Loading...

RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Glitzy, I love your idea of a message in a bottle!  That is so sweet.  Definitely stay close to your friends who are uplifting.  They will be a source of great strength for you.  It reminds of a song:  "Smile when your heart is breaking."  Then, when you are done smiling, cry because your heart is breaking.  Do whatever your heart desires.  Sometimes I feel like I just want...

    October 14 at 11:06 PM view post
    • RobinMB has replied to a post on the message board

      Sarah & Stephen, I understand how you are feeling.  My husband will be gone 10 months now.  His birthday was back in August.  Some friends and my kids all went out to dinner.  I just couldn't go.  I knew I would cry the entire night. And, I did.  So, I think it was just better that I wasn't there.  It's not that I don't want to honor my husband's memory, it's just that it hurts...

      October 14 at 10:53 PM view post
      • RobinMB has replied to a post on the message board

        My husband was always very passionate about music.  So, I think he's trying to reach me through this medium. Here's an example:  I ALWAYS listen to the same radio station in my car.  For some reason, one day I was tired of the station and changed it to a different station.  I NEVER DO THAT!!! Well, I heard a song that I, truly, haven't heard in over 25 years.  It was the theme song from Dr. ...

        October 03 at 12:46 AM view post
        • RobinMB has replied to a post on the message board

          Hello Maria, I have to agree with you.  I am slowly getting rid of the anger I have with the neuro-oncologist who treated my husband.  My husband was rushed into surgery, and I was the one doing a ton of research on various treatments.  If I didn't ask about different treatments, the NO would have just given my husband STUPP Protocol (which we always referred to as STUPID Protocol).  I was appal...

          October 03 at 12:29 AM view post
          • RobinMB has replied to a post on the message board

            Hello Melissa, I have not lost a parent to cancer, but I lost my wonderful husband (53) to brain cancer 9 months ago.  Seven years ago I lost my beautiful sister (43).  She was killed in a motorcycle accident.  The grief and the pain that go along with loss are debilitating.  But, as the years go by, somehow we find a way to cope.  These are lifechanging events (there's no do...

            September 30 at 1:13 AM view post
            • RobinMB has created a new message board discussion

              Suddenly, after grieving over my husband for the past 9 months, I feel achy all over.  I don't just mean that broken heart achy feeling.  I mean, my entire body hurts.  My bones and joints and my muscles just constantly hurt.  I feel as if I've aged 20 years.  Sometimes the pain will cause me to wake in the middle of the night.  When I wake up in the morning, I can barely move.  Eve...

              September 12 at 1:46 AM view discussion
              • RobinMB has replied to a post on the message board

                Oh Jon, my heart is breaking for you.  We are all here for you.  We will listen if you ever need to just vent. Keeping you close in thoughts and prayers, Robin

                August 27 at 9:44 PM view post
                • RobinMB has replied to a post on the message board

                  Kathy, There are no words that are powerful enough to help to take away your sorrow.  I lost my husband 8 months ago.  It is so painful, I know. We can only be proud to say that we were their wives, and that we took the best care of them that we possibly could have.  We fulfilled our wedding vows, and that is something we will always know in our hearts. You are in my thoughts and prayers! One day a...

                  August 27 at 9:40 PM view post
                  • RobinMB has replied to a post on the message board

                    Dear Jeff, I sensed the sadness in your e-mail, and I understand your frustration with the lack of treatments for GBM.  You are correct.  There are not enough advances being made in the area of brain cancer.  There is not enough funding because it is not as common as other cancers.  (I question the statistics too.)  So much more needs to be done to improve treatment and outcomes. Oh, I reme...

                    August 13 at 12:28 AM view post
                    • RobinMB has replied to a post on the message board

                      Funny thing happened today, Glitzy.   I was talking to my son's fiance about what type of dress and jewelry I should buy for their weidding.  She said, "nothing too glitzy, and I immediately thought of you:. What your describing must be quite common among all of us who have recently lost a loved one.  I joined a volunteer network for the ABTA (American Brain Tumor Association) to see if there is...

                      August 01 at 10:39 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.