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aegil1's Recent CancerCompass Activity

  • aegil1 has replied to a post on the message board

    Navymom, It's incredible that you could have saved ~$220K and a lot of misery if you had taken a genetic test to uncover that irinotecan based therapy would be dramatically more effective than oxaliplatin.  I will remember the name Foundation One if my cancer ever recurs, in order to avoid ineffective treatment. Previously, I lucked out... oxaliplatin (FOLFOX-6, specifically) was a panacea for me and yielded p...

    March 11 at 3:57 AM view post
    • aegil1 has replied to a post on the message board

      Sguerra47, In exceptionally limited cases, oxaliplatin or irinotecan based chemotherapy can be 'curative', in the sense that 3-5% of metastatic colorectal cancer will respond so well that the patient exhibits pathological complete response or clinical complete response. Often in these cases, the decision to resect lesions via surgery serves only to confirm via laboratory biopsy what the oncologists already expect, w...

      December 23 at 8:49 AM view post
      • aegil1 has replied to a post on the message board

        Navymom, Everything in this last post is 100% correct.  Oncologists really don't get involved in the nutrition discussion because diets must be tailored to individual lifestyle, circumstance and genetics, the science is formative and imperfect (perhaps even more so than cancer treatment protocols), and nutrition "common knowledge" is rapidly evolving.  Any oncologist will tell you they adhere to the scient...

        October 18 at 5:06 AM view post
        • aegil1 has replied to a post on the message board

          Navymom, If you are able to access GcMAF treatment, please be sure to keep us updated on the results.  I would be very curious to learn: a) If it is possible to find an oncologist who would be willing to write a prescription for GcMAF injections in the US for palliative care; and b) If you have to travel overseas to obtain the compound; c) Obviously, what the overall impact is. As you know, palliative care tha...

          September 26 at 6:12 PM view post
          • aegil1 has replied to a post on the message board

            I don't wish to start an actual debate on this topic, but to chalk predisposition to cancer to "genes" as a statement of finality is just plain wrong. Navymom describes a person who has won the genetic lottery so to speak.  Everyone knows someone like this: A friend or relative who seems to be a walking recipe for disaster at every turn, and yet never encounter any kind of life-threatening illness, like cardiov...

            September 24 at 5:49 PM view post
            • aegil1 has replied to a post on the message board

              Navymom, Wow!  Persistence really does pay off... so glad to hear that Irinotecan is not only having a dramatic effect on the sites of metastasis, but that you are tolerating it so well.  Outstanding!

              September 05 at 9:00 PM view post
              • aegil1 has replied to a post on the message board

                Hismum, The trajectory of your son's CEA levels, in addition to the PET-scan shrinkage of the aorta lesions ("nodes"), makes me wonder if the oncology team would consider an enhanced combination chemotherapy, like FOLFOXIRI.  I don't know what he is on right now, but I'm guessing it's some variant of FOLFOX or FOLFIRI. Have the oncologists considered FOLFOXIRI (a combination of 5-FU, irinotecan, and oxaliplati...

                June 05 at 6:39 AM view post
                • aegil1 has replied to a post on the message board

                  FOLFOX6 is just one in a series of combination therapies in the FOLFOX family. They all include Oxaliplatin and fluororacil (5-FU). Depending on where you are treated they may administer FOLFOX4, FOLFOX6, or FOLFOX7. The deviations are minor and depend upon the laboratory analysis of your particular cancer, and the preference of the oncology team.

                  May 13 at 4:57 PM view post
                  • aegil1 has replied to a post on the message board

                    Daddyo, I was 36 years old at time of diagnosis. My CEA levels were elevated, 8.9. 15/30 resected lymph nodes showed CRC invasion. I am 6'0" and my weight has always fluctuated between #175-190#. I have no known genetic predisposition to CRC and genetic mutation panels show none of the 17 known CRC predispositive genes are present in my genes. I have always been physically active but now I have doubled down on the l...

                    May 13 at 4:47 PM view post
                    • aegil1 has replied to a post on the message board

                      Navymom, You never know which combination of therapies can cause an unexpected remission. Surprises occur all the time with this disease and you should try all reasonable options until you simply run out. I was also told early on that my treatments were likely to be palliative in nature, but this is what occurred: March 2012: Symptoms became evident and compelling April 2012: Colonoscopy, CT and PET scans, diagnos...

                      May 12 at 11:43 PM view post
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