bootsy's Recent CancerCompass Activity

  • bootsy has created a new message board discussion

    I am so glad for this message board.  Its makes me feel not so alone in my struggles.  When we go out to eat, I have to ask for extra sauce or extra butter, I feel like noone understands what it is like to have a dry mouth.  At times I feel alone, my friends have gone on their own ways, because I am damaged now.  So, I just want to thank everyone for not making me feel so alone.  Sincerely, ...

    May 12, 2011 view discussion
    • sabriene

      sabriene Bootsy how are things going for you now. I still have that awful dry mouth at times. How about you? Roger

      May 31, 2012
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About bootsy

Nasal Cavity Cancer
After Treatment, Alternative Treatments, Emotional Support, Lifestyle

I found out April of 2009 that I had nasopharangeal carcinoma. I was at stage 3. After three chemo's that left me so sick, lost all my hair and I lost lots of weight. I only weighed 125 to begin with. I had 39 radiations. I had the peg tube but I had it removed after I could start drinking ensure. I have very limited saliva. I eat oatmeal in the morning with extra milk. I slice bannanas and put in milk. I make my own soup sincce there is so much sodium in canned soups. I take chicken broth with no msg add egg noodles and steam fresh vegetables. I can eat scrambled eggs and steamed veggies. It can get very boring. I miss activities I used to do because I get to dry. If I could only get my saliva back. Paula

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