  I was appal...

                  October 03 at 12:29 AM view post
                  • RobinMB has replied to a post on the message board

                    Hello Melissa, I have not lost a parent to cancer, but I lost my wonderful husband (53) to brain cancer 9 months ago.  Seven years ago I lost my beautiful sister (43).  She was killed in a motorcycle accident.  The grief and the pain that go along with loss are debilitating.  But, as the years go by, somehow we find a way to cope.  These are lifechanging events (there's no do...

                    September 30 at 1:13 AM view post
                    • RobinMB has created a new message board discussion

                      Suddenly, after grieving over my husband for the past 9 months, I feel achy all over.  I don't just mean that broken heart achy feeling.  I mean, my entire body hurts.  My bones and joints and my muscles just constantly hurt.  I feel as if I've aged 20 years.  Sometimes the pain will cause me to wake in the middle of the night.  When I wake up in the morning, I can barely move.  Eve...

                      September 12 at 1:46 AM view discussion
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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