Loading...

aegil1's Recent CancerCompass Activity

  • aegil1 has replied to a post on the message board

    Navymom, Wow!  Persistence really does pay off... so glad to hear that Irinotecan is not only having a dramatic effect on the sites of metastasis, but that you are tolerating it so well.  Outstanding!

    September 05 at 9:00 PM view post
    • aegil1 has replied to a post on the message board

      Hismum, The trajectory of your son's CEA levels, in addition to the PET-scan shrinkage of the aorta lesions ("nodes"), makes me wonder if the oncology team would consider an enhanced combination chemotherapy, like FOLFOXIRI.  I don't know what he is on right now, but I'm guessing it's some variant of FOLFOX or FOLFIRI. Have the oncologists considered FOLFOXIRI (a combination of 5-FU, irinotecan, and oxaliplati...

      June 05 at 6:39 AM view post
      • aegil1 has replied to a post on the message board

        FOLFOX6 is just one in a series of combination therapies in the FOLFOX family. They all include Oxaliplatin and fluororacil (5-FU). Depending on where you are treated they may administer FOLFOX4, FOLFOX6, or FOLFOX7. The deviations are minor and depend upon the laboratory analysis of your particular cancer, and the preference of the oncology team.

        May 13 at 4:57 PM view post
        • aegil1 has replied to a post on the message board

          Daddyo, I was 36 years old at time of diagnosis. My CEA levels were elevated, 8.9. 15/30 resected lymph nodes showed CRC invasion. I am 6'0" and my weight has always fluctuated between #175-190#. I have no known genetic predisposition to CRC and genetic mutation panels show none of the 17 known CRC predispositive genes are present in my genes. I have always been physically active but now I have doubled down on the l...

          May 13 at 4:47 PM view post
          • aegil1 has replied to a post on the message board

            Navymom, You never know which combination of therapies can cause an unexpected remission. Surprises occur all the time with this disease and you should try all reasonable options until you simply run out. I was also told early on that my treatments were likely to be palliative in nature, but this is what occurred: March 2012: Symptoms became evident and compelling April 2012: Colonoscopy, CT and PET scans, diagnos...

            May 12 at 11:43 PM view post
            • aegil1 has replied to a post on the message board

              Navymom, Here is the link to Dr. Lin's patent filing summary, which is more about "methods" than particular drugs. Nothing to do with the patents on Xeloda or Celebrex themselves: http://www.google.com/patents/WO2007103828A2

              December 31 at 5:01 AM view post
              • aegil1 has replied to a post on the message board

                Navymom, I have met with Dr. Lin and am being treated at the SCCA by Veena Shankaran, who is also excellent.  I have voluntarily requested a modified variant of Dr. Lin's maintenance regimen (Xeloda + Celebrex) despite the fact that I have been NED status for almost a year and a half.  Yes, I exercised "vigorously and regularly" during chemo, and my BMI is 21 as of last measurement. I find Dr. Lin's hypot...

                December 30 at 6:16 PM view post
                • aegil1 has replied to a post on the message board

                  Stage 4 colorectal cancer can be curable under limited circumstances.  The criteria for a reasonable chance of remission followed by non-recurrence are as follows:  a) CEA levels below 15; b) metastasis limited to the liver (and in some rarer cases, liver and lung only); c) number of lesions +/- 3; d) Age of patient less than 50; e) metastasis must be resectable and/or lesions must experience complete patho...

                  December 29 at 11:07 PM view post
                  • aegil1 has replied to a post on the message board

                    Hismum, Your son needs to go to the emergency room.  If the rest of the family protests, unfortunately you have to just ignore them and do it anyway.  There's really no point in negotiating through everyone's feelings when there is a true emergency at hand.  Alternately, you could call his latest onconcologist using their pager (assuming they have these in Australia)?  If you do not have the onco...

                    December 28 at 6:58 PM view post
                    • aegil1 has replied to a post on the message board

                      I am so frustrated to hear these stories of trained physicians overlooking obvious complications such as a port staph infection, or making obviously inaccurate statements such as "[x] patient is too young to have cancer". Always question statements made by medical staff if you have reason to do so, and persist if the answer they give appears dismissive, rushed, or made without proper context. I am equally frustrated...

                      November 06 at 8:17 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About aegil1

                      aegil1 has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.