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SarahGrey's Recent CancerCompass Activity

  • SarahGrey has replied to a post on the message board

    Hi buddy, I've been wondering about you lately.  How is Florida?  Must be such an adjustment, right?  (and I saw on the news 100+ degree weather, wowza!) I think what you've described is completely normal.  About feeling lost, wanting to make a difference, wanting to make an impact somehow...  I know I definitely felt that way and still do at times...   I personally try to do some goo...

    July 27 at 11:19 PM view post
    • SarahGrey has replied to a post on the message board

      Ohhh Jon...  Always the messages here are heartbreaking but yours made me break down...  :(    I'm so, so sorry and your wife has been so blessed to have you beside her during this battle...  No doubt you have done everything humanly possible and your wife must have so much peace with you and all you have done together... Treasure every moment...  it all goes so fast...  :'( Thin...

      July 24 at 12:33 AM view post
      • SarahGrey has replied to a post on the message board

        Jaisbell, I'm so, so very sorry...  My husband's NO always was insistent that Bactrim was one of the most important meds he was on.  Even when it lowered his platelets to the point he couldn't have treatment anymore, Bactrim was a necessity.  Finally we switched NOs - the new one prescribed Mepron (and the platelets went back up and treatment resumed).  Sadly, things progressed too much during th...

        July 21 at 11:36 PM view post
        • SarahGrey has replied to a post on the message board

          Hello there, In some cases, Medicare provides MORE coverage than regular insurance.  (definitely check into it though as there are always exceptions).  As for out of state coverage, there is a certain type of Medicare plan that allows for out of state coverage and is amazing.  I think it's called a "Medigap" plan.  You pay slightly more for this, but it's worth it.  Look into this one to see...

          July 18 at 11:44 PM view post
          • SarahGrey has replied to a post on the message board

            Hello Jan, I'm sorry, what is the shunt supposed to help do?..  Does your son have fluid in the brain?.. And the places you went for 2nd opinions aren't getting back to you?  :(  Even if they think they can't do anything, they need to get back to you...  :(    You're not doing anything wrong - you're doing everything you can for your son - never forget that... Thinking of you, Sarah

            July 18 at 10:27 PM view post
            • SarahGrey has replied to a post on the message board

              So beautiful...  thank you for sharing!

              July 13 at 10:25 PM view post
              • SarahGrey has replied to a post on the message board

                Oh wow, Robin!  Yes, I have the random songs pop into my mind as well!  And the same as you - not songs that were meaningful to us, but totally random songs with meaningful words.  So amazing...  It always makes me stop and smile...  :) And so great you've seen the same heart-shaped cloud too!  Such beautiful, beautiful signs...  :)   Also, I've definitely listened to my "tho...

                July 11 at 1:57 AM view post
                • SarahGrey has replied to a post on the message board

                  Such beautiful, heartwarming and comforting posts!  Thank you everyone for sharing!  And I completely agree - when you clear your mind and become open to seeing/hearing/feeling things and not just saying "Oh it must be coincidence" then you'll notice more and more :) I wanted to add one...  I like to look at the sky and clouds - the sun often looks so brilliant as it shines through the clouds.  A...

                  July 10 at 11:50 PM view post
                  • SarahGrey has replied to a post on the message board

                    Hello there, Colace is gentle and effective as a softener.  Also, definitely increase the amount being drunk each day (ideally water).  Having fruit/apple sauce should also help. Before taking anything like Colace just please clear it with the doctor first.   All the best, Sarah

                    July 10 at 1:48 AM view post
                    • SarahGrey has replied to a post on the message board

                      Hey Ozgirl, Nice to hear from you!  :) Honestly...  in my opinion, I DO think you have every right to politely tell them they can't use your camping equipment.  You can just say it's packed away and not easy to get to and leave it at that.  It's yours - if they press for more info or pressure you, then they're not good friends and they need to gently understand.   And I don't think it's ho...

                      July 06 at 10:23 PM view post
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                      About SarahGrey

                      Caregiver
                      Brain Cancer

                      My husband was diagnosed with inoperable GBM (temporal lobe) in May, 2012
                      - Whole brain radiation
                      - Temodar (discontinued in Jan, 2013)
                      - Avastin
                      - Restarted Temodar on a daily, low dose
                      - Passed to Heaven after a 13 month battle...

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