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arnehakansson's Recent CancerCompass Activity

  • ArneHakansson has replied to a post on the message board

    Good luck to You 17 years are à long time to live with. MM and you. what i can understand still livring à nice life. Have à nice time to all of you From Sweden à nice winterday Arne

    December 02, 2012 view post
    • ArneHakansson has replied to a post on the message board

      Thank hou very much. How have the new novel drug (carfilzomib-Rev and dex) been accepted in US. What I lerned from my doc the drug now have get fast track approval by FDA and are on the market since august 2012. The drug is not yet approved in any of the countries in Europe. The reason I get it is that I am in phase 3 studie. This drug maybe can put your fiancee in full remission. Since my late reply to you I have ha...

      November 03, 2012 view post
      • ArneHakansson has replied to a post on the message board

        Excuse me for the format inmy reply to you. Depending of that I am not so good in English I try wrote in Swedish nd use a translator but that You could se it did`t work.  Sorry to hear about your husband. I know the feeling it is to get out of remisssion after a SCT, but dont give up J feeling great today even if the treatment to the remission I am in today have been hard As I said before, I am in the study a...

        October 05, 2012 view post
        • ArneHakansson has replied to a post on the message board

          Sorry to hear about your husband. I know the feeling it is to get out of remisssion after a SCT, but dont give up J feeling great today even if the treatment to the remission I am in today have been hard. As Isaid before, I amin thestudyarm,Revlimid,Dex andCarfilzomib.has been so in14 months.Formonths agothey took awayDex andCarfizomibdue to problemswith the heart.Threetimes theemergencyby ambulance to thehospital.C...

          October 05, 2012 view post
          • ArneHakansson has replied to a post on the message board

            On aug 03, 2012 7:45Mausyfwrote: Is anybody on here with Myeloma in stage 1 refusing chemo treatment and what are the odds? 1998 in connection with a diagnosis of the disease sarcoidosis was found that I had MM stage 1. Läkarrnna said that as long as I had the blood tests I had and had no pain in bones there was no idea of treatment, only control four times a year I lived well into late 2007 when I sta...

            August 05, 2012 view post
            • ArneHakansson has replied to a post on the message board

              Thank you Linda. I can say that just now j have started playing golf again. People around that have seen me tha last year, don´t belive their eyes when they meet me today, and the best of all is that I belive the protcoll with DEX/REV/CARFILZOMID can help a large part of people with MM to recover in the way I have done. The time in Sweden is now 11.00 pm, so it´s time to sleep. They have promised a nice...

              August 02, 2012 view post
              • ArneHakansson has replied to a post on the message board

                Yes it is Arne

                August 02, 2012 view post
                • ArneHakansson has created a new message board discussion

                  I am probably the most happy person in Sweden today. Last wendsday my Dr told me I am free from MM and MGUS. I sure the main reason is that I have participate in the sudie with carfilzomib and that I was in the arm that include Carfilzomib. It has been a hard treatment specially for the heart but even for the stomach and the feet. But that are on  the way of recovery. The heartmedecin have been halfed compared ...

                  July 28, 2012 view discussion
                  • ArneHakansson has replied to a post on the message board

                    Hi Freddie and your wife The SCT I have done give me 2 year without any treatment. The m-component get from 35 to 8 and I was able to do anything I wish to do. So you can not say that it not help. But that you know you can not be fre from MM, You can only try keep it back. So in june last year the MM was back with a lot of pain, and with increased m-component to 31.  I was lucky to be participaiting in th...

                    July 20, 2012 view post
                    • ArneHakansson has replied to a post on the message board

                      It is à lot ofstudies going on. I have benen in à studie for the last 12 months, and have 6 month more to go. The studie is RE/DX vs RE/DEX and Carfilzomib, and J have been in the last group and the result is very good. My m-component Is down to Zero and that is the same with the protein change that are building the m- component. The result is much bettet than it was, when i was doing SCT for three years ago. Th...

                      July 20, 2012 view post
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                      About arnehakansson

                      Patient
                      Multiple Myeloma
                      After Treatment, Clinical Trials and Research

                      Get the diagnose for MGUS 1998 and for MM 2008. The chem therapy with a goal for steam cell started in April, and I get my cell back in Aug the same Year Was free for treatment until l Aug 2011,from that time J is in a studier fas 3. from ONYX, where my hospital Sahlgrenska sjukhuset (a university hospital)is participaiting)in The treatmen is a combination of Revlimid, Dexametason and carfilzomib In my opinoion the respond is quit good and I have plans to both play golf and visit New York in the future.


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