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aoife's Recent CancerCompass Activity

  • Aoife has replied to a post on the message board

    For the most part I had follow up every 6 months for the first 5 years (except when I was pregnant with my children) - I am an 8+ year survivor at this stage.  I know that it is scary but the follow ups can also cause issues over the longer term.  I had 3 months of chemo first then a total oesophagectomy.

    April 02 at 7:50 AM view post
    • Aoife has replied to a post on the message board

      I am sorry for what you are going through, I was a few years younger than your husband as I was 32 when diagnosed with stage 3, I was unable to even swallow water most times when diagnosed but I chose to take the strongest chemo (I also took fertility preservation methods) with the hope of the surgery which I had early in 2007.  I have a boy now who is almost 5 and a girl who is almost 4.  It is a tough bat...

      April 01 at 5:25 AM view post
      • Aoife has replied to a post on the message board

        Only an 8 year survivor here but I was constantly ill for the first 6 months but it has lessened over time.  A food diary is useful - milk was a no no for the first few years (I was only able to have milk 4 years ago when I became pregnant with my little girl), I love cabbage but it hates me etc but it varies from person to person.  I did and continue to look at the calorie content of food and always go for...

        March 28 at 6:58 PM view post
        • Aoife has replied to a post on the message board

          It is highly unlikely that you have it but it is possible, especially with your family's medical history and it is right that you get it checked out.  I did not start to get the swallowing issues until I was 31 but I had bad acid reflux for years.   I was diagnosed when I was 32 with stage 3 oesophageal cancer.  I had chemo with the hope of surgery which I had in 2007 and I turned 40 last year an...

          March 20 at 6:50 AM view post
          • Aoife has replied to a post on the message board

            I was only stage 3 squamous cell of the oesophagus and I had little goals to have a nice time between chemo treatment (I was planning my wedding on my good days).  I can relate to your husbands feelings though, my husband had to keep on reminding me that I was stronger than it and that I could fight it. Keep on remding him that he is stronger than it. Best wishes, Aoife

            March 19 at 6:27 AM view post
            • Aoife has replied to a post on the message board

              I got a lot of dumping syndrome for the first year post surgery but it has declined with time though I did get it last night because I mis judged how much I could eat.  I was in pain post surgery but it goes with time - I still get pain from the ribs they had to break occasionally but it is not that bad.  I am here and I have my 3 and 4 year old :)

              March 17 at 9:49 AM view post
              • Aoife has replied to a post on the message board

                Mine was in the center of my oesophagus but I was given a similae prognosis but was not given radiation because I got it as a young child but I did have chemo then surgery.  The surgery was 9th February 2007.

                March 17 at 9:29 AM view post
                • Aoife has replied to a post on the message board

                  I had a big scare 18 months post surgery when they saw something on my liver, I had a pet ct then a liver biopsy, it turned out to be scarcoidosis and I went on to live my life then including going on to have children - I am an 8+ year stage 3 survivor with a 3 and 4 year old and turned 40 last year.

                  March 16 at 7:14 AM view post
                  • Aoife has replied to a post on the message board

                    I had good days between the chemo (I had one week in four of chemo) and did things in the last week before I went back for the next batch.  My husband also dragged me out post surgery and it was good that he did.

                    March 16 at 7:08 AM view post
                    • Aoife has replied to a post on the message board

                      Yes, I had chemo with the hope of surgery which I had in February 2007.  I also went on to have a boy and a girl (who are 4 and 3) post surgery.

                      March 13 at 7:42 PM view post
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                      About aoife

                      Patient
                      Esophageal Cancer

                      Am a 40 year old Oesophageal cancer survivor who was diagnosed 2nd October 2006, I got married late 2006 just after chemo and had surgery 9th February 2007 and had a beautiful little son 2nd April 2010. I had our daughter on 1st June 2011. I sort of skipped my 4 year scan and had my 5 year oneish on the on 2nd of September which was fine and I have been advised to have no more scans. My Mother in law passed away on the 12th of February 2013 of late stage lung cancer.

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