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aegil1's Recent CancerCompass Activity

  • aegil1 has replied to a post on the message board

    Navymom, Everything in this last post is 100% correct.  Oncologists really don't get involved in the nutrition discussion because diets must be tailored to individual lifestyle, circumstance and genetics, the science is formative and imperfect (perhaps even more so than cancer treatment protocols), and nutrition "common knowledge" is rapidly evolving.  Any oncologist will tell you they adhere to the scient...

    October 18 at 5:06 AM view post
    • aegil1 has replied to a post on the message board

      Navymom, If you are able to access GcMAF treatment, please be sure to keep us updated on the results.  I would be very curious to learn: a) If it is possible to find an oncologist who would be willing to write a prescription for GcMAF injections in the US for palliative care; and b) If you have to travel overseas to obtain the compound; c) Obviously, what the overall impact is. As you know, palliative care tha...

      September 26 at 6:12 PM view post
      • aegil1 has replied to a post on the message board

        I don't wish to start an actual debate on this topic, but to chalk predisposition to cancer to "genes" as a statement of finality is just plain wrong. Navymom describes a person who has won the genetic lottery so to speak.  Everyone knows someone like this: A friend or relative who seems to be a walking recipe for disaster at every turn, and yet never encounter any kind of life-threatening illness, like cardiov...

        September 24 at 5:49 PM view post
        • aegil1 has replied to a post on the message board

          Navymom, Wow!  Persistence really does pay off... so glad to hear that Irinotecan is not only having a dramatic effect on the sites of metastasis, but that you are tolerating it so well.  Outstanding!

          September 05 at 9:00 PM view post
          • aegil1 has replied to a post on the message board

            Hismum, The trajectory of your son's CEA levels, in addition to the PET-scan shrinkage of the aorta lesions ("nodes"), makes me wonder if the oncology team would consider an enhanced combination chemotherapy, like FOLFOXIRI.  I don't know what he is on right now, but I'm guessing it's some variant of FOLFOX or FOLFIRI. Have the oncologists considered FOLFOXIRI (a combination of 5-FU, irinotecan, and oxaliplati...

            June 05 at 6:39 AM view post
            • aegil1 has replied to a post on the message board

              FOLFOX6 is just one in a series of combination therapies in the FOLFOX family. They all include Oxaliplatin and fluororacil (5-FU). Depending on where you are treated they may administer FOLFOX4, FOLFOX6, or FOLFOX7. The deviations are minor and depend upon the laboratory analysis of your particular cancer, and the preference of the oncology team.

              May 13 at 4:57 PM view post
              • aegil1 has replied to a post on the message board

                Daddyo, I was 36 years old at time of diagnosis. My CEA levels were elevated, 8.9. 15/30 resected lymph nodes showed CRC invasion. I am 6'0" and my weight has always fluctuated between #175-190#. I have no known genetic predisposition to CRC and genetic mutation panels show none of the 17 known CRC predispositive genes are present in my genes. I have always been physically active but now I have doubled down on the l...

                May 13 at 4:47 PM view post
                • aegil1 has replied to a post on the message board

                  Navymom, You never know which combination of therapies can cause an unexpected remission. Surprises occur all the time with this disease and you should try all reasonable options until you simply run out. I was also told early on that my treatments were likely to be palliative in nature, but this is what occurred: March 2012: Symptoms became evident and compelling April 2012: Colonoscopy, CT and PET scans, diagnos...

                  May 12 at 11:43 PM view post
                  • aegil1 has replied to a post on the message board

                    Navymom, Here is the link to Dr. Lin's patent filing summary, which is more about "methods" than particular drugs. Nothing to do with the patents on Xeloda or Celebrex themselves: http://www.google.com/patents/WO2007103828A2

                    December 31 at 5:01 AM view post
                    • aegil1 has replied to a post on the message board

                      Navymom, I have met with Dr. Lin and am being treated at the SCCA by Veena Shankaran, who is also excellent.  I have voluntarily requested a modified variant of Dr. Lin's maintenance regimen (Xeloda + Celebrex) despite the fact that I have been NED status for almost a year and a half.  Yes, I exercised "vigorously and regularly" during chemo, and my BMI is 21 as of last measurement. I find Dr. Lin's hypot...

                      December 30 at 6:16 PM view post
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