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beejaypea's Recent CancerCompass Activity

  • beejaypea has replied to a post on the message board

    Please see my previous posting discussing some various drugs we have found.  We are seeing an oncology surgeon and he suggested the Octreatide injections.  We just have to find a way to afford it.  You can also look at Gattex but it is very expensive.  I would check into these.  I would also try to find a medical hospital that is a teaching hospital, as they seem to have more to offer and are...

    January 17 at 5:31 PM view post
    • beejaypea has replied to a post on the message board

      Hello, We met with a new Dr that recommends injections of Octreatide monthy.  It slows down the digestive process so that nutrients & liquids absorb in the small bowel better.  It is very expensive.  There is another drug that just got FDA approval called Gattex, designed for short bowel syndrome.  It's not on the market yet but should be soon.  Not sure of the cost.  I also saw onl...

      January 05 at 5:59 AM view post
      • beejaypea has replied to a post on the message board

        Hello All, We are seeing a new dr in our local area that is our version of the Mayo Clinic, hoping for help with the small bowel radiation damage my husband has.  This Dr's bio says "patients with challenging diagnostics and therapeutic situations encouraged".  Hoping to find help managing the symptoms, as we know there is no cure.  I'll report back when we know more. BJ  

        October 26 at 3:23 AM view post
        • beejaypea has replied to a post on the message board

          Thank you for sharing your story!  Your symptoms and life challenges are very simiilar to my husband's.  He gets very little sleep and wears "Depends" all the time, as he cannot control his bowels.  He goes from extreme diarrhea and then 180 degrees to blockage symptoms.  We have investigated a colostomy with our surgeon and discussed the pros and cons.  Our surgeon operated on my husband alm...

          August 08 at 10:48 PM view post
          • beejaypea has replied to a post on the message board

            My husband has had pretty much the same story for 6 years.  He had radiation during colon cancer treatment and now suffers from radiation enteritis.  He has malabsorption and has lost so much weight.  He's been on the tincture of opium for several years now. He has developed a rectal fistula from the bouts of diarrhea.  We live in the Pacific Northwest and are trying to find a docto...

            August 08 at 2:33 AM view post
            • beejaypea has created a new message board discussion

              I am looking for a program that can help manage symptoms fromchronic radiation enteritis.  Perhaps and Integrated Medicine program or Nutrition Therapy located in the Pacific Northwest.

              June 17 at 6:04 PM view discussion
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              About beejaypea

              Caregiver
              Colon Cancer
              Diet, Radiation, Side Effects, Supplements

              Looking for help with radiation enteritis solutions in Pacific NW

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