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RobinMB's Recent CancerCompass Activity

  • RobinMB has replied to a post on the message board

    Hi Emily, Based on my experience with my husband who had GBM, I think the best thing you can do is be proactive regarding treatment.  Maybe you could send copies of your dad's MRI's to various cancer centers to be viewed by the best neuro oncologists.  Some of those centers include:  Duke, Cedars Sinai, MD Anderson, and UCLA.  Keep researching Valcyte and ask the NO if it is something your dad co...

    January 23 at 1:19 AM view post
    • RobinMB has replied to a post on the message board

      Well, I know you will never forget the last few days of your loved ones' life.  But, I do know that it won't hurt as much as the years go by.  I lost my sister nearly 8 years ago, and I lost my husband a little over a year ago.  I still have visions of my sister when she was on life support in the hospital.  But, that heartache has subsided a great deal over the years.  I miss my sister ...

      January 22 at 1:05 AM view post
      • RobinMB has replied to a post on the message board

        "Post traumatic stress disorder may appear within 3 months of an incident or it may show up years after."  Truly, I believe I was numb and in shock for about 9 months after my husband passed away from GBM (brain cancer).  The past several months have been extremely debilitating.  My husband passed away a year ago.  Lately, I am unable to sleep, I am experiencing anxiety attacks,  I am crying...

        January 03 at 1:36 AM view post
        • RobinMB has replied to a post on the message board

          Dear SarahElizabeth, You have come to the right website to learn about brain cancer (glioblastoma).  There are excellent resources here.  People are also willing to listen and to guide you as best as we can.  We have experienced this cancer with our loved ones.  We know what you are enduring.  It is so painful to watch our loved ones deteriorate from this cancer.  The location of your ...

          December 29 at 2:45 AM view post
          • RobinMB has replied to a post on the message board

            Praying for hope, peace, comfort, and strength for all of us. Amen. Thank you for the perfect prayer at this particularly emotional time of year!

            December 29 at 2:29 AM view post
            • RobinMB has replied to a post on the message board

              My heart breaks for you!  There are no perfect words to comfort you at this time.  Please take good care of yourself.  May your sorrow diminish and be replaced with beautiful memories. One day at time, Robin

              December 11 at 2:59 AM view post
              • RobinMB has replied to a post on the message board

                It sounds like you have a wonderful family!  They will help you get through the holidays with their love for you.  I agree with you about the ornaments.  They have such precious memories attached to them.  It is much too heartbreaking to even think of placing them on the tree this year.  Today, as I was finishing up some Christmas shopping at the mall, I began to cry as I listened to Christ...

                December 02 at 12:11 AM view post
                • RobinMB has replied to a post on the message board

                  Hi Wildrose, I understand how you are feeling.  Losing a piece of your heart is something none of us wish we ever had to face.  It's ok if you don't want to celebrate the holidays.  Do whatever you want.  I don't know if I'm going to put up a tree this year after losing my husband.  If I do put up a tree, it will be for my grandchildren.  I can't bear looking at all of the orn...

                  November 28 at 3:36 PM view post
                  • RobinMB has replied to a post on the message board

                    So sorry to hear about your husband's passing.  You have endured a great deal over the past several years.  Only those of us who have lost spouses to brain cancer truly understand.  I hope you have the support of family and friends to help you get through the days ahead.  Again, I am sorry to hear this sad news! RobinMB

                    November 28 at 3:20 PM view post
                    • RobinMB has replied to a post on the message board

                      If you visit,www.virtualtrials.com, you will find results of clinical trials for GBM.

                      November 11 at 10:19 PM view post
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                      About RobinMB

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Naturopathic Medicine, Recipes, Supplements, Surgery

                      Hi!
                      My husband was diagnosed with GBM in Feb. '12. His tumor was in his rt. frontal lobe. He has had 2 craniotomies so far. He also received dendritic cell vaccine treatment after his first recurrence. He isn't the same person that he was before the surgeries. We are trying the ketogenic diet. My husband was on Temodar (low dose) and Avastin. He is considering NovoTTF in the future. Unfortunately, he his on his third recurrence. Now, he is trying a Phase I peptide vaccine clinical trial. We are praying for a miracle!

                      Unfortunately, my husband lost his battle with GBM on Dec. 17, 2013 after a 22 month battle.

                      I miss him profoundly!

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