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alicejones's Recent CancerCompass Activity

  • alicejones has replied to a post on the message board

    Dear Karegiver...I am so glad for you that you will finally inform your Fiance's children of his condition, and tramsfer the responsbility to them.  You must protect your own health and you may be able to get the rest you so desperately need, and see your Fiance with renewed strength. He will also be more respectful when you come and help him..you are just worn out and thiss time will be a time to renew you phys...

    March 30, 2013 view post
    • alicejones has replied to a post on the message board

      Dear Bubble and Karegiver.....I am so sorry this is happening to both of you....I'm sure everything looks dark and cloudy all the time and you are emotionally stressed out and spent.  I am not sure if this is any good advice, but having been thru similiar situations, one thing that worked for me was to write a letter to the children of your Finace/husband (Sp?) and spell out how terribly sick he is and he needs ...

      March 30, 2013 view post
      • alicejones has created a new message board discussion

        Hi - I have had E.T. for four years now and try to take it as prescribed---500/1000 alternating each day.  Top read was 1 mil 4 years ago.  Must face knee surgery (replacement) very soon, but does anyone know how folks with ET do on a serious surgery.  My platelets are stable the last two years.  I am hesitant to get the surgery done, but Doctor said must have it.  I would appreciate any advi...

        March 23, 2013 view discussion
        • alicejones has replied to a post on the message board

          I am so sorry to hear about your husband...the MERSA is really very serious and I'm sure that really effected him and his life.   Let us all pray the Doctors can find a drug to help us all.  Although, I suppose we are lucky to live pretty well most of the time.  Hugss back to you too.

          March 23, 2013 view post
          • alicejones has replied to a post on the message board

            I think this is wonderful advice...as cancer patients are highly medicated and cannot process everything easily.  They need an advocate if one is possible.  I have had cancer myself for the last 3 1/2 years and still taking chemo, however, I found I did need someone else to talk to and found a wonderful counselor, who helped me a great deal.  Also, when I took care of my parents, aunts, etc. and worked...

            February 22, 2013 view post
            • alicejones has replied to a post on the message board

              I am so sorry that your husband passed away and it is just never the same....however, you did the best thing possible and had a wonderful 2 weeks in which you will never forget and will treasure forever....God bless you..

              February 19, 2013 view post
              • alicejones has replied to a post on the message board

                Well, I think you should make an apt without your husband and see the dr. alone and talk to him about your concerns,  I had to do this with my Aunt and write questions down as she was very upset...maybe too, he needs to have an anti-depressant.....and some counseling.  Men are very subborn and don't fave reality.  Perhaps the hospital or your doctor can find you a group to talk to or a non-paying couns...

                February 19, 2013 view post
                • alicejones has replied to a post on the message board

                  Hi Glenda....I was dianosised with ET 3 1/2 years ago....and am taking hydox and aspirin.  I feel fair, more fatigued than I use to and also don't have many people to discuss this with...it is not well known. Please drop me a note if you wish.  Mary

                  February 14, 2013 view post
                  • alicejones has replied to a post on the message board

                    Hi Thanks for replying so quick.  The other meds I am taking have been seen by the pharmacy and the Drs, and they discount a mix of drugs and say "anxiety" - however, I didn't have any nightmares before I started hydrox, and they go on and on.  I am 59 also, and do have fatigue now and I have to agree it does wreak havoc on your life and chang your daily activities.  Thanks so much for your insight and...

                    February 05, 2013 view post
                    • alicejones has replied to a post on the message board

                      Hi - I have had ET for about 3 1/2 years taking Hydrea everye day along with a couple of other meds...Does anyone knowing of the combination of Hydroxyurea and other meds causing nightmares...been having them every night for 3 yrs on meds.  Other than fatigue, I think my doctor said a good life expectpecy would be about an average life--I am 69 and OK for hte most part.  I believe most people get by pretty ...

                      February 05, 2013 view post
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                      About alicejones

                      Survivor
                      Other Cancer, Leukemia - (CML)

                      Hi, I'm Alice and have been DX this spring with the count about 900. Went thru tests and stated 1000 hydrea a day for several months, until lowered to 200,000. Am bruising and wonder if it is normal. Had several headaches for months, now better, but am nervous right now as I have been sick, my husband has to have surgery soon, and I am taking care of my father-in-law part time. I am a senior citizen so I am thrilled to still be alive and active. This really isn't so bad...at least Drs have drugs to help you alone. Thank God for research and good Doctors.

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