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aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I took an experimental chemo treatment at the time my odds were that bad - you have to remember that some people can and do get through this - you need to fight this to be in the percentage that survive.  It would have been so easy for me to give up but I did not, you have to fight this and you can beat it, remember that you are stronger than it.

    7 hours ago view post
    • Aoife has replied to a post on the message board

      I was only stage 3 but I got double pneumonia then acute kidneyt failure which resulted in me being ressusiated 3 times post surgery.  I did have a total response to chemo, there are some chemo regiems that are amazing.

      10 hours ago view post
      • Aoife has replied to a post on the message board

        I was 32 when diagnosed with stage 3 and had chemo then surgery - that was over 8 years ago - there is hope.  I went on to have 2 children post surgery. Best wishes, Aoife

        Yesterday at 10:28 AM view post
        • Aoife has replied to a post on the message board

          I am sorry that you and your wife are going through such a tough time - i do think that your wife is very lucky to have you being so vililant on her behalf.  Do make sure that your wife gets regular scopes - people can and do get esophageal cancers at her age and it can be hard to get someone to listen. Aoife (8 year esophageal cancer survivor diagnosed stage 3 when I was 32).

          Friday at 6:31 AM view post
          • Aoife has replied to a post on the message board

            I am an 8 year plus oesophageal survivor here, am also a type 1 diabetic. I started eating fish pate, I seemed to manage that - it was by trial and error that I got used to things and even then I could eat more with time.  I was lactose intolerent for the first 3 years (I only started to be able to have milk when I became pregnant with my daugter and even then it was only full fat milk). I can eat relativly no...

            February 25 at 7:26 PM view post
            • Aoife has replied to a post on the message board

              Sorry, I do not remember a lot of it - my husband does - if it helps your mother will forget it too.  I was sick almost constantly for the first two weeks after my chemo and then I had a good week and then it was back to it again - that went on for 3 months. Your mother will forget it, that is the main thing.

              February 19 at 8:36 PM view post
              • Aoife has replied to a post on the message board

                I had it with my chemo over 8 years ago - I got sick and severe headaches for the week of the chemo and the week after, I had a similar chemo to your mother.  I had the chemo then a total oesopgagectomy. Best wishes, Aoife

                February 19 at 7:34 AM view post
                • Aoife has replied to a post on the message board

                  I used a cough suppressant but I do not remember the name of it sorry.  It does get easier with time.

                  February 13 at 6:58 AM view post
                  • Aoife has replied to a post on the message board

                    I know that I went from having problems swallowing water to being able to eat normally 2 weeks after my first week of chemo back in 2006, I was also diagnosed with squamous stage 3 but I was 32 when I was diagnosed.  I relate to her being scared of eating in case she gets the horrible symptoms again but I am 8 years on from the chemp and surgery now, it does get easier with time.  The coughing still gets me...

                    February 12 at 6:27 AM view post
                    • Aoife has replied to a post on the message board

                      It took me a few months to get used to the 'new normal' and even that has changed with time (though less so now as it is 8 years since the surgery for me).  I could not tolerate lactose for a long time  (until almost 4 years ago).  I think that keeping a food diary helps. It does get easier with time. Best wishes.

                      February 09 at 6:41 AM view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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