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SarahGrey's Recent CancerCompass Activity

  • SarahGrey has replied to a post on the message board

    I'm so sorry, Diane...   :( You mentioned that there is "so much little time left" and that the question is whether or not to try Avastin or Hospice care.  May I ask - what have the neuro-oncologists said?  How much time do they suspect is left?...  If they say a month or two, I honestly don't know if I would recommend Avastin...  :(    For my husband (and of course everyone is di...

    11 hours ago view post
    • RobinMB

      RobinMB When I saw "Avastin", I just had to chime in. The thing that my husband experienced with Avastin was what is referred to as the "rebound effect". As soon as his counts went too low, he was unable to receive chemo and Avastin. Then, the tumor grew like wildfire. I guess a patient could try Avastin. But, if it causes any side effects, it would be best to stop it ASAP.

      11 hours ago
  • SarahGrey has replied to a post on the message board

    Ah geez.  This site isn't allowing the whole link to post. If you google "MSKCC acupuncture relieve lymphadema" the link/site should come up.

    Monday at 2:07 AM view post
    • SarahGrey has replied to a post on the message board

      The whole link didn't seem to post...  :(   trying it again... http://www.mskcc.org/blog/study-shows-acupuncture-may-relieve-chronic-lymphedema-after-breast-treatment 

      Monday at 2:06 AM view post
      • SarahGrey has replied to a post on the message board

        Hello there, A friend of mine has lymphadema in her legs and acupuncture has helped her a bit with the swelling.  I found this article by Memorial Sloan Kettering about it as well.   http://www.mskcc.org/blog/study-shows-acupuncture-may-relieve-chronic-lymphedema-after-breast-treatment  I've gone to an acupuncturist - the needles don't hurt.  :)  If you do go, just make sure they use brand...

        Monday at 2:01 AM view post
        • SarahGrey has replied to a post on the message board

          Happy Easter, Irene :) Rest up and feel better soon - dream about your upcoming eggplant parm! Sarah

          Sunday at 3:25 PM view post
          • SarahGrey has replied to a post on the message board

            I'm so sorry, Robin...  :( I agree with the others - just take it a day at a time... Thinking of you, Sarah

            April 19 at 10:08 PM view post
            • SarahGrey has replied to a post on the message board

              Hmm...  Well, while it may not be 100% beatable to the point that it will go away 100% and you never have to worry anymore - try to think of it this way: You have been beating your cancer for the past 11 years.  Some people, many people, pass after a few months...  And you've been beating yours all this time.  That's wonderful!   Most people in the "real world" don't understand about brain ...

              April 18 at 11:04 PM view post
              • SarahGrey has replied to a post on the message board

                Oh Matt...  I'm so sorry... My heart is breaking for you.  I've literally been sitting here several minutes, writing and deleting things as I can't find the right words... You and your family are in my thoughts and prayers - please keep us posted about your little one.  :( What is the next step?  CT Scan just to make sure everything is ok?...   Thinking of you guys, Sarah

                April 17 at 1:30 AM view post
                • SarahGrey has replied to a post on the message board

                  Glad to help :) (ps - I couldn't remember, either.  I actually still had the schedule taped to the side of the fridge...)    ;) Wishing you all the best!

                  April 17 at 12:14 AM view post
                  • SarahGrey has replied to a post on the message board

                    Hi Mollie, My husband had the following schedule (from his NO): - finish eating dinner at/by 6:00 - zofran at 8:30 (so, 2.5 hours later) - temodar at 9:00 (nothing to eat after this) * fruits, veggies and lots of water help with constipation...  And NO rice - "binds" you up...   :( Take care, Sarah

                    April 16 at 11:26 PM view post
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                    About SarahGrey

                    Caregiver
                    Brain Cancer

                    My husband was diagnosed with inoperable GBM (temporal lobe) in May, 2012
                    - Whole brain radiation
                    - Temodar (discontinued in Jan, 2013)
                    - Avastin
                    - Restarted Temodar on a daily, low dose
                    - Passed to Heaven after a 13 month battle...

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