Loading...

aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    I had cousins that were on the other side of the world that were there for me by skype when I needed company while my husband worked - they were brilliant.  My daddy also was helping me plan my small wedding on my good days.  Your husband will be sleeping a lot, do have something nice to do on his best days at the weekend pre-chemo, that helped me a lot. Best wishes, Aoife

    Sunday at 10:15 AM view post
    • Aoife has replied to a post on the message board

      I do not remember the chemo but my husband does, I do know that I was sick constantly for it (I had one week in 4 of chemo for 3 months and then 2 weeks after that I married my husband).  I was stage 3.  I had the chemo with the hope of having the surgery which I had in February 2007.  I was unable to swallow anything even water for the most part pre-diagnosis.  I remember the first time I went ou...

      Sunday at 10:11 AM view post
      • Aoife has replied to a post on the message board

        Speaking as an 8 year stage 3 survivor and parent to a 3 and 4 year old I know that I would have wanted my children to follow their dreams. I have cousins that were in a different time zone that were there at times that other people could not be there so with the help of skype you may be able to help your daddy in ways that others can not. Follow your dreams - you can still be there for your daddy via skype. Best ...

        October 03 at 6:08 AM view post
        • Aoife has replied to a post on the message board

          I would be the same weight as before the surgery but I did not really gain the ability to gain weight until I was pregnant with my son - I am a healthy normal weight.  I look at the calorie content of things though, eat spicely food and probably exercise a lot less than I should though, it is not ideal.  I do get a new form of hungry though which is pain near my neck. It does get easier with time and do ke...

          September 28 at 7:13 AM view post
          • Aoife has replied to a post on the message board

            I was a lot older than you at diagnosis with stage 3 but I was still relatively young at 32.  I have gone on to marry my college sweetheart (2 weeks after chemo), have a total oesophagectomy and am now 40 with a 3 and 4 year old.  I am also a type 1 diabetic, have thyroid issues and have sarcoidosis.  I find balancing the diet interesting but I eat small amounts of foods that are high in calories, so u...

            September 25 at 7:19 PM view post
            • Aoife has replied to a post on the message board

              I do know that the new normal is a huge shock, when you are diagnosed at first all that you want to do is fight it and appear as brave as possible for your loved ones.  There does come a stage when it hits you though and I am guessing that your husband has hit that wall.  This will pass with time.  At first I celebrated 6 months since diagnosis then the year...next week (Thursday the 2nd of October) wi...

              September 24 at 5:37 AM view post
              • Aoife has replied to a post on the message board

                I am so relieved that he seems to have turned a corner - baby steps at first but if you compare with a day ago or a week ago you will see a difference.

                September 22 at 6:06 PM view post
                • Aoife has replied to a post on the message board

                  Probaby not much use to you but I ate fish past/pate and mayonaise about 4 months post surgery - it was a bit salty but it tasted nice and it was high in protein and calories.  (I was diagnosed with stage 3 on 2nd October 2006 and had surgery then chemo and turned 40 earlier this year.)

                  September 20 at 8:56 AM view post
                  • Aoife has replied to a post on the message board

                    Talk to him, I know that I had moments even on the ventilator when I heard my new husband's voice.  Your son has so many reasons to get out of this and he can.  Remind him of good times. He can and will get over this, best wishes, Aoife

                    September 15 at 5:33 AM view post
                    • Aoife has replied to a post on the message board

                      I am sorry that your son is going through so much but there is still so much hope.  I was in ICU for over 3 weeks post surgery.  i got double pneumonia then my kidneys decided to stop so I was also put on dyalysis for a while, during this time they had to resussitate me 3 times.  That was in February March 2007 and I am now 40 with my wonderful 3 and 4 year old dreamed of children. There is always ho...

                      September 14 at 8:03 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.