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bufalowgrl's Recent CancerCompass Activity

  • bufalowgrl has replied to a post on the message board

    Hello Jen, Margaret, Monica and LydiaK... I have not posted in a very long time and I am still having carcinoid symptoms and continued testing. Jen, I just wanted to express my sorrow and concern for you after reading your recent posts regarding the progression. Have you had the Gallium68 Pet Scan? I know you said you had a PET scan but was it the Galluim68? I only know of one place in the US that currently has it ...

    August 24, 2012 view post
    • bufalowgrl has replied to a post on the message board

      Hello this reply is to JenHolm25 and Monica117...hope you are still folowwing this thread. I have been experiencing flushing and abdominal pain for four years now and have been tested for carcinoid with negative results. My symptoms are always present but the flushing tends to get really bad and then slightly lessons. I was just wondering if Jen during any of your testing initally .... did ANY scan show carcinoid tum...

      May 23, 2012 view post
      • bufalowgrl has replied to a post on the message board

        Hi Jenholm25, natbug and LauriG...I am in the same position as natbug. I actually think I have posted my issues before and one of you may have responded. I have had carcinoid symptoms for exactly four years! ( I remember the very first severe flush and accompanying abdominal pain with high heart rate!) Since that time, I have had all the symptoms that Jenholm25 has listed. Vertigo, weakness, weightloss, headaches, R...

        May 07, 2012 view post
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