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aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    The waiting for results was tough but I was only waiting about a week.  Once you get your treatment plan you can plan it will help.  I was unable to swallow even more than small sips of water when I was diagnosed as they thought that I was too young and no one believed that i could have it.  A friend of mine who is ex army was able to have surgery alone as he was caught early.  Do not read about t...

    Tuesday at 5:32 AM view post
    • Aoife has replied to a post on the message board

      I was on one week in 4 chemo for 3 months and was very ill the week post chemo and started to feel better the week after that but I was only in able to get out for 2-3 hours the week prior to getting the chemo again.  I did not have a feeding tube. Post surgery I got double pneumonia and then was temporarily on dialysisn and had to be revived 3 times.   I then got bad dumping syndrome which was not he...

      Monday at 6:33 PM view post
      • Aoife has replied to a post on the message board

        I also took a year off from diagnosis as I had lots of complications post surgery even though I was 32 at the time.  It depends, a friend of mine was active a lot faster.  My husband did make sure that I was as fit as I could be pre-surgery and got me to do a lot of swimming coming up to the surgery - it really did help.

        Monday at 5:36 PM view post
        • Aoife has replied to a post on the message board

          I was 32 when diagnosed with stage 3 and am now 40.  I had 3 months of very intensive 1 week in 4 chemo, married 2 weeks post chemo then went on to have the surgery a few weeks later.  I have a 3 and 4 year old now that I was very lucky to have post chemo and surgery.  Aoife

          Monday at 5:38 AM view post
          • Aoife has replied to a post on the message board

            I have a 3 and 4 year old that I was very lucky to have post surgery.  It does affect my type 1 diabetes but I am glad that I had the surgery.  My life would have changed with two very yoing children in any case. 

            July 19 at 7:52 PM view post
            • Aoife has replied to a post on the message board

              For me I was 32 and had the chemo but wanted to fight this with everything I had so I chose the surgery, I want to have the chance to grow old.  40 now and I do not regret it. Aoife

              July 18 at 8:02 PM view post
              • Aoife has replied to a post on the message board

                I had Squamous cell as well and I had chemo with the hope of surgery - I was diagnosed in 2006 and I was 32 and had the surgery in 2007 and am now 40. Aoife

                July 18 at 5:50 AM view post
                • Aoife has replied to a post on the message board

                  It lasts for months and if you get a cold you will get it back again - well that was my experience.  It is normal, try not to worry but that us easier said than done. Aoife

                  July 03 at 5:55 AM view post
                  • Aoife has replied to a post on the message board

                    I forgot all of it - I choose to remember it when trying to help others.  I was planning my wedding in my good week.  That was 2006 and am 40 now and have a 3 and 4 year old.  My husband still gets upset when I talk about it.  I wanted to give it the toughest I could as I knew that I was stronger than it.  I had almost immediate effects.  2 weeks after the first chemo I was able to swall...

                    June 12 at 7:05 PM view post
                    • Aoife has replied to a post on the message board

                      I was 32 when diagnosed.  They were not sure how far the spread even with CT so they gave me very stong chemo with the hope of surgery.  The post chemo CT showed a total response. I had 20 suspiscous lymph nodes when they did the surgery post chemo (I also had cisplatin and a few others - not nice but I have it blocked from my mind).  Im my case they did not find it there but after my 18 month scan (w...

                      June 12 at 6:11 AM view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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