Scorpiokween

Hi all,

I'm wondering if anyone has heard of people treated for NHL experiencing muscular atrophy afterwards.  My Dad is experiencing that and the doctor has deemed it a rare development that like NHL is immune based. 

It is akin to ALS (Lou Gehrig's disease), but they do not term it as ALS. Like ALS there is no cure.  The prognosis is that eventually he will die because he can no longer breath on his own.  The neurologist at North Shore/LIJ in Long Island New York is supposedly trying to confer with doctors at Sloan-Kettering to see if there are any trials that have shown any improvement.  I thought we were getting somewhere but things seem to have stalled out.

I would appreciate hearing from anyone who has heard of anything similiar.  We are desparate!

Thank you. 

 

 

 

I also must add that the doctors have not made mention of lung cancer at all. His lungs look good. The breathing seemed to get worse after the pulmonary embolism happened.

My 75 y-o Dad was treated for Stage IV N-H and the cancer seems to be staying at bay, but the side effects are terrible. He suffered a pulmonary embolism and now has difficulty breathing. He also has bad weakness in his legs and gout. He was an active man before the cancer and it pains me to see him confined to the couch now and having to live with me. I work full time and caring from him is frustrating and very stressful. He also had some sort of tremors in his hands and the muscle on his left thumb has all but disappeared. The tremors were there prior to chemo but seem to have gotten worse. The hands are not what is the most problematic. The beathing is my main concern. My father had been a smoker since he was 16 and only stopped near the end of his chemo w/ much protestation and begging from me. Anyway, has anyone experienced anything like these effects after being treated for N-H? Please advise. Thank you.