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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    My heart breaks for you!  There are no perfect words to comfort you at this time.  Please take good care of yourself.  May your sorrow diminish and be replaced with beautiful memories. One day at time, Robin

    December 11 at 2:59 AM view post
    • RobinMB has replied to a post on the message board

      It sounds like you have a wonderful family!  They will help you get through the holidays with their love for you.  I agree with you about the ornaments.  They have such precious memories attached to them.  It is much too heartbreaking to even think of placing them on the tree this year.  Today, as I was finishing up some Christmas shopping at the mall, I began to cry as I listened to Christ...

      December 02 at 12:11 AM view post
      • RobinMB has replied to a post on the message board

        Hi Wildrose, I understand how you are feeling.  Losing a piece of your heart is something none of us wish we ever had to face.  It's ok if you don't want to celebrate the holidays.  Do whatever you want.  I don't know if I'm going to put up a tree this year after losing my husband.  If I do put up a tree, it will be for my grandchildren.  I can't bear looking at all of the orn...

        November 28 at 3:36 PM view post
        • RobinMB has replied to a post on the message board

          So sorry to hear about your husband's passing.  You have endured a great deal over the past several years.  Only those of us who have lost spouses to brain cancer truly understand.  I hope you have the support of family and friends to help you get through the days ahead.  Again, I am sorry to hear this sad news! RobinMB

          November 28 at 3:20 PM view post
          • RobinMB has replied to a post on the message board

            If you visit,www.virtualtrials.com, you will find results of clinical trials for GBM.

            November 11 at 10:19 PM view post
            • RobinMB has replied to a post on the message board

              I am so sorry to hear about your sister.  GBM is a devastating diagnosis.  But, you are doing the right thing by getting your sister to Sloan Kettering or Duke.  My husband was treated at Roswell Park.  I live in a suburb outside of Buffalo, NY.  I was happy with the neurosurgeon, Dr. Robert Fenstermaker, but I was NOT happy with the neuro-oncologist.  He does not stay current with avail...

              November 11 at 10:08 PM view post
              • RobinMB has replied to a post on the message board

                I am so sorry to hear about your sister's passing.  I lost my sister 8 years ago.  She was only 43 years old when she died.  It was so devastating.  I understand how you feel.  It is heartbreaking!!! Take one day at a time.  It is the best advice I have ever been given. Your sister was so lucky to have you in her life! Robin

                November 03 at 1:41 AM view post
                • RobinMB has replied to a post on the message board

                  Oh Melanie, you are truly right about saying how a brain tumor changes everyone's lives.  I have traveled that road.  It is torture.  I pray for a cure each day. Stay strong, Robin

                  November 03 at 1:38 AM view post
                  • RobinMB has replied to a post on the message board

                    I am so sorry to hear about the loss of your beloved son, Jeff.  It sounds like you are a very strong woman with great faith.  These things will see you through as well as all of the people who loved your son and love you.  We are all here for you if you ever need us to listen again in the future!  Keeping you in my prayers, Robin

                    November 03 at 1:34 AM view post
                    • RobinMB has replied to a post on the message board

                      Dear Nancy, I am so sorry to hear about Tony.  I recall reading some of your posts when my husband was battling GBM.  You were so positive, and you kept me thinking positive.  Thank you.  Cancer is so cruel.  And, you and your daughter have so much to deal with.  Life is so unfair.  Some people are given too much to bear. Please know that you are in my thoughts and prayers. Wit...

                      November 01 at 1:44 AM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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