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aoife's Recent CancerCompass Activity

  • Aoife has commented on a news story

    I did not have time to freeze my eggs because I was diagnosed late because many doctor's said that I was too young to be diagnosed with oesophageal cancer at the age of 32.   I was given another experimental treatment for egg preservation because for me it was important to have something to live for - I am 41 now and have a 4 and 5 year old.

    Thursday at 5:58 AM view news story
    • Aoife has replied to a post on the message board

      I had graves so not the same thing, I had radioiodine when I was 3.  I went hypo thyroid in my early teens but I also was diagnosed with type 1 diabetes when I was 10.  The thyroid issues are not that bad  - yes I did have trouble staying pregnant but that was not helped by being diagnosed with stage 3 oesophageal cancer when I was 32, I was given an 8% chance of getting to 5 years from that.  I w...

      Wednesday at 7:17 PM view post
      • Aoife has replied to a post on the message board

        I am terrible - I do not exercise that much, I would get maybe 30 minutes walking a day max (a lot more now because I am on a staycation with my 4 year old, 5 year old and husband).  I am eating more and having fun running around after my powerpacks of energy.  I can eat a main course now or two starters but having some foods are a real treat - broccoli and cabbage do not treat me well :( Apofe

        July 24 at 4:58 PM view post
        • Aoife has replied to a post on the message board

          I am sorry for your loss.

          July 21 at 9:05 AM view post
          • Aoife has replied to a post on the message board

            I have no advice about your mother other than to push for the PET scan.  I was diagnosed with oesophageal cancer when I was 32 back in 2006, I married 2 weeks post chemo (ie we had 3 months to get ready for the wedding in theory (in practice we only had 7 days as I was sick for most of the chemo)...put forward your wedding and have your mother there - have a small one as if she is getting chemo she will want to...

            July 18 at 10:30 AM view post
            • Aoife has replied to a post on the message board

              Thank you and God Bless Phil A - they are 4 and 5 now, my baby starts school in September!  I hope that all of our group are OK too.

              July 15 at 7:22 PM view post
              • Aoife has replied to a post on the message board

                Mine was biopsied, it was scarcoidosis.  A nodule does not have to be anything.

                July 15 at 8:33 AM view post
                • Aoife has replied to a post on the message board

                  Tracy, I had my surgery in 2006 when I was 32 (I had nurerous complications including acute kidney failure), I have had type 1 diabetes since I was 10.  The surgery has messed things up in that my diabetes is brittle so I have to be extra careful - if I get dumping that really messes me up but I am here and I have my 4 and 5 year old.  I was stage 3 and had to be resusitated 3 times post surgery but I do h...

                  July 15 at 8:29 AM view post
                  • Aoife has replied to a post on the message board

                    I married 2 weeks post chemo, I was on a cycle of 1 week in 4 of chemo.  I was diagnosed with oesophageal cancer stage 3/4 on 2nd October 2006.

                    July 14 at 2:19 PM view post
                    • Aoife has replied to a post on the message board

                      Sorry, maybe I came accross a bit blunt but I do think that your hair is the last thing that you should think of.  Please take the strongest treatment that you can take and beat this thing.

                      July 13 at 8:11 PM view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 41 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer. I also have a cousin who is being treated for esophageal cancer at the moment.

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