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SarahGrey's Recent CancerCompass Activity

  • SarahGrey has replied to a post on the message board

    Hello, I'm so sorry...  The best thing to do is google "brain cancer hospice timeline."  There's a site that lists what happens and in the general order it all occurs...  Everyone is clearly different based on where the tumor(s) are located and overall health/age, etc.  But in general, most of us have agreed the things listed and general timeline is correct.  Helps to read it and to not get ...

    September 13 at 11:15 PM view post
    • SarahGrey has replied to a post on the message board

      YES!  It's horrid...  I've always had pain, but it's so much worse now...  I definitely think stress and grief have taken their toll on us...  I've heard this same thing from a bunch of people, too   :(

      September 13 at 12:31 AM view post
      • SarahGrey has replied to a post on the message board

        I'm so, so sorry...  Like you, I researched and did everything possible to save my husband...  Unfortunately, they just got an unbeatable cancer...  :'(   Few things are as heartbreaking as that... Thinking of you both - Sarah

        September 13 at 12:26 AM view post
        • SarahGrey has replied to a post on the message board

          I'm so sorry, Nancy...  Are you guys going to Hackensack?  If so, I think it's your best best and the NO there does know what he's doing...   Has the NO offered any other treatments or is the plan just to stop treatment at this point?..  :(

          September 12 at 12:07 AM view post
          • SarahGrey has replied to a post on the message board

            I'm so sorry...  :(   My advice is the 3rd opinion.  Look up Dr. Keith Black in LA - he's supposed to be one of the best neurosurgeons for brain tumors.  For a small fee, if you send the MRIs on disc, they will review and get back to you in just a few days with their opinion.  (you don't have to travel or anything).  This way, you can get another perspective - quickly and easily.   ...

            September 06 at 12:37 AM view post
            • SarahGrey has replied to a post on the message board

              Hi Jan, You aren't nuts...  not at all...  What you need to do is anything but easy... I'm so sorry and I hope you have others to help you through this...   :( Please be gentle with yourself... Thinking of you, Sarah

              September 01 at 12:08 AM view post
              • SarahGrey has replied to a post on the message board

                Kathy, I am so very sorry...  You are both in my thoughts and prayers tonight...

                August 25 at 11:29 PM view post
                • SarahGrey has replied to a post on the message board

                  Hi Mary, To your boyfriend, you ARE a superhero.  Imagine what his life would be without you...  Imagine if he didn't have you beside him - you are his superhero and angel... The only "advice" I can give you in the question of "are you doing enough" is just always make him feel comforted and loved and never forget he is doing his best.  That will help him so very, very much...  GBM is so cruel.....

                  August 23 at 10:37 PM view post
                  • SarahGrey has replied to a post on the message board

                    I am so sorry Jon...  You are both in my thoughts and prayers...  She was so blessed to have you beside her through this battle...

                    August 23 at 12:13 AM view post
                    • SarahGrey has replied to a post on the message board

                      Hello, I'm so sorry...  Once things move into the brain, it's usually so much harder to fight/treat.  :(   Has your father been seen by a 2nd doctor?  Sometimes it's not always possible - but if it is possible to have another doctor review your father's case, it might bring you both more peace of mind.  Or, the 2nd doctor might have more treatment options available. Wishing you all the best...

                      August 21 at 12:09 AM view post
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                      About SarahGrey

                      Caregiver
                      Brain Cancer

                      My husband was diagnosed with inoperable GBM (temporal lobe) in May, 2012
                      - Whole brain radiation
                      - Temodar (discontinued in Jan, 2013)
                      - Avastin
                      - Restarted Temodar on a daily, low dose
                      - Passed to Heaven after a 13 month battle...

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