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beingcelestial's Recent CancerCompass Activity

  • beingcelestial has replied to a post on the message board

    please explain what is involved with mole mapping. is it the full body photography? ty.

    June 28 at 3:46 AM view post
    • beingcelestial has replied to a post on the message board

      find out what kind of PC and mets. look into carcinoid, especially PNET which is carcinoid of pancreas. i will send you a private reply with more info. b/c they might not allow me to post it here.

      May 08 at 9:51 PM view post
      • beingcelestial has replied to a post on the message board

        get copies of the reports and keep them in a binder. find out if it is NET/carcinoid b/c treatment for carcinoid is different and most doctors do not know about it. patients have been told there is nothing left to do...until they find out that there is something that can be done. it is worth looking into. prayers sent

        April 24 at 10:38 PM view post
        • beingcelestial has replied to a post on the message board

          so sorry about your dad. the only suggestions i can offer is to look into carcinoid. go to www.carcinoid.org to learn important info. regarding carcinoid, a type neuroendocrine tumor (NET) that is found in the abdomen. it is often un and misdiagnosed by the medical profession. wishing you hope.

          April 24 at 1:20 AM view post
          • beingcelestial has replied to a post on the message board

            I, too, get full body skin checks by the derm dr. yearly. I was never a sun worshipper. I wear sun protection and avoid the daytime sun. Last summer the derm dr. biopsied a few suspicious tiny, flat, dark moles from my arms. Pathology tests stated some were atypical and one was melanoma in-situ stage 0. She told me it was a tough call and they conferred on the decision. I had a few more biopsies ...

            March 06 at 4:18 PM view post
            • beingcelestial has replied to a post on the message board

              not sure if you were responding to me. carcinoid is cancer. it is found in the GI track and around it as well as other organs. i am glad you are getting proper treatment. prayers sent.

              January 31 at 2:22 AM view post
              • beingcelestial has replied to a post on the message board

                I wonder why there is a question of thyroid cancer? Are there nodules in the neck area? Many people have benign neck nodules but the best way to determine that is by performing an ultrasound and ultrasound-guided Fine Needle Aspiration Biopsy of them. They will look for micro-calcification and hypo-echoic features. I have learned that if I ask, I get more tests/procedures than if I do not ask. It never hurts to r...

                December 28 at 9:24 PM view post
                • beingcelestial has replied to a post on the message board

                  so sorry that your son is suffering through this. did the drs mention anything about the cancer being Carcinoid or Neuroendicrine cancer? www.carcinoid.org is an excellent site to learn about it.

                  December 16 at 12:19 AM view post
                  • beingcelestial has replied to a post on the message board

                    if your doctor is sending you for a breast screening, what does he/she want to do about the nodule? the least invasive and no radiation exposure screening to check the neck is by doing an ultrasound. based on the findings, they might want to watch and wait or do a fine needle aspiration biopsy.

                    November 14 at 1:56 AM view post
                    • beingcelestial has replied to a post on the message board

                      Hi John, I, too had a carcinoid (2mm-duodenal bulb) found during upper GI endoscopy/colonoscopy. I believe it is considered rare because people are un and misdiagnosed before correct diagnosis. Not many doctors know about it, how to find it, nor how to treat it. You must get to a NET specialist. You are lucky to be near the new testing strategy, GA 68. They do it in Europe (Germany, a few other countries). It is...

                      November 01 at 11:32 AM view post
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                      About beingcelestial

                      Patient, Survivor
                      Thyroid Cancer, Other Cancer
                      Cancer Diagnosis, Cancer Treatments, Diagnostic Imaging, Side Effects, Spiritual Support, Surgery

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