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bilbosgirl's Recent CancerCompass Activity

  • bilbosgirl has replied to a post on the message board

    Hi: Check out the caregiver forum, you'll find a lot of support there, there are several wives of husbands with GBMs. My husband had surgery in June 2013 and has well outlived his prognosis of 12 months.  My best to you Lisa

    January 04 at 4:48 PM view post
    • bilbosgirl has replied to a post on the message board

      My husband has a glioblastoma. In Denver, CO

      December 16 at 6:42 PM view post
      • bilbosgirl has created a new message board discussion

        some of you remember me. i had a nervous breakdown and was unable to care for my husband anymore a year after glioblastoma diagnosis. his mother has been caring for him since july. i visited for three weeks in sept. now i am here with him until the end. i am stronger now after my parents took me in for a while.  can anyone tell me more about the end stages? he is declining rapidly past couple weeks. lost use of ...

        November 09 at 7:39 PM view discussion
        • bilbosgirl has created a new message board discussion

          Those of you who read my "I am giving up" post know my husband is living with his mother right now and I am in another state caring for my mom who just had back surgery. My MIL refuses to contact hospice even though she desperately needs the help. My husband has a glioblastoma, dx 16 mos ago, first he lost mobility of left side, now right leg not really working either, it takes at least 2 people to get him out of be...

          October 10 at 2:09 PM view discussion
          • bilbosgirl has replied to a post on the message board

            Thanks Glitzy, that's so perfect... needed to hear that months ago but appreciate it now too :) Now if we could all just remember that every day...

            October 09 at 12:28 AM view post
            • bilbosgirl has replied to a post on the message board

              I haven't posted on here for 4 months, in that time I see Sarah Greys husband has passed, I'm sorry for your loss Sarah. I see Glitzy's still on here, sounds like your husband is declining too, I'm sorry. My MIL came to get my husband June 15, 2 weeks after this post, and took him to Texas. She is an RN and she and his sister acted like they wanted this time with him. As soon as they left they turned their anger on ...

              October 08 at 10:09 PM view post
              • bilbosgirl has replied to a post on the message board

                Thanks, Kelly, almost makes me feel a little better that this has a name, like it's a real thing, not just me losing my mind. I'll look up CCS. I also have been excercising, I think it's the only thing that keeps me going sometimes. Of course I have lost 25 pounds since April 1, don't get me wrong, I have it to spare but I understand the toll this takes on our bodies. Thanks for your post Kelly. Lisa

                May 30 at 12:00 PM view post
                • bilbosgirl has replied to a post on the message board

                  Oh Baily, Hugs to you. Sometimes your *hug* got me through the day. Wishes for peace and healing. Lisa

                  May 29 at 9:40 PM view post
                  • bilbosgirl has replied to a post on the message board

                    Ozgirl, Sarahgrey, everyone, thank you so much... As far as the timing there are graduations and weddings my MIL is working around, it will be a few weeks before she can come; but I think just having  a plan and a timeline will make me feel better. For a year I never once thought of myself, never even realized I would have a future after he's gone. Now some self preservation thing has kicked in and I real...

                    May 29 at 2:19 PM view post
                    • bilbosgirl has created a new message board discussion

                      Oh my ladies, I have such great respect for you and I know there is a special place in heaven for you. I know now I'm headed the other direction but god help me I can't do this anymore. I am admitting on here just in case anyone else ever has these feelings, I don't want you to have to feel as bad as I do if you can help it. I have been my husband's caregiver for a year, brain cancer and paralyzed on one side. I di...

                      May 29 at 1:37 PM view discussion
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                      About bilbosgirl

                      Caregiver
                      Brain Cancer

                      My husband was diagnosed with GBM in June 2012 just before his 43rd birthday. He had a partial resection, underwent radiation, and in August he started a 6 month course of temodar and avastin.
                      Update 5/2013 he is indefinitely off temodar and is permanently off avastin. Now we wait for the next MRI...

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