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babyangels's Message Board Messages

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We ARE here for you all, offering Patient/Family Support, Education, and Awareness about this disease that has taken far too many from us and that many of our loved ones/friends are still going to battle with daily.

Please join us in spreading that AWARENESS and EDUCATION by attending our Brains Matter Webinar Series, "A Brain Tumor Patient's Guide to Insurance and Financial Resources, Part 2" this Thursday, 3/28 at 11:00AM PST. Our webinars are ALWAYS FREE and are 1 hour long.

To register and for more details, please click here:

http://bit.ly/BrainsMatterWeb3

The Cancer Legal Resource Center/CLRC and The Patient Advocate Foundation / PAF Will be both be joining us for this webinar where we discuss ACTUAL brain tumor patient case scenarios and the Affordable Care Act and how it impacts Brain Tumor Patients.

TODAY...Thursday 2/28 is our Brains Matter Series "A Brain Tumor Patient's Guide to Insurance and Financial Resources" Webinar at 11:00 AM PST.
Register Now at http://www.bit.ly/BrainsMatterWeb2

Please join the Chris Elliott Fund and the Patient Advocate Foundation (PAF) for this valuable hour of information containing all of the latest information on insurance coverage, recent changes to insurance laws, and financial resources available to brain tumor patients. 

The Chris Elliott Fund (www.endbraincancer.com) or www.facebook.com /endbraincancer, a non-profit that provides National Patient and Family Brain Tumor Support is offering FREE Monthly Webinars to brain tumor patients, families, and caregivers.  The Brains Matter Webinar Series provides access to top brain tumor specialists and support networks around the country.  Please join us for our 2/28 Webinar "A Brain Tumor Patient's Guide to Insurance and Financial Resources" .  We are partnering with The Patient Advocate Foundation for this one hour long webinar and hope you will join us! 

Register at http://bit.ly/BrainsMatterWeb2  today.  For more information please email us at WeCare@EndBrainCancer.com or call us toll free at 800-574-5703 .  We are here to help! 

Hello,  My father was Dx on 11/4/11 with GBM.  I wanted to share this wonderful opportunity for a day of sharing, education and HOPE in the Brain Tumor Community!  This event takes place just the day before the 5th Annual Seattle Brain Cancer Walk.  Please see information below or go towww.endbraincancer.com/brainsmatter.html to register.  

Thank you! 

Maria B

Brains Matter Patient & Caregiver Education &Awareness Day

   Friday, September 21st, 2012

8-5pm at Gilda's Club on Broadway

    Seattle, Washington

Featuring five of the Nation’s Most Respected Brain Tumor Specialists

Keynote Speakers: Jeanne Wallace, PhD, CNC “Nutritional Support & the Brain Tumor Patient”

Greg Cantwell, Inspirational Speaker & Brain Cancer Survivor

Neuro-oncologists: Dr. Santosh Kesari, UCSD & Dr. Michael Prados, UCSF, Dr. Maciej Mrugala, University of Washington

Pediatric Oncologist Dr. Russ Geyer, Seattle Children’s Hospital

Laura Benson, Novocure & Nick Boyle,Tocagen & Beverly Goldsmith, Bereavement Counselor, Providence Hospice, Seattle

Because of the generous support of our sponsors, we are able to offer this event FREE OF CHARGE to brain tumor patients, caregivers, families, and loved ones.

Complimentary Lunch included! 5-6pm Social Hour

Register atwww.endbraincancer.com/brainsmatter.html

Questions?  Call 800-574-5703 or email us at info@endbraincancer.com 

Twitter isn't really so much about support, as sites like this or Facebook.  It's just short little snippets of information, thoughts, etc... We use it to create more awareness about Brain Cancer.  I post stats on Brain Cancer, information for caregivers/respite care info, and to give the community more information about the services we provide free of charge, etc...  

We are currently helping a young couple (the husband is 26 and has GBM) get funding for travel, lodging, food on their trip from MT to WA for a 2nd opinion.  

We are @endbraincancer on Twitter.  IT's easy to sign up, but I think you'll find more comfort in sites like this and FB.  

