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SarahGrey's Recent CancerCompass Activity

  • SarahGrey has replied to a post on the message board

    Kathy, I am so very sorry...  You are both in my thoughts and prayers tonight...

    August 25 at 11:29 PM view post
    • SarahGrey has replied to a post on the message board

      Hi Mary, To your boyfriend, you ARE a superhero.  Imagine what his life would be without you...  Imagine if he didn't have you beside him - you are his superhero and angel... The only "advice" I can give you in the question of "are you doing enough" is just always make him feel comforted and loved and never forget he is doing his best.  That will help him so very, very much...  GBM is so cruel.....

      August 23 at 10:37 PM view post
      • SarahGrey has replied to a post on the message board

        I am so sorry Jon...  You are both in my thoughts and prayers...  She was so blessed to have you beside her through this battle...

        August 23 at 12:13 AM view post
        • SarahGrey has replied to a post on the message board

          Hello, I'm so sorry...  Once things move into the brain, it's usually so much harder to fight/treat.  :(   Has your father been seen by a 2nd doctor?  Sometimes it's not always possible - but if it is possible to have another doctor review your father's case, it might bring you both more peace of mind.  Or, the 2nd doctor might have more treatment options available. Wishing you all the best...

          August 21 at 12:09 AM view post
          • SarahGrey has replied to a post on the message board

            Hi Glitzy, Oh wow, I can't believe it's been 6 months for you...  :(   It's funny how time now both flies and also drags on so painfully slowly at times... I agree with Marie and Irene - thinking that it was simply my husband's time to be "promoted up" and that there was really nothing I could do to change that, helped/helps me.  I also truly believe my husband was simply too good to stay here... Wi...

            August 20 at 11:05 PM view post
            • SarahGrey has replied to a post on the message board

              Jan, I am so very sorry for everything...  You are both in my prayers and thoughts... Please try to find some peace in knowing your dear son is no longer suffering...   Thinking of you, Sarah

              August 19 at 12:55 AM view post
              • SarahGrey has replied to a post on the message board

                Josey, This list is absolutely amazing! The only other things I can think to possibly add are... - Keep a backpack or small overnight bag packed at all time with your loved one's medical info inside as well as a change of clothes for you, some snacks (like granola bars) and a few days worth of meds, a small book or magazine, phone charger...  Good to have in case of emergencies.  Sadly, they do happen an...

                August 18 at 11:52 PM view post
                • SarahGrey has replied to a post on the message board

                  Hello Jo, I'm so, so sorry... Please know you did everything possible for your husband - and know that he knows you did everything... You're right - Avastin would have stopped your husband's wound not to heal properly at all.  Also, if his GBM was so aggressive (as so many are) then truly Avastin would not have done much, if anything at all to combat it.  :(   If anything, Avastin might have taken h...

                  August 10 at 1:43 AM view post
                  • SarahGrey has replied to a post on the message board

                    Oh Joey, I am so so sorry...   You are both in my thoughts and prayers... Sarah

                    August 05 at 12:59 AM view post
                    • SarahGrey has replied to a post on the message board

                      I'm so sorry... Your message was so beautifully expressed...  when I read the sentence, "I will always be lonely for her," it touched me and resonates so deeply within me... I believe when we find our one true partner they become part of us and that's it.  There'll never be another and the thought of another, ever, is unfathomable.  It's un-wanted.  Un-necessary.  Un-natural... It's been a...

                      August 04 at 1:29 AM view post
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                      About SarahGrey

                      Caregiver
                      Brain Cancer

                      My husband was diagnosed with inoperable GBM (temporal lobe) in May, 2012
                      - Whole brain radiation
                      - Temodar (discontinued in Jan, 2013)
                      - Avastin
                      - Restarted Temodar on a daily, low dose
                      - Passed to Heaven after a 13 month battle...

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