RobinMB

RobinMB's Recent CancerCompass Activity

• RobinMB has replied to a post on the message board

  It's hard to decide if there is a conspiracy theory or not on curing cancer.  Think about this:  Senatory Kennedy died from GBM (glioblastoma - incurable brain cancer).  If a man like Kennedy, with his power and wealth, could get cured of cancer, I'm sure he would have.  The cure would have been available for him.  Money can buy you anything if you have enough of it.  Surely, if it ...

  Yesterday at 10:55 PM view post

• RobinMB has replied to a post on the message board

  Yes, after my husband had his craniotomy (15 months ago), he kept saying that he was hearing this noise in his head. He described it as the sound of bubbles. His brain cancer is also near the corpus callosum. My husband does not complain about it anymore. Maybe he is just used to it. The neurosurgeon did say it was fluid. He said not to worry about it (it was very common). I would definitely talk to the doct...

  Yesterday at 10:25 PM view post

• RobinMB has replied to a post on the message board

  Can you order Curcumin with peperine without a prescription from a doctor or health care provider? Thanks so much!!!

  Yesterday at 10:19 PM view post

• RobinMB has created a new message board discussion

  My husband's nurse practioner just prescribed Ritalin to help with the fatigue he is experiencing from Temodar and Avastin. Has anyone ever heard of this before? This is news to me. Thanks so much, Robin from NY

  Yesterday at 10:15 PM view discussion

• RobinMB has replied to a post on the message board

  Wow, did this post ever hit a nerve with me. I research GBM treatments/clinical trials constantly. Sometimes I wonder why we are paying a doctor. I seem to bring up all of the clinical trials during our office visit. Most of the time our NO shoots them down. He pretty much hims and haws with my questions. He states that he's trying to help my husband, but he really only has Temodar and Avastin in his arsenal. H...

  view post

• RobinMB has replied to a post on the message board

  Wow, did this post ever hit a nerve with me. I research GBM treatments/clinical trials constantly. Sometimes I wonder why we are paying a doctor. I seem to bring up all of the clinical trials during our office visit. Most of the time our NO shoots them down. He pretty much hims and haws with my questions. He states that he's trying to help my husband, but he really only has Temodar and Avastin in his arsenal. H...

  Tuesday at 11:06 PM view post

• RobinMB has replied to a post on the message board

  How long have you been on Avastin?  Do you receive infusions every two weeks?  How many mg. of Avastin do you receive?  I'm also wondering if you have any ideas on what you might do if the tumor returns.  That is our dilemma right now.  There really aren't too many options/clinical trials left for a patient once they receive Avastin. I hope you continue to do very well.   :) Robi...

  May 19 at 1:54 AM view post

• RobinMB has replied to a post on the message board

  My husband was VERY TIRED during this stage of treatment.  I just made sure he ate properly, slept as much as he wanted, and went for some short walks.  The fatigue diminishes eventually, but my husband has never returned to his old self (he used to do circles around other people his age).  I know this is scary and it is very hard on you as well.  We really love our husbands so much that it's har...

  May 19 at 1:40 AM view post

• RobinMB has replied to a post on the message board

  I second that!!!  I would NOT start Avastin until you are absolutely sure if there is tumor progression or not.  You will not be eligible for clinical trials once you start Avastin.  There are other treatments to discuss with your NO (chemo/gamma knife or cyber knife, dendritic cell vaccines, etc.).  Check clinicaltrials.gov. Best wishes, Robin from NY

  May 14 at 9:24 PM view post

• RobinMB has replied to a post on the message board

  Thank you so much for providing this link.  It gives us hope!!!  This is great news.

  May 14 at 9:19 PM view post