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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    I am SO SORRY to hear about your dad.  I remember when they made the mask for my husband.  I cried my heart out in the waiting room.  Then, the mask was too tight for my husband, and they wouldn't make another one for him.  Is it possible for your dad to take anxiety medication before he goes in for his treatment?  I just feel so bad for him.  It's just a thought. My husband slept a LO...

    February 21 at 4:40 AM view post
    • RobinMB has replied to a post on the message board

      Today is Valentine's Day.  Rather than wallow in self pity, I am going to watch my favorite movie (love story), The Titanic.  It reminds me of my husband who was always so adventurous just like the character, Jack, in the movie.  We were both very young, like Rose and Jack, (DeCaprio and Winslet) when we met.  My parents weren't fond of my husband, at first, because they didn't think he had enough...

      February 14 at 10:06 PM view post
      • RobinMB has replied to a post on the message board

        Dear Jennifer, My heart is breaking for you.  I am so sorry to hear about the loss of your loving husband.  It is apparent that you had a beautiful relationship.  Your precious memories will sustain you through the days ahead. Remember that all of us on this site are here for you.  We understand what you have endured. Keeping you and your children close in my thoughts and prayers, RobinMB

        February 13 at 1:35 AM view post
        • RobinMB has replied to a post on the message board

          http://www.wndu.com/home/headlines/New-technique-treats-brain-tumors-without-life-altering-complications-288854281.html When I read your post, I thought of this new procedure being used for tumors located deep within the brain.  I found this information on thewww.abta.orgwebsite.

          February 02 at 11:11 PM view post
          • RobinMB has replied to a post on the message board

            Hi Emily, Based on my experience with my husband who had GBM, I think the best thing you can do is be proactive regarding treatment.  Maybe you could send copies of your dad's MRI's to various cancer centers to be viewed by the best neuro oncologists.  Some of those centers include:  Duke, Cedars Sinai, MD Anderson, and UCLA.  Keep researching Valcyte and ask the NO if it is something your dad co...

            January 23 at 1:19 AM view post
            • RobinMB has replied to a post on the message board

              Well, I know you will never forget the last few days of your loved ones' life.  But, I do know that it won't hurt as much as the years go by.  I lost my sister nearly 8 years ago, and I lost my husband a little over a year ago.  I still have visions of my sister when she was on life support in the hospital.  But, that heartache has subsided a great deal over the years.  I miss my sister ...

              January 22 at 1:05 AM view post
              • RobinMB has replied to a post on the message board

                "Post traumatic stress disorder may appear within 3 months of an incident or it may show up years after."  Truly, I believe I was numb and in shock for about 9 months after my husband passed away from GBM (brain cancer).  The past several months have been extremely debilitating.  My husband passed away a year ago.  Lately, I am unable to sleep, I am experiencing anxiety attacks,  I am crying...

                January 03 at 1:36 AM view post
                • RobinMB has replied to a post on the message board

                  Dear SarahElizabeth, You have come to the right website to learn about brain cancer (glioblastoma).  There are excellent resources here.  People are also willing to listen and to guide you as best as we can.  We have experienced this cancer with our loved ones.  We know what you are enduring.  It is so painful to watch our loved ones deteriorate from this cancer.  The location of your ...

                  December 29 at 2:45 AM view post
                  • RobinMB has replied to a post on the message board

                    Praying for hope, peace, comfort, and strength for all of us. Amen. Thank you for the perfect prayer at this particularly emotional time of year!

                    December 29 at 2:29 AM view post
                    • RobinMB has replied to a post on the message board

                      My heart breaks for you!  There are no perfect words to comfort you at this time.  Please take good care of yourself.  May your sorrow diminish and be replaced with beautiful memories. One day at time, Robin

                      December 11 at 2:59 AM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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