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amydibello's Recent CancerCompass Activity

  • amydibello has replied to a post on the message board

    Yes, we take it daily, have been for months, in a form that is capsule called curcumin...I truly believe it helps...when transitioning off the Dex. double dosed my Jeff and I believe it helped with edema. Blessings and luck. I think all homeopathic supplements only help...omega, zinc, b-complex and double dose C...great immune booster for Temodar days.

    May 21 at 6:05 AM view post
    • amydibello has replied to a post on the message board

      God bless you and your husband's soul. May the Holy Spirit breathe new life into you every day, as your grieve and pick up the pieces... Sending you so much light, love and prayer. Amy

      March 13, 2013 view post
      • amydibello has replied to a post on the message board

        Thanks Lee. You're so right. Never alone. We ordered hundreds of the gray wristbands from a fundraiser site, super inexpensive. We hand them out all the time to friends, family and supporters and survivors and their families. Somehow others wearing the bands helps us feel strong and supported. We add you to our prayers. peace and light, Amy

        February 09, 2013 view post
        • amydibello has replied to a post on the message board

          Liz, God's blessing be you, mom and family. Holding you all in our hearts and prayers. We are with you in spirit. My fiance is battling too, but recently dx...brainhospice is a sight that shows timeline and what to expect in the final months, days hours...it really helped me. peace and light and prayers coming your way for your mom. Amy (and Jeff)

          February 09, 2013 view post
          • amydibello has replied to a post on the message board

            I am so so sorry to hear this, but it's not uncommon for regrowth to occur rapidly. That's why they call this thing the terminator...it's a monster. There are lots of long term survivors out there though, so just live in the moment as best you can. My fiance just finished with his first round of chemo and Temo...He is feeling pretty good with some mild memory issues and fatigue. His hand seizes up on the affected sid...

            February 09, 2013 view post
            • amydibello has replied to a post on the message board

              Dear Lee, I am sorry. My fiance was dx Nov. 30 after his tumor was mostly resected. He just completed his radiation and first cycle of chemo. He is going strong and never really got too sick. His tumor was massive and on the right temporal parietal lobe. He presented in coma with crushed brain stem and total brain shift with non responsive and unequal eyes. He was not supposed to survive the surgery, but he is back ...

              February 09, 2013 view post
              • amydibello has replied to a post on the message board

                these are symptoms that my fiance experienced before he was diagnosed with GBM grade iv... Weeks before he went into coma, he kept saying if I pass out tell the doctors my brain is bleeding.... he always laughed it off and when I asked if he was seriously he always said he was kidding. But, he wasn't...he did have serious and correct body intelligence/intuition. I hope your MRI gives you resolution...I wish you he...

                February 09, 2013 view post
                • amydibello has replied to a post on the message board

                  dear one, the love of my life...my fiance and best friend has brain cancer. He is and has been the light of my life and father to my children. Our lives are upside down now and we were having the time of our lives prior to dx...Luckily, we are faithful and believe God has master plan for us, but we struggle to soldier on every day, knowing all the while that every day is a blessing. Live in the moment, the blessing ...

                  February 02, 2013 view post
                  • amydibello has replied to a post on the message board

                    Wonderful. So happy to hear it for you guys. Inspiring. Thanks for sharing and I'd say oh heck yes it's a great sign of his prognosis and just a great sign for quality of life right now. We try not to live from MRI to MRI...that's torture. We try to live a lifetime everyday and TREASURE it...it seems to be working so far. Thinking of you all and holding all of us in prayer. Amy (and Jeff)

                    January 31, 2013 view post
                    • amydibello has replied to a post on the message board

                      Gerard Thank you so much for sharing Maria's progress with us. I am inspired by your words and your's and Maria's hope and faith. What a good idea to bring in a cross and visualize God's light entering. I love that. Our hope and faith is eternal too. Nothing can take that from us and we try to stay facing the light. The darkness is too overwhelming. My Jeff left radiation dancing today, so happy to know how live the...

                      January 29, 2013 view post
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                      About amydibello

                      Caregiver
                      Brain Cancer

                      The love of my life and my very best friend, my fiance had a headache on Nov. 28, 2012, took a nap and went into a coma. Paramedics took him to hospital where they drained his brain and found massive tumor which turned out to be GBM grade iv. He had surgery, still in coma on Nov. 20, 2012 and had most of tumor resected from right temporal/parietal lobe. Doctors gave him one in a million chances of returning from surgery in more than vegetative state. Yet, he DID. He woke up the next morning as a miracle, with very little neurological deficit. We are halfway through his radiation and initial chemo plan at this sitting, 1-20-13. He is doing quite well, not too sick and feeling strong and still exercising. We are a aware that this monster is wicked, but we don't live there. We live in the space of hope, faith and miracles. Grateful for this site and the exchange of stories.
                      prayers to all

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