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aegil1's Recent CancerCompass Activity

  • aegil1 has replied to a post on the message board

    Navymom, Here is the link to Dr. Lin's patent filing summary, which is more about "methods" than particular drugs. Nothing to do with the patents on Xeloda or Celebrex themselves: http://www.google.com/patents/WO2007103828A2

    December 31 at 5:01 AM view post
    • aegil1 has replied to a post on the message board

      Navymom, I have met with Dr. Lin and am being treated at the SCCA by Veena Shankaran, who is also excellent.  I have voluntarily requested a modified variant of Dr. Lin's maintenance regimen (Xeloda + Celebrex) despite the fact that I have been NED status for almost a year and a half.  Yes, I exercised "vigorously and regularly" during chemo, and my BMI is 21 as of last measurement. I find Dr. Lin's hypot...

      December 30 at 6:16 PM view post
      • aegil1 has replied to a post on the message board

        Stage 4 colorectal cancer can be curable under limited circumstances.  The criteria for a reasonable chance of remission followed by non-recurrence are as follows:  a) CEA levels below 15; b) metastasis limited to the liver (and in some rarer cases, liver and lung only); c) number of lesions +/- 3; d) Age of patient less than 50; e) metastasis must be resectable and/or lesions must experience complete patho...

        December 29 at 11:07 PM view post
        • aegil1 has replied to a post on the message board

          Hismum, Your son needs to go to the emergency room.  If the rest of the family protests, unfortunately you have to just ignore them and do it anyway.  There's really no point in negotiating through everyone's feelings when there is a true emergency at hand.  Alternately, you could call his latest onconcologist using their pager (assuming they have these in Australia)?  If you do not have the onco...

          December 28 at 6:58 PM view post
          • aegil1 has replied to a post on the message board

            I am so frustrated to hear these stories of trained physicians overlooking obvious complications such as a port staph infection, or making obviously inaccurate statements such as "[x] patient is too young to have cancer". Always question statements made by medical staff if you have reason to do so, and persist if the answer they give appears dismissive, rushed, or made without proper context. I am equally frustrated...

            November 06 at 8:17 AM view post
            • aegil1 has replied to a post on the message board

              Hismum, I'll try to be as direct as possible on this one:  He really does not want to be eating junk food.  I can't stress enough how directly proper nutrition and exercise impact prognosis. In order for chemotherapy to perform its optimal function, your son's immune system needs to be operating at its highest possible level.  This means he needs nutrient dense natural whole foods (GMO is fine), lots...

              October 14 at 11:01 PM view post
              • aegil1 has replied to a post on the message board

                Hismum, Reading between the lines of your description of this private oncologist, his method of thought is right in line with the best oncologists out there.  He cannot tell you to anticipate a cure or even remission, but he can outline a plan of action and see how the tumors respond to the chemotherapy before making any bold predictions.  The fact that he was not satisfied with the hospital's interpretati...

                September 19 at 8:24 AM view post
                • aegil1 has replied to a post on the message board

                  Hismum, Tatyanay's story is the one that is most relevant to your son's.  She is saying that her husband's oncologist changed his mind about surgery after seeing the tumor's response to chemotherapy.  The truth is no oncologist should be ruling out anything permanently, as there are so many variables that feed into the viability of surgery - response to chemo being the biggest among them. Also, though all...

                  September 01 at 9:59 PM view post
                  • aegil1 has replied to a post on the message board

                    Hismum, If the situation were truly hopeless they would be moving him to hospice care at this point. The mere fact that they are going to attempt treatment means they acknowledge the possibility of eventual remission. You seem to be saying that they want to start on systematic chemo before attempting resection of even the primary colon tumor. This tells me they are hoping to shrink it enough to be able to eventuall...

                    August 16 at 6:25 PM view post
                    • aegil1 has replied to a post on the message board

                      Hismum, I am very sorry to read about your son's staging and prognosis. I was diagnosed at 36 with Stage 4 colorectal cancer with metastasis to the liver and pelvic area soft tissue. I have been disease free for over a year with colon resection and systematic chemotherapy (Folfox6 + Avastin) and now maintenance therapy (oral capecitabine + celecoxib only). I also had multiple (5) tiny lesions removed from the surfac...

                      August 16 at 2:24 AM view post
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