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SarahGrey's Recent CancerCompass Activity

  • SarahGrey has replied to a post on the message board

    Hi Bugsy, A few drops of "oil of oregano" in water - swished around the mouth and swallowed works amazingly well for thrush.  (twice a day)  Also, it has so many healthy benefits as well - is really a win-win.   Tastes strong but is worth it. All the best, Sarah

    January 22 at 7:02 PM view post
    • SarahGrey has replied to a post on the message board

      Hello, Swishing a few drops of "oil of oregano" mixed in water and then swallowing it helps with the thrush and to clear up anything.  My husband's NO was surprised how well it worked - also, no side effects or anything negative to it (other than a very strong taste, but it's not so bad).  Has a lot of antibactetial qualities, etc and is great. All the best, Sarah

      January 11 at 12:17 AM view post
      • SarahGrey has replied to a post on the message board

        Hi Jennifer, I too was terrified my husband would roll out of bed and wasn't getting any sleep - I got a bed rail from Amazon.  Wasn't expensive and took seconds to install on our bed (as we didn't have a hospital bed - but had an adjustable bed).  The bed rail was perfect - helped him grip something to help pull himself up when he needed to get up, helped him grip something to steady himself to sit on the...

        January 10 at 11:41 PM view post
        • SarahGrey has replied to a post on the message board

          Hi Kris, I'm so sorry...  What you're writing is all so familiar :( I think there gets to be a point where it's hard to determine signals of when he needs to go and which.  It's not him - it's the tumor(s)   :(   Waking multiple times during the night is part of it...  :( Thank goodness for the urinal bottles - definitely helps!  I think soon enough your husband will feel just too wea...

          January 09 at 10:36 PM view post
          • SarahGrey has replied to a post on the message board

            Hi Kris, I can't see it either on the board - makes no sense.  :( I did see your most recent question when I clicked on your name.  In case you don't get my reply - please, please call your husband's NO's office and ask.  Stopping dex cold turkey like that can cause so many problems.  :(  Best to get a second opinion from the NO who knows so much about the medicine (just in case).

            January 07 at 2:34 AM view post
            • SarahGrey has replied to a post on the message board

              I'm sorry Kris...   Can you maybe get a transport chair for your husband to use at home?  (the smaller, lighter wheelchairs)  They really are wonderful and so easy to use/maneuver.  Or maybe even a walker for your husband, as opposed to the cane?  If he falls, it can make things worse...  :( For the Dex, maybe give it more time, too.  When my husband needed an increase, it would t...

              January 03 at 11:29 PM view post
              • SarahGrey has replied to a post on the message board

                I'm sorry... My husband actually had severe fatigue prior to being diagnosed with GBM (grade 4).  His fatigue was horrible - he had it maybe 3-4 months before diagnosis.   I think it's too soon for your stepson to bounce back and have more energy yet.  It's been around 3 months since surgery, right?  While my husband's tumors were inoperable, I would think that brain surgery would need more time...

                January 02 at 10:50 PM view post
                • SarahGrey has replied to a post on the message board

                  I'm so sorry... Normally I would not give my opinion about treatment but because you asked and because there are smaller tumors that could not be removed by surgery, I wanted to give some info from my experience. If they want to do "whole brain radiation" - I would suggest NOT doing it.  The results can be devestating and your mom is likely to have severe fatigue and her quality of life will severely decline. ...

                  January 02 at 10:42 PM view post
                  • SarahGrey has replied to a post on the message board

                    I'm so sorry...  I had back surgery many years ago and debilitating pain from scar tissue - the only thing to help was acupuncture.  It really made a difference.  (some physical therapy as well, but acupuncture made more of a lasting difference and the pain is tolerable to gone a lot of the time). I hope this helps! Sarah

                    January 01 at 12:33 AM view post
                    • SarahGrey has replied to a post on the message board

                      Hi Houstonwife, Is your husband sleeping on an incline?  If not, try to raise his head - if the headaches are just coming when he's laying down, an incline might help a bit.  You can get a wedge pillow from the hospice nurses or order one from amazon's site (pretty cheap, too).   16 mg of dex is kind of high but not unheard of.  Hopefully it will help with the headaches - the pressure must be so...

                      December 31 at 3:27 AM view post
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                      About SarahGrey

                      Caregiver
                      Brain Cancer

                      My husband was diagnosed with inoperable GBM (temporal lobe) in May, 2012
                      - Whole brain radiation
                      - Temodar (discontinued in Jan, 2013)
                      - Avastin
                      - Restarted Temodar on a daily, low dose
                      - Passed to Heaven after a 13 month battle...

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