casper123

casper123's Recent CancerCompass Activity

• casper123 has created a new message board discussion

  ya had this thing since 99.had mri last sept 5.9 cm it was had one here 3 weeks ago @ 7.2 cm now there gonna maybe go in sometime in nov try to remove some dead tissue size of golf ball.radiation out of the ? to big.chemo dr wanted take me off avastin which we argued about cause said you want me to basicly do nothing.he was all its not working said and you know how could be slowing it down.told him if i listen and it...

  October 05 at 9:01 PM view discussion

• casper123 has replied to a post on the message board

  im talking to a dr on the 24th here about radiation then on 27th see another one about clinical trials.its a iv chemo along with a pill also.the one dont got a name yet the other is dcn1 or something like that.hear anything new let me know thank you people much love to all  

  September 14 at 8:52 PM view post

• casper123 has created a new message board discussion

  hi my last mri was a yr ago showed 5.9 cm.had mr yday showed 7.2 cm dr wanted to take me off avastin till i argued with him for half hr asked him wht so you want to take me off the only thing maybe slowin it down and do nothing.so finally got my way still on it.now i see a radiation dr in 2 weeks.last time had that was 99.brain surg is a option but alot of negitives wit fewer postives so that idea isnt to favorable.j...

  September 13 at 8:06 PM view discussion

• casper123 has updated their status

  or cant walk @ all.if step normal when it kicks in it shakes worse.others got it or when get nervous or mad it seems to kick in.also got it left arm.but not as bothersome cause had it there for 2-3 yrs now.thxs all have great day one luv....

  August 29 at 6:37 AM

• casper123 has updated their status

  hey guys again hope all is well.i was wondering if anyone got spastisity and how it affects them if theres anything for it.mine started last summer but some days i do good others like today it was a pain in the assss.hard to walk.its in my left leg.have had this brain tumor 14 yrs now.so the spas is still kinda new.in public seems to get worse with the leg shaking.almost where got to walk on my toes on my left foot.

  August 29 at 6:34 AM

• casper123 has replied to a post on the message board

  ive been on keppra for yrs now.i like it alot better then some of the oth drugs out there.ive never noticed any side effects from the drug take 1 and half morning 2 @ night 1000 mg tab so 1500 morn 2000 night along with 100 mg lamictil morning 250 night.alot side effects are from my tumor.the anti seiz im on keeps them @ a minnium peop cant see them can just feel it down left arm thru my back left side only lip twitc...

  July 24 at 7:59 AM view post

• casper123 has replied to a post on the message board

  thank you was also on temodar for my olidendroglioma and quit worknin been on avastin ssince nov mri in sept so there is still hope its working  

  July 24 at 7:49 AM view post

• casper123 has updated their status

  national brace and splint.com is the site.like said can lock it so arm is straight in public if you want.instead of up against chest moral booster it is cause young to.just idea for anyone with same predicment...have gn people also good days.

  July 23 at 8:08 AM

• casper123 has updated their status

  but the looks and stares went away peop think just had elbow surgury or accident.anyone with spastisty in arm or leg.and get sick off peop askin ?s or lookin @ ya.i also wear a knee brace sometimes in public when wear shorts cause i limp on my left leg cause tumor on right side.coverin the part that controls arm and leg.just idea if get tired of peop staring.cause arm is bent up by chest or limp.bledsoe brace is name

  July 23 at 8:04 AM

• casper123 has updated their status

  got that brace was talking about.locks in any postion want it to wheather straight to up like in a sling.can also unlock it so move in any postion.very impressed for the price better be.cause i got spastisity in my left arm so dont like to bend stay up by me chest in public.very annoying for myself and selfesteem booster this is can lock it straight if want in public.nervous course first got it.

  July 23 at 7:58 AM