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aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    i am an oesophageal cancer survivor and it is surgery that seems to have similar issues.  I did take a year off work from diagnosis.  My life is different and yes, for me at least I need to know where the toilet is but the frequency has lessened with time.  I can eat a lot more than I did closer to the surgery.  I was lactose intolerent until about 4 years ago when my first signs that I was pregna...

    Wednesday at 8:55 PM view post
    • Aoife has replied to a post on the message board

      I was like that for the first 6 months at least - coughs stay longer as well when I get them - it feels like there is an irritation.  I am an 8 year stage 3 survivor.  It will lessen with time.

      November 13 at 6:59 AM view post
      • Aoife has replied to a post on the message board

        I know that it is a huge shock - I was in a similar position to your son 8 years ago - I had chemo 'with the hope of surgery' - I had the surgery in 2007.  I was stage 3 and went on to marry 2 weeks post chemo then I went on to have my 4 year old and 3 year old.  i had radiation treatment as a child for graves disease and am also a type 1 diabetic so they had to allow for those during treatment.  He ca...

        November 06 at 6:34 AM view post
        • Aoife has replied to a post on the message board

          Keep an eye on it and do get definitive answers.  i was 32 when i was diagnosed with stagea 3 oesophageal cancer.  i was in and out of gastroenterologists for a few years before and was dismissed due my age, low weight, the fact that i was not a smoker etc.  You need to keep an eye on this-i am an 8 year survivor and mother to a 3 and 4 year old but i was very lucky.  I am not trying to scare you...

          November 04 at 6:47 AM view post
          • Aoife has replied to a post on the message board

            A few of us are still here - I was diagnosed in 2006 and thanks to the chemo and surgery 2 new people are in this world - I became a mother to two wonderful children post chemo and surgery. I was also lactose intolerent for quite a while - I was not until O was pregnant with my youngest (who is 3) that I was able to have milk and even then it was only full fat and sometimes it still gives me dumping syndrome.  ...

            October 26 at 8:16 AM view post
            • Aoife has replied to a post on the message board

              I had cousins that were on the other side of the world that were there for me by skype when I needed company while my husband worked - they were brilliant.  My daddy also was helping me plan my small wedding on my good days.  Your husband will be sleeping a lot, do have something nice to do on his best days at the weekend pre-chemo, that helped me a lot. Best wishes, Aoife

              October 19 at 10:15 AM view post
              • Aoife has replied to a post on the message board

                I do not remember the chemo but my husband does, I do know that I was sick constantly for it (I had one week in 4 of chemo for 3 months and then 2 weeks after that I married my husband).  I was stage 3.  I had the chemo with the hope of having the surgery which I had in February 2007.  I was unable to swallow anything even water for the most part pre-diagnosis.  I remember the first time I went ou...

                October 19 at 10:11 AM view post
                • Aoife has replied to a post on the message board

                  Speaking as an 8 year stage 3 survivor and parent to a 3 and 4 year old I know that I would have wanted my children to follow their dreams. I have cousins that were in a different time zone that were there at times that other people could not be there so with the help of skype you may be able to help your daddy in ways that others can not. Follow your dreams - you can still be there for your daddy via skype. Best ...

                  October 03 at 6:08 AM view post
                  • Aoife has replied to a post on the message board

                    I would be the same weight as before the surgery but I did not really gain the ability to gain weight until I was pregnant with my son - I am a healthy normal weight.  I look at the calorie content of things though, eat spicely food and probably exercise a lot less than I should though, it is not ideal.  I do get a new form of hungry though which is pain near my neck. It does get easier with time and do ke...

                    September 28 at 7:13 AM view post
                    • Aoife has replied to a post on the message board

                      I was a lot older than you at diagnosis with stage 3 but I was still relatively young at 32.  I have gone on to marry my college sweetheart (2 weeks after chemo), have a total oesophagectomy and am now 40 with a 3 and 4 year old.  I am also a type 1 diabetic, have thyroid issues and have sarcoidosis.  I find balancing the diet interesting but I eat small amounts of foods that are high in calories, so u...

                      September 25 at 7:19 PM view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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