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Sheila5's Recent CancerCompass Activity

  • Sheila5 has replied to a post on the message board

    Hi There! Just wondering how your dad is holding up?  My husband had the low dose brain radiation as well in August last year.  The cancer did return to his right eye this past January.  They were suspicious at that time so they waited until March to be sure.  he had a vitrectomy at that time and received chemo injections in his right eye.  He is scheduled to have 2 more rounds of injections...

    May 20 at 9:08 PM view post
    • Sheila5 has replied to a post on the message board

      I am so very sorry for your loss!  This beast is truly one of the worse ever!  It does rob you of your best friend, love of your life, your mother, father, best friend and partner.  It doesn't discriminate and it doesn't show any mercy. I know your husband did every thing in his power to stay with you and you as the caregiver, did everything you possibly could to save him.  Sometimes these terrib...

      April 11 at 1:19 AM view post
      • Sheila5 has replied to a post on the message board

        Hi Mary, My husband was first diagnosed July 15, 2007.  He did very well with the chemo.  It has returned several times for him and it has just recently returned to his eye.  He will start treatment for that this coming Wednesday, we are praying it is not back in the brain or spinal fluid.  That is fabulous news about how well you are responding to the chemo.  I have actually read that wome...

        March 24 at 9:39 PM view post
        • Sheila5 has replied to a post on the message board

          Thank you for finding this old post.  It is truly worth bringing up again.  This is a battle field, and so often it is very depressing.  The roller coaster life style, never knowing if this is going to be it.  How will we handle making all these life and death decisions?  The list goes on and on what we may face in just a few split seconds time.   How will we take care of our loved one ...

          March 06 at 2:05 AM view post
          • Sheila5 has replied to a post on the message board

            Wow!  I can't believe Beaumont didn't have a better idea of what was going on in it's own back yard.  We met another person who was being treated at Providence for half of year and it almost killed her.  She was mis-diagnosed and treated completely incorrectly until she got to U of M.  She is now in remission and doing well!  Good Luck to you Phylis, I hope we get to meet some time! Tell the...

            January 13 at 6:53 PM view post
            • Sheila5 has replied to a post on the message board

              Good Morning, It seems, if one of the side effects to any of the chemo drugs that my husband has taken is a skin rash of any kind. He gets it.  I don't remember when he was on Temodar that was a couple of years ago, but many times he has gotten nasty fungual infections.  Other times he has gotten itchy rashes on his stomach and legs.  I certainly would not rule out the Temodar or the Bactrim for that ...

              January 13 at 1:23 PM view post
              • Sheila5 has replied to a post on the message board

                Hi Dan, I know what you mean about the orphan feeling.  I always look on the Brain Cancer board and also the Lymphoma board.  I feel like it is almost 2 cancers in 1.  My husband was first diagnosed in July 2007.  It has returned and gone into remission a couple of times. He has fought back and kept a positive attitude.  It has taken alot out of him but he continues to drive and work occasi...

                January 11 at 10:31 PM view post
                • Sheila5 has replied to a post on the message board

                  Hi Lisa, My husband had tremendous joint pain from the chemo medicines.  Everytime he had to take hydracodone  to manage his pain each time he has had chemo.  He has alot of chemo for his brain cancer.   Also, from the decadrone it caused his hip joint to deteroriate and he had to have his hip joint replaced. That sounds awfully strange to me.  Every chemo drug my husband has taken has had...

                  January 01 at 3:38 PM view post
                  • Sheila5 has replied to a post on the message board

                    You are very welcome!  Please keep us posted!

                    January 01 at 3:20 PM view post
                    • Sheila5 has replied to a post on the message board

                      My husband has a CNS Lymphoma brain cancer, he also sees Dr. Junck at the University of Michigan.  When we switched from St. Joseph in Ann Arbor, we were given the option of going to the  Henry Ford Hosptial they also have an excellent Neuro Oncology department or University of Michigan and seeing Dr. Junck and his team.  You area in a great spot with 2 fabulous hospitals close by. Dr. Junck has saved...

                      December 29 at 1:48 PM view post
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                      About Sheila5

                      Caregiver
                      Lymphoma, Brain Cancer
                      Cancer Treatments, Chemotherapy, Emotional Support, Cancer Nutrition

                      John was first diagnosed in July 2007 with CNS Lymhoma. His mass was in the Left Frontal Lobe and crossing the midline. We found out later that he was given a 40% chance of survival. He underwent 10 rounds of High dose methotrexate. Things were going pretty good. Then in September 2009 I started noticing little things that you could explain away. He kept complaining of eye floaters and seemed a little out of balance. His optomologist at the time, said he had a cataract. Thanksgiving 2009 he was having a hard time speaking and kept dozing off. A couple days later he couldn't sign his name. We thought he was having a stroke, darn it. The CNS Lymphoma had returned with ocular lymphoma this time. He had the cancer in 6 different spots in the brain. He again had 9 rounds of Methotrexate plus the addition of CHOP treatment. He currently is receiving Temodar for six months. We are afraid his ocular lymphoma may be back. UGH! His attitude is so awesome, he makes me ashamed of being afraid of the unknown. Prayers are appreciated! Well he did it again, he fought back and went for 20 rounds of radiation to his eyes. At the moment, no active lymphoma cells in his eyes! Dec. 2011 John is battling CNS Lymphoma for the 3 rd time and it is also in his spinal fluid. John and I value quality of life, again John opted for the chemo cocktail. It put his cancer back into remission. July 10, 2012.. we are visiting the doctor for the next step . The next step was low dose brain radiation, followed by 2 rounds of cytarabine. My poor John, but he seems to fight through it all. Finally done at the end of October 2012. It is now March 20, 2013 and it has been confirmed that John has lymphoma cells in his right eye. Next step is to check out brain involvement. He is scheduled to have the fluid removed from his eye next Wednesday and then in a couple of weeks start the methotrexate injections in the eye. My poor John. I am amazed at his strength and my calmness.

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