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by Scorpiokween -
I'm wondering if anyone has heard of people treated for NHL experiencing muscular atrophy afterwards. My Dad is experiencing that and the doctor has deemed it a rare development that like NHL is immune based.
It is akin to ALS (Lou Gehrig's disease), but they do not term it as ALS. Like ALS there is no cure. The prognosis is that eventually he will die because he can no longer breath on his own. The neurologist at North Shore/LIJ in Long Island New York is supposedly trying to confer with doctors at Sloan-Kettering to see if there are any trials that have shown any improvement. I thought we were getting somewhere but things seem to have stalled out.
I would appreciate hearing from anyone who has heard of anything similiar. We are desparate!
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