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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Oh Stephen, I truly understand how you feel.  I couldn't seem to get myself together after my husband passed away from GBM (brain cancer) a year and a half ago.  He was only 53 years old.  He would have retired this year.  We were together for 33 years.  There are days when I still can't believe it happened. I finally went to see my general practioner.  She prescribed Cymbalta for me.&n...

    Yesterday at 3:44 AM view post
    • RobinMB has replied to a post on the message board

      There was some good news about the Novocure device onwww.virtualtrials.com  (the Al Musella website).  But, maybe you could talk to your neuro oncologist about a complementary treatment (maybe Temodar or Valcyte).  Have you heard about the polio vaccine that Duke is using to treat GBM?  Dr. Henry Friedman is the contact.  My heart goes out to you.  Stay strong!

      Yesterday at 3:05 AM view post
      • RobinMB has replied to a post on the message board

        Your husband will be in very good hands if you get him to Duke.  They, currently, have the polio vaccine clinical trial available there.  Duke does not charge to look at MRI's.  Send your husband's MRI cd's there ASAP.  Dr. Henry Friedman will get in touch with you.  He is very responsive to his patients.  The Cleveland Clinic also has several options for GBM.  Dr. Peereboom is gre...

        May 25 at 8:27 PM view post
        • RobinMB has replied to a post on the message board

          My husband died from GBM at age 53.  He never had a root canal.  Would you believe, he never had a cavity.  But, he did have two crowns on his two front teeth.  The back of the crowns were metal.  Just like you, I wish they could determine what is causing GBM.  My husband was in PERFECT health.  Brain cancer came out of nowhere. 

          May 25 at 8:10 PM view post
          • RobinMB has replied to a post on the message board

            I think you made a good decision by going back on Avastin.  Is it possible for you to have surgery to remove the tumor? Don't give up.  The will to live is a strong predictor of our life expectancy.

            May 19 at 12:08 AM view post
            • RobinMB has replied to a post on the message board

              Hi Felipe, You've come to the right place!  There are so many people on this site who will have good information for you. First of all, I would try to get your dad to a top brain cancer facility.  Some of them are MDAnderson (Dr. David Reardon), Duke (Dr. Henry Friedman), Cedars Sinai (Dr. Keith Black), Cleveland Clinic (Dr. David Peereboom) and others.  Talk to your neuro oncologist about ...

              May 11 at 1:21 AM view post
              • RobinMB has replied to a post on the message board

                Hi Jenny, My heart was breaking for you as I was reading your post :( I have been where you are right now.  My head was spinning when we got the GBM diagnosis, before and after the surgery, and throughout treatment.   Your husband is 43 years old, and that gives him a longer life expectancy than most who are often diagnosed in their 50's with GBM.  My husband was 51 when diagnosed.  I was thank...

                March 27 at 2:33 AM view post
                • RobinMB has replied to a post on the message board

                  I am SO SORRY to hear about your dad.  I remember when they made the mask for my husband.  I cried my heart out in the waiting room.  Then, the mask was too tight for my husband, and they wouldn't make another one for him.  Is it possible for your dad to take anxiety medication before he goes in for his treatment?  I just feel so bad for him.  It's just a thought. My husband slept a LO...

                  February 21 at 4:40 AM view post
                  • RobinMB has replied to a post on the message board

                    Today is Valentine's Day.  Rather than wallow in self pity, I am going to watch my favorite movie (love story), The Titanic.  It reminds me of my husband who was always so adventurous just like the character, Jack, in the movie.  We were both very young, like Rose and Jack, (DeCaprio and Winslet) when we met.  My parents weren't fond of my husband, at first, because they didn't think he had enough...

                    February 14 at 10:06 PM view post
                    • RobinMB has replied to a post on the message board

                      Dear Jennifer, My heart is breaking for you.  I am so sorry to hear about the loss of your loving husband.  It is apparent that you had a beautiful relationship.  Your precious memories will sustain you through the days ahead. Remember that all of us on this site are here for you.  We understand what you have endured. Keeping you and your children close in my thoughts and prayers, RobinMB

                      February 13 at 1:35 AM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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