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beingcelestial's Recent CancerCompass Activity

  • beingcelestial has replied to a post on the message board

    i'm sending prayers! check out the www.carcinoid.org and www.ACOR.org sites for info. about specialists and treatments. not sure if you knew about them.

    November 14 at 12:27 PM view post
    • beingcelestial has replied to a post on the message board

      hi, is there any chance this is a neuroendocrine pancreatic cancer? check out www.carcinoid.org. PNETs is treated much differently than other cancers. also check out www.ACOR.org. prayers sent.

      November 14 at 12:23 PM view post
      • beingcelestial has replied to a post on the message board

        get in touch with a carcinoid specialist. go on www.ACOR.org and register in the carcinoid group for neuroendocrine cancer. if a person has carcinoid and undergoes surgery, they could have a reaction such as your friend's. it is treated very differently from other surgery and cancers. if you go on the site, call dr. gene woltering. his number and info are located in the group. also go on the www.carcinoid.org site to...

        November 06 at 4:42 AM view post
        • beingcelestial has replied to a post on the message board

          hi there, is there any chance that the cancers are neuroendocrine type carcinoid cancers, some of which are pancreatic (PNET)? you might want to go on the www.carcinoid.org site and learn more about it and where the specialists are that treat it. a friend just gave me this link that you might want to read: http://www.medpagetoday.com/MeetingCoverage/ATA/48395?xid=nl_mpt_DHE_2014-11-05&utm_content=&utm_medium=emai...

          November 06 at 4:32 AM view post
          • beingcelestial has replied to a post on the message board

            Hi ShikhaJain, a couple of sites to try: www.ACOR.org site is Assoication of Online Cancer Resources. It is an email listserv. Register in the neuroendocrine carcinoid group. There is a carcinoid specialist there -Gene Woltering. He will answer your questions. Also try the www.carcinoid.org site to find a carcinoid specialist nearest your location.

            October 30 at 1:28 AM view post
            • beingcelestial has replied to a post on the message board

              Hi ShikhaJain, a couple of sites to try: www.ACOR.org site is Assoication of Online Cancer Resources. It is an email listserv. Register in the neuroendocrine carcinoid group. There is a carcinoid specialist there -Gene Woltering. He will answer your questions. Also try the www.carcinoid.org site to find a carcinoid specialist nearest your location.

              October 30 at 1:26 AM view post
              • beingcelestial has replied to a post on the message board

                unfortunately, you have to wait for the pathology report to come back. make sure you request copies of everything and keep in a binder with clear plastic protectors. keep in touch. praying.

                October 16 at 2:08 AM view post
                • beingcelestial has replied to a post on the message board

                  hi wnnow, i will keep your husband and you in my prayers. has anyone mention PNET, pancreatic neuroendocrine tumor, or carcinoid to you? find out the kind of cancer he has and look at www.carcinoid.org for much information as to how to treat and test for PNET carcinoid cancer. also check out www.ACOR.org as they have many disease groups, one being neuroendocrine carcinoid cancer.

                  October 16 at 2:01 AM view post
                  • beingcelestial has replied to a post on the message board

                    that's great news, annie! i suggest that your brother obtain copies of all reports of tests. these include pathology reports, scans, blood work, surgicaloperative, even office visit progress reports. store everything in a binder with clear plastic protectors. do research to learn about follow-up care and what works best for his cancer. no cancer is good. some is easier to fight, more treatable and cure, but no ca...

                    October 10 at 12:17 PM view post
                    • beingcelestial has replied to a post on the message board

                      Oh my goodness, that is almost unbelievable. What country are you located? I suggest you get to a university/teaching hospital and see a top ENT surgeon.Did the dr. issue a neck ultrasound, CT or MRI? It could be thyroid cancer. There are four types with many varients. The most common, papillary, is usually highly curable and treatable, if caught early. If it is related to the thyroid then you will need to see an end...

                      October 10 at 3:59 AM view post
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                      About beingcelestial

                      Patient, Survivor
                      Thyroid Cancer, Other Cancer
                      Cancer Diagnosis, Cancer Treatments, Diagnostic Imaging, Side Effects, Spiritual Support, Surgery

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