bilbosgirl

bilbosgirl's Recent CancerCompass Activity

• bilbosgirl has replied to a post on the message board

  Thanks, Kelly, almost makes me feel a little better that this has a name, like it's a real thing, not just me losing my mind. I'll look up CCS. I also have been excercising, I think it's the only thing that keeps me going sometimes. Of course I have lost 25 pounds since April 1, don't get me wrong, I have it to spare but I understand the toll this takes on our bodies. Thanks for your post Kelly. Lisa

  May 30 at 12:00 PM view post

• bilbosgirl has replied to a post on the message board

  Oh Baily, Hugs to you. Sometimes your *hug* got me through the day. Wishes for peace and healing. Lisa

  May 29 at 9:40 PM view post

• bilbosgirl has replied to a post on the message board

  Ozgirl, Sarahgrey, everyone, thank you so much... As far as the timing there are graduations and weddings my MIL is working around, it will be a few weeks before she can come; but I think just having  a plan and a timeline will make me feel better. For a year I never once thought of myself, never even realized I would have a future after he's gone. Now some self preservation thing has kicked in and I real...

  May 29 at 2:19 PM view post

• bilbosgirl has created a new message board discussion

  Oh my ladies, I have such great respect for you and I know there is a special place in heaven for you. I know now I'm headed the other direction but god help me I can't do this anymore. I am admitting on here just in case anyone else ever has these feelings, I don't want you to have to feel as bad as I do if you can help it. I have been my husband's caregiver for a year, brain cancer and paralyzed on one side. I di...

  May 29 at 1:37 PM view discussion

• bilbosgirl has replied to a post on the message board

  Glitzy: Thank you for sharing, bless your heart, you're about 10 years younger than me, and with the baby... I know it's got to be hard on you. I have a counselor I get to see her about every 3 weeks, it does help. You're right, every day is hard. This "marriage " is a joke - I am his caregiver and he is my patient and there is no more than that anymore. I feel like I am starting to hate him and hate our marriage...

  May 27 at 11:23 AM view post

• bilbosgirl has replied to a post on the message board

  Thank you Sarah, your situation and mine are so similar I think. We did inpatient rehab in January after a hospital stay for a seizure and it was good at the time but there have been declines since then... Yes I would go to the MILs but honestly the one main factor is he's on Medicaid which is a state program and I don't know if he could get on a similar program there - the main thing I worry about is affording his...

  May 26 at 6:18 PM view post

• bilbosgirl has replied to a post on the message board

  Mollie: We were basically told the same thing after 7 months, my husband's NO said ok to take a break from temodar and there's no evidence to support that staying on it would be beneficial.... same thinking that if we have a regrowth he could start on it again.

  May 26 at 5:28 PM view post

• bilbosgirl has replied to a post on the message board

  Baily: If I'm right you lost your husband recently, I'm so sorry bless your heart. Thanks for taking time to respond to me. We do get help 3 hours twice a week, unskilled home care. That's the only time I can leave him so I cram in all the grocery shopping, my doctor's appointments, when you factor in drive time and everything it just doesn't seem like much. We have no relatives or friends here to he...

  May 26 at 1:55 PM view post

• bilbosgirl has created a new message board discussion

  I tried to post but I think I used a cuss word and it didn't get posted and I'm sorry to everyone and I hope I don't get kicked off here if I promise not to do it again cause I really need you guys. I think being a spouse doesn't automatically qualify you to be a caregiver and I think I'm one who doesn't ... can anyone else relate to this? I mean there's a reason I always worked in an office and wasn't a nurse. I've...

  May 26 at 12:23 PM view discussion

• bilbosgirl has created a new message board discussion

  What if being a spouse does not automatically qualify you to be a caregiver? I have been doing this for a year now, out of necessity, there is obviously a reason I have always worked in an office and I'm not a nurse or something. I'm not good at this! I suck. I am beginning to hate the person I've become, the one who cries incessantly, screams strings of curse words multiple times a day, I'm beginning to resent him, ...

  May 26 at 12:03 PM view discussion