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anonf's Recent CancerCompass Activity

  • anonf has replied to a post on the message board

    i don't fully understand the question, but there are a host of treatments for RCC and different of side effects for each; and each person responds differently to the treatments. Talk to you oncologist, and if you are not getting enough information and guidance, get a different doctor.  For the most part, side effects go away once the drugs are stopped, but some are not reversible, such as congestive heart f...

    March 11, 2013 view post
    • anonf has replied to a post on the message board

      no such thing as 'got it all' when the original tumor (kidney) has already found its way elsewhere in the body. Assume you have biopsy results by now, but I want to encourage you and your friend that one can live tolerably well with stage 4 RCC (in my case 3+ years after diagnosis of metastatic disease). Of course lots of treatments are involved, but a several relatively new drugs are available, most with tolerable s...

      March 11, 2013 view post
      • anonf has replied to a post on the message board

        to jjccbb: were/are you on Avastin as a single agent, or with interferon alpha? Are you still on treatment, and what was the extent of the side effects?  Thanks.

        February 05, 2013 view post
        • anonf has replied to a post on the message board

          re: pazopanib. Just started it as well, after the same regimen as yours. So far, more tolerable than Sutent, less than Afinitor. Things went pretty well for a month, then I started with really severe diarrhea. It can be treated, but still is a major nuisance. One thing the doc told me (he has a lot of experience with drug, having been involved with the trials) was that most people develop diarrhea eventuall...

          February 05, 2013 view post
          • anonf has replied to a post on the message board

            Others have mentioned drug possibilites in this situation. My sequence was Sutent, Afinitor (helpful for 1 year each) Axitinib (ineffective) and now I'm on Votrient. Even the kidney specialist at a hotshot teaching hospital said, in effect, that it's a crapshoot at this point. All these agents are so new that there are not sufficient data to determine an optimal sequence. My wish was for quality of life over quantity...

            January 03, 2013 view post
            • anonf has commented on a news story

              I must respond to Ms Daniels: Why smear a physician you know nothing about, in your anger over your brother's death? In his position with the ACS, I doubt seriously that Dr Brooks sees patients at all. Oncologists know that colon cancers can occur before age 50; the current guidelines are based on a lot of data and consideration of the risk/benefit factors. If you had told your brother at age 40 to get a co...

              December 06, 2012 view news story
              • anonf has replied to a post on the message board

                Switched from Sutent to everolimus and found the latter to be a much more tolerable drug. I had a happy year on it before it stopped working. When we were choosing a third-line therapy, my doctor indicated that his patients on pazopanib (Votrient) seemed to have a fair amount of difficulty tolerating it. He was involved in some of the trials, so has a fair amount of experience with this drug. As for the trial, a...

                November 15, 2012 view post
                • anonf has commented on a news story

                  Yikes. Clearly you saw the wrong doctors. I've had two separate cancers. None of the professionals I've dealt with have been the least bit patronizing or pushy. The downsides of all treatments were clearly explained, and the doctors pointed me to other sources of information and left final decisions to me. Both doctors did mention other patients' success with natural remedies to manage side effects. Doctors cannot, h...

                  November 15, 2012 view news story
                  • anonf has replied to a post on the message board

                    Having worked in the pharmaceutical industry, let me remind everyone that the purpose of a trial is to safely collect reliable data to prove or disprove a particular hypothesis. Please don't think of trial participation as your shot at a miracle cure. The best case in cancer trials is usually a few months' increase in mean progression-free survival (i.e., the tumors don't increase in size or number during that time)....

                    November 01, 2012 view post
                    • anonf has replied to a post on the message board

                      Re disability/SSI: No problem. The information, application and instructions are online athttp://www.ssa.gov/pgm/disability.htm. His oncologist will need to supply some of the paperwork. I found the process to be simple and efficient.

                      August 27, 2012 view post
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                      About anonf

                      Patient
                      Breast Cancer, Kidney Cancer

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