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boone1953's Recent CancerCompass Activity

  • boone1953 has created a new message board discussion

    I hae CMML and I go into the hospital on Feb 20th.  My BMT is March 1st.  I'm wondering what my wife and I will do the night before I go in.  I sure don't want it to be a morose night. What did you do? Boone

    January 31, 2013 view discussion
    • boone1953 has replied to a post on the message board

      Hi Mark, The reason for pushing the BMT as I understand it is simply the odds that the CMML becomes AML which they tell me can happen at any time and if not caught in time then ........well..........it may be too late.  My neutrophil count is on a steady decline even tough my other numbers are pretty good.  My odds, as guesses at such things go, are 50/50 with the transplant.  Lower than that without ...

      January 16, 2013 view post
      • boone1953 has replied to a post on the message board

        Good Morning June, I turn 60 this week.  Most of my counts are OK right now but since CMML can turn into an acute leukemia ( i forget what kind) with little chance for, well...you know, they want tp procede with the full BMT.  My wife researches EVERYTHNG and can converse pretty fluently with the DRs.  I research some.  Mostly its just scary and, given the rarity of the disease, they don't h...

        January 14, 2013 view post
        • boone1953 has replied to a post on the message board

          Interesting on the hospital June.  We visited 2 highly rated certified ones and picked one that has been around for years but have not yet done enouhg to be cerified as a center of excellence.  A friend of mine had his there.  He is doing great but had a "simpler" cancer.  We liked some of the ideas in this place better, i.e. a month in hospital isol after the BMT.  My reasoning with the...

          January 12, 2013 view post
          • boone1953 has replied to a post on the message board

            That's my plan D.  Glad to hear your Hubby is doing well.  Would like to hear from him. Boone

            January 12, 2013 view post
            • boone1953 has replied to a post on the message board

              Hi June, My Dr.s are telling me that one of my counts (my wife keeps the details) is on a steady decline.  They all agree that in my case my odds are better with the BMT to go now.  Waiting may make it too late.  I have my "team meeting" to see if I make the grade next week.  I will ask the question.  One good thing is that I see two differnt Docs and so I can ask twice. Thank...

              January 12, 2013 view post
              • boone1953 has replied to a post on the message board

                Hello, My name is Boone.  I was diagnosted about a year ago with CMML and I am scheduled to have a BMT next month.  Anyone else out there had or about to have a BMT.  Would love to have someone to share the experience with.  It sounds like it will be such fun.  Thanks.  Boone

                January 10, 2013 view post
                • boone1953 has replied to a post on the message board

                  Hi Pepper.  I have Chronic Myeliomoncytic Leukemia.  Waas diagnosed about a year ago and I'm scheduled for a bone marrow transplant next month.  YOu are right the disease is rare and finding specific info online is really tough.  Honestly I'm scared to death and would love to find someone in a similar condition that I could talk to. Best of luck. Boone

                  January 10, 2013 view post
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