Take care,

Maria B

Hi Margee', 

We've been tweeting, posting, and talking about it a bunch on Twitter, Facebook, and with our local businesses who are working with us to bring about more awareness for Brain Cancer.  Go to Twitter and type in #BrainTumorThursday or #BrainCancerAwareness and you'll see hundreds and hundreds of posts about Brain Cancer/tumors.  We also have information about it on our Facebook page at www.facebook.com " target="_blank" rel="nofollow">www.facebook.com /endbraincancer .  

It is a tough one for people to talk about... it scares them.  We know all too well how scary it is, as we're dealing with it first hand with a loved one or ourselves here on CC.   I still find that people just want to sweep it under the rug like it's the "bad word"... It's too bad and we hope to change that very soon!  

Thank you for your post!

Maria Barrett

Health Information Concierge

The Elliott Foundation

www.endbraincancer.com

www.facebook.com " target="_blank" rel="nofollow">www.facebook.com /endbraincancer

@endbraincancer on Twitter

1-800-574-5703

Hello again,

I'm going to forward some of your information to a very well known Neuro-Oncologist in California.  He is the head of the program there and might have some suggestions about where to go and some options for getting it covered.   I'm emailing him now and will get back to you as soon as I hear back.  He's usually pretty prompt in replying.  

I agree, the PET Scan will let you know if you have any "Hot" spots or if there is no activity.  They are useful for this kind of situation.   

I will be in touch.  

Thank you,

Maria Barrett

Health Information Concierge

The Elliott Foundation

www.endbraincancer.com

www.facebook.com /endbraincancer

@endbraincancer on Twitter

1-800-574-5703

We are all traveling on this journey together and we at The Elliott Foundation are here to help those that are new to brain cancer, those that are in the middle, end, and anywhere inbetween.  We also work with benign brain tumor patients as well!  Who are we?  Go to our website at www.endbraincancer.com " target="_blank" rel="nofollow">www.endbraincancer.com for more information.  What do we do?  We provide National Brain Tumor Patient Support to patients and their families.  We help patients get answers, come up with questions, connect patients with Advanced Brain Tumor Centers, get 2nd opinions, and help them along the way with their treatment options, questions, etc...
We are a non-profit organization that has been tapped by the National Brain Tumor Society (NBTS) to take over all of their Patient Support Services that they have now dropped since this past fall.
Visit our website, facebook page, or just email us if you have any questions.  We know first hand how frustrating this world of Brain Cancer can be and we want to help make it a little less confusing.  Knowing what questions to ask, what options there are for treatment, and where to go for treatment are all very important ?'s to have the answers to! Our services are free of charge and we are available via email, facebook, and our 800#. 
Thank you,
Maria Barrett
Health Information Concierge
The Elliott Foundation
maria@chriselliottfund.org
www.endbraincancer.com " target="_blank" rel="nofollow">www.endbraincancer.com
www.facebook.com /endbraincancer
@endbraincancer on Twitter
1-800-574-5703 

We can help!  

Hello, 

I'm sure there will be people on this board that will reply to your friend's request for help.  I wanted to ask her to also post this question on our facebook page at www.facebook.com " target="_blank" rel="nofollow">www.facebook.com /endbraincancer, as I'm sure she'll get a lot of ?'s answered there too! We have over 6500 followers on FB who would see a message that she posts.  If she has any specific questions, I'm sure we can also help answer them too!  Please let us know! 

Best of luck to your friend! 

Maria Barrett

Health Information Concierge

The Elliott Foundation

www.endbraincancer.com

www.facebook.com " target="_blank" rel="nofollow">www.facebook.com /endbraincancer

@endbraincancer on Twitter

1-800-574-5703

I'm sorry you're going through this.  When was the last time you had an MRI?  Will the Medicare/Medicade foot the bill for MRI?   Either the PET Scan or the MRI would hopefully give you something to go on.  

Are you taking anything for the severe headaches? 

Take care and let me know if we can help! 

Maria Barrett

Health Information Concierge

The Elliott Foundation

www.endbraincancer.com

www.facebook.com /endbraincancer

@endbraincancer on Twitter

1-800-574-5703

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Brain Cancer
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