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colonless's Recent CancerCompass Activity

  • colonless has replied to a post on the message board

    I had the whipple procedure 24 yrs ago when i had my colon removed. in 2009 i was diagnosed with rectal cancer so i had that removed. While i was healing, i had a temporary ostomy. My surgeon reccomendaed that i keep the ostomey for life but i couldn't deal with all that it entailed so i had it reversed.  I have had diarhea ever which is managable. I take a lot of immodium and I eat a low residue diet which is b...

    December 07, 2012 view post
    • colonless has created a new message board discussion

      Does anyone else have this? It is a rare hereditary colon cancer. About 2/3 of my family have it. If you do have it, do you also have the desmoid tumors that sometime accompany it? My neice has them and her dr have recommended life-long chemo in small doses to prevent the tumors. They are benign but they are invasive and can effect all of the organs in the abdomen. I am looking for how ppl have been treated for it. C...

      December 05, 2012 view discussion
      • colonless has replied to a post on the message board

        I could have had eloxatin, i know i had two drugs the first go round. I also couldn't drink anything cold. I had to wear glovsz to go in the frig! My onc told me to drink gatorade but i had to nuke it to take the chill off first. Now I can't drink anyting hot! There is no medical reason, i just developed an aversion to warm beverages. So basically i drink ice tea, choc milk and orange gatorade. I am on my 3rd port. ...

        December 05, 2012 view post
        • colonless has replied to a post on the message board

          5-FU has many horrible side effects, but the one that bugged me the most (beside the vomiting and deydration) was my fingers became extremely uncomfortable when i touched anything cold. I literally had to wear gloves if the temp was below 60. I couldn't even touch store doors to open them without experiencing pain.  As for the dehydration, I had to have hydration at home ater every round of chemo or i would beco...

          December 03, 2012 view post
          • colonless has replied to a post on the message board

            Insist on a colonoscopy. Our family has a type of hereditary color cancer. Most of us have had our colons removed in our 20's and 30's. You can live a normal life without a colon. Even if it's Crohns, many ppl have their colons removed. So I say, if your doc won't do a colonoscopy, find one that will.

            November 28, 2012 view post
            • colonless has created a new message board discussion

              3 yrs. ago i had radiation for rectal cancer. It thinned the perianal skin which has made BM's extremely painful most of the time (think razor blades and sitting of shards of glass). Has anyone experienced this and had the skin thicken again or is this a life long condition now? In the meantime, I have read about some remedies for the pain on this website and i have requsted every single one because I am desperate fo...

              November 28, 2012 view discussion
              • colonless has replied to a post on the message board

                I too  lost my appetite and dropped about 30 lbs. My dr. prescribed Remeron, an anti-depressant and within 3 months I had gained 30 lbs. Before that I took a synthetic type of marijuana, i believe it was called Mobic. It gave me the munchies and made me high and tired but i didn't gain enough weight. The Remeron really did the trick.

                November 28, 2012 view post
                • colonless has replied to a post on the message board

                  In Aug., I had 1/3 of my liver removed. It was not a pleasant surgery but I was recovered enough to drive in 5 weeks. I still have a spot on my lung that they aren't sure i n cancer or a shadow from pnuemonia. I have CT scan on 12/14 so maybe I will be getting good newa for a change! At least I will be better prepared fo the possibility of bad news this time.

                  November 25, 2012 view post
                  • colonless has replied to a post on the message board

                    thanks, i will look around.

                    November 06, 2012 view post
                    • colonless has replied to a post on the message board

                      there aren't any ostomy group around here. I live in a very small farming community in central PA. That's why I have decided to see a therapist. I don't worrry about dying, my fear the pain that comes along with it. I lost a young friend to colon cancer last year and he was in loan Kettering in horrible pain. I also watched my mother die from cancer at the age of 38. But luckily, one of my good friends is a nurse and...

                      November 04, 2012 view post
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