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carolinak1979's Recent CancerCompass Activity

  • carolinak1979 has created a new message board discussion

    Hello everyone, Sending you all strength for the Christmas season!  I shall try to keep this short- but I would be eternally grateful if anyone could shed any light onto this... I have done 3 rounds of RAI, with my last round being about 6 months ago.  Just recently (about 2 months ago) I have started having "episodes" of extreme malaise; I wake up one morning with extreme nausea, dizziness, weakness in m...

    December 17, 2011 view discussion
    • carolinak1979 has replied to a post on the message board

      Thank you everyone for all your replies- they are greatly appreciated indeed! Glad to be back on the board! I will certainly try the advice given to me and keep you all posted in the hopes that I might helps someone else with the info down the line.  Donna- at the moment my doctor is watching me closely; another round of RAI is out of the question as I have already had 3 rounds and the results have been less th...

      October 09, 2011 view post
      • carolinak1979 has created a new message board discussion

        Hello everyone! I hope this message finds you all as well as can be, surrounded by love, support and strength...I have been following all the various threads if not responding to them- and they have been as always, a tremendous source of strength. A big thank you to you all... I wanted to throw a question out there to the Thyca community in the hopes that someone might have some feedback/answers for me... After a th...

        October 04, 2011 view discussion
        • carolinak1979 has created a new message board discussion

          Hello everyone... I would like to ask whether anyone has any experience or knowledge regarding the risks of multiple rounds of high dose RAI treatments.  I just finished my third round of high dose RAI (7500mc) and am extremely concerned as to what risks this repeated procedure entails.  The first two rounds were of a slightly lower dose but were certainly not considered low doses.  The first two roun...

          June 16, 2011 view discussion
          • carolinak1979 has created a new message board discussion

            A big hello to everyone...I have been away for awhile due to continuing health issues but I have been keeping up to date with everyone here and am always sending out my strength... I shall try to make this quite short and would so very grateful for any feedback at all...After having a TT and neck dissection in Dec. 2010 I underwent first round of RAI.  Tg levels dropped to 5.8 on thyroid meds but went to 22.5 o...

            May 27, 2011 view discussion
            • carolinak1979 has created a new message board discussion

              A big hello to everyone...I have been away for awhile due to continuing health issues but I have been keeping up to date with everyone here and am always sending out my strength... I shall try to make this quite short and would so very grateful for any feedback at all...After having a TT and neck dissection in Dec. 2010 I underwent first round of RAI.  Tg levels dropped to 5.8 on thyroid meds but went to 22.5 o...

              May 27, 2011 view discussion
              • carolinak1979 has created a new message board discussion

                A big hello to everyone...I have been away for awhile due to continuing health issues but I have been keeping up to date with everyone here and am always sending out my strength... I shall try to make this quite short and would so very grateful for any feedback at all...After having a TT and neck dissection in Dec. 2010 I underwent first round of RAI.  Tg levels dropped to 5.8 on thyroid meds but went to 22.5 o...

                May 27, 2011 view discussion
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                About carolinak1979

                Patient
                Thyroid Cancer
                Cancer Nutrition, Diet, Emotional Support, Side Effects, Surgery, After Treatment

                Hello Everyone, my name is Karolina and I am a 32 year old woman living in Athens, Greece. I was recently diagnosed with Papillary Carcinoma which had metastasized to the lymph nodes in my neck. I had a total thyroidectomy and neck dissection on the 23rd of December 2009 and after post operative complications (hypocalcemic shock) was finally discharged 11 days later. After a period of 7 months my Tumor Marker levels showed the cancer was back once again, and I underwent a second round of RAI (Nov.1, 2010). Tumor Marker levels persisted being high, and eventually was told I needed one last round of RAI (April 2011). Am now battling with the effects of RAI yet seem to be stable for the moment despite my TM levels never dropping to "safe" levels. It is a wait and see process. Feeling scared and trying to summon up all the strength I can get! Would love to be there for someone else in need and simple exchange support and strength with others. Feel free to contact me- Take care!

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