brenda40's Recent CancerCompass Activity

  • brenda40 has replied to a post on the message board

    Haven't been on in a long while. Sooty for the delay How are things with you.

    February 27 at 3:16 AM view post
    • brenda40 has replied to a post on the message board

      Hi Karen, So sorry for what you & your brother are going through. Be very careful not to skip treatments.  We took several breaks (3) due to all the same reasons.  When the cancer returned a few months after the 35 treatments we went to MD Anderson.  They agreed with all the treatment we had other than missing radiation.  I asked how they would have handled it & they told us that my husban...

      February 11, 2012 view post
      • brenda40 has replied to a post on the message board

        Hi John,  My husband says he wished it was on the market 3 years ago when he was radiated.  He only had magic mouthwash & caphasol.  He uses Mugard for the past 4 months.  Still gets mouth sores from the oral chemo...Xeloda. Hard too get & very expensive.  4 bottles = 1,000. Was only available through Bioscript but they no longer supply...Just changed to another Speciality pharmacy....

        November 18, 2011 view post
        • brenda40 has replied to a post on the message board

          The husband used the magic mouthwash.  He thought it was just a simple , short lasting bandaid.  Taste bad.  There is a new product out called Mugard.  It is a Rx rinse & works great.  It is available through Bioscript only.  Can't get it from the local pharmacy.  Very pricy too.  About 1,000 for 4 bottles but was very fortunate that the insurance paid for it.  I ...

          November 03, 2011 view post
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          About brenda40

          Head and Neck Cancer, Tonsils Cancer
          Acupuncture, After Treatment, Alternative Treatments, Cancer Nutrition, Cancer Prevention, Clinical Trials and Research, Conventional Treatments, Supplements, Support

          11/4/2010- Just added a picture- Was taken last week on a trip to NYC. The man in the pic is my husband, Manjit. He sure doesn't look like what he's been through. He would disagree. His beard won't grow back after the radiation so he decided to grow a mustache. (I'm the blonde with him.) Here's the story. Manjit was diagnosed with stage IV tonsilliar cancer in Nov,08. The tonsil was surgically removed, chemo started. Then radiation as well as more biological (Erbitux) therapy. 1st post therapy PET & CT were clear in August, 09. Now 2 months later after continuous complaints about the sore throat, fatigue, raspy voice & increased dryness the ENT found a spot in the tonsilliar area that is suspicious & scheduled a biopsy for Wed 11/10/2009. We had received such a positive outlook from the oncology team that we never really thought about re-occurrence. Not really prepared. The cancer had travelled into 3 lymph nodes at the original diagnosis & we even considered the neck dissection. We were convinced that this was not the best treatment choice & trusted the team of professionals who treat this everyday? Any advice? Really scared! Please pray for this man that I adore for having the courage & strength to keep fighting this ugly disease. Thanks...Update. 11/4/2010-turned out that the biopsy was + again for SCC. Unfortunately, the PET showed nodes on the lung. Was given 6 months! We refused to accept that. Went to MD Anderson, Texas - they agreed! Well, by late November a Chest CT showed that the nodes were smaller & maybe it was infection & not mets to the lung. More anti fungal, anti bacterial & anti viral meds. They shrunk more. Great news but now we had to deal with the neck. 12/15/2009 had a selective Neck Dissection with 18 nodes removed. All - ! Thought it was over. Wrong- by Jan, 2010(1 month later) the nodes were back & growing. By April- much more & determined that it was definitely metastatic disease. We had the tumor tested in Dec. for the targeted therapy. Time to use it. The gene was positive for the Her2Neu gene. Currently on Tykerb (used for breast cancer) & it is working. Shrinking & no new disease. Unfortunately, it has returned to the same tonsilliar region again. Went to Sloan Kettering Memorial last week & met with 3 docs & got 3 different opinions. Actually, we came home confused & met with yet another doc here who can feel the actual tumor in the throat & feels he can laser it. Taking each day as a gift and trying to live it to the fullest!

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