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beingcelestial's Recent CancerCompass Activity

  • beingcelestial has replied to a post on the message board

    unfortunately, you have to wait for the pathology report to come back. make sure you request copies of everything and keep in a binder with clear plastic protectors. keep in touch. praying.

    October 16 at 2:08 AM view post
    • beingcelestial has replied to a post on the message board

      hi wnnow, i will keep your husband and you in my prayers. has anyone mention PNET, pancreatic neuroendocrine tumor, or carcinoid to you? find out the kind of cancer he has and look at www.carcinoid.org for much information as to how to treat and test for PNET carcinoid cancer. also check out www.ACOR.org as they have many disease groups, one being neuroendocrine carcinoid cancer.

      October 16 at 2:01 AM view post
      • beingcelestial has replied to a post on the message board

        that's great news, annie! i suggest that your brother obtain copies of all reports of tests. these include pathology reports, scans, blood work, surgicaloperative, even office visit progress reports. store everything in a binder with clear plastic protectors. do research to learn about follow-up care and what works best for his cancer. no cancer is good. some is easier to fight, more treatable and cure, but no ca...

        October 10 at 12:17 PM view post
        • beingcelestial has replied to a post on the message board

          Oh my goodness, that is almost unbelievable. What country are you located? I suggest you get to a university/teaching hospital and see a top ENT surgeon.Did the dr. issue a neck ultrasound, CT or MRI? It could be thyroid cancer. There are four types with many varients. The most common, papillary, is usually highly curable and treatable, if caught early. If it is related to the thyroid then you will need to see an end...

          October 10 at 3:59 AM view post
          • beingcelestial has replied to a post on the message board

            hi annie, do you know what kind of pancreatic cancer? there is one called PNET or pancreatic neuroendocrine tumor, specifically, a type of carcinoid cancer that is treated very differently than other cancers. to learn more about it, i suggest you go on the www.carcinoid.org site and the www.ACOR.org carcinoid listser (email group). prayers sent!

            October 10 at 3:45 AM view post
            • beingcelestial has replied to a post on the message board

              Adonna28 and anyone interested, here is some important info for your brother and you: www.carcinoid.org - look up carcinoid specialists by state and other pertinant info. www.ACOR.org - register in the carcinoid listserv/email group (dr. gene woltering is there) www.interscienceinstitute.com - order complimentary book entitled Neuroendocrine Tumors: A Comprehensive Guide to Diagnosis and Management. it list...

              October 06 at 4:06 AM view post
              • beingcelestial has replied to a post on the message board

                do you know what kind of pancreatic cancer your partner has? could it be a PNET-pancreatic neuroendocrine tumor/carcinoid?

                September 25 at 3:00 AM view post
                • beingcelestial has replied to a post on the message board

                  do you know if his cancer is a PNET/carcinoid?

                  September 25 at 2:57 AM view post
                  • beingcelestial has replied to a post on the message board

                    it depends on what type of pancreatic cancer it is... there is a neuroendocrine carcinoid that can occur in the pancreas (PNET). there is some valuable treatment for it if the person gets to a PNET carcinoid specialist.

                    September 25 at 2:53 AM view post
                    • beingcelestial has replied to a post on the message board

                      hi there, i agree with the others that you should see a GI dr. asap. do not settle for drs that do not take you seriously or give you simple excuses for your very serious ailments. you are your own best advocate. i do not mean to scare you but i want you to have this important info. there is a type of tumor/cancer that most drs. do not know enough about. it is a neuroendocrine tumor (NET for short) or carcinoid....

                      September 25 at 2:45 AM view post
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                      About beingcelestial

                      Patient, Survivor
                      Thyroid Cancer, Other Cancer
                      Cancer Diagnosis, Cancer Treatments, Diagnostic Imaging, Side Effects, Spiritual Support, Surgery

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