cpnmorgan

cpnmorgan's Recent CancerCompass Activity

• cpnmorgan has replied to a post on the message board

  My husband is having so many problems lately. We are past 3 1/2 years and he is beginning to decline. While his MRI was stable a month ago, for the past 6 weeks he has been unable to walk. (And for those wondering, Decadron did NOTHING for him) He is now in a wheelchair and it takes several people to get him out of the house into a car. He has fallen countless times and with the help from my 15 year old son he has he...

  March 22 at 1:03 PM view post

• cpnmorgan has replied to a post on the message board

  I second Avastin for treatment. My husband tolerates it well. Temodar was tough for him but it quit working for my husband and was given CCNU which caused his platelets to get freakishly low and he had a platelet transfusion done. I highly recommend not using CCNU! Nasty stuff! Ask about Avastin. Seems to be the most promising for GBM patients.

  March 12 at 12:27 AM view post

• cpnmorgan has replied to a post on the message board

  My husbands experience with only 2 rounds of CCNU and gama knife have pretty much kicked his butt. He has edema around one area gamma knife was done and this last round of ccnu knocked his platelets to 26k. Platelet transfusion later and not much change. Quality of life sucks at this point. I say second opinion or just stick with Avastin. Radiation just fries your brain and ccnu is nasty crud. My $.02 worth.

  March 05 at 3:54 AM view post

• cpnmorgan has created a new message board discussion

  My husband has recently been diagnosed with this(after another trip to the ER yesterday morning) and they believe a side effect from taking CeeNU(CCNU). Anyone have experience with this and did it eventually go away?

  February 24 at 9:07 PM view discussion

• cpnmorgan has replied to a post on the message board

  I know alot of you have asked if he is on Decadron or why he is not on it. The thing is he hasn't been on it for nearly 2 1/2 years. Occasionally he would take a miligram or or 2 here and there if he was experiencing joint pain or having  a tough time walking, usually after an Avastin treatment. He has right side weakness from where his tumor was removed(left side) and from radiation damage. So his walking is al...

  February 22 at 3:45 PM view post

• cpnmorgan has created a new message board discussion

  And feel like I need to update most of you since many of you responded earlier and sent me private messages. Thank you! These past two weeks have been exhausting. No change at all in his condition. Decadron did NOTHING for him. His vertigo symptoms seem to have gotten worse. Yesterday morning he didn't want to go in for his Avastin treatment. Told me he felt like giving up. He is so tired of living like this. Appare...

  February 21 at 2:14 AM view discussion

• cpnmorgan has replied to a post on the message board

  I really appreciate everyone's responses. I feel like this board is the only place to to turn to right now. We are at nearly two weeks since my husband's issues began and today finally seems like he is turning a corner. He was on 4mg of "Devildron" twice a day for 4 days and of course is now weaning himself off of it. Big sigh. I give up! I finally convinced him that the vertigo like symptoms he has been feeling we...

  February 18 at 6:10 PM view post

• cpnmorgan has replied to a post on the message board

  We made an ER visit yesterday morning due to him doing so badly. My husband was assuming an inner ear infection causing his unsteady "vertigo" like symptoms. His temp was normal. Blood pressure fine. A check of his inner ear showed nothing. Mri was done and no change from mri on Jan. 26 however still seeing edema around one of the lesions/tumor located deep on his right side. 4mgs twice a day of decadron were pres...

  February 13 at 11:34 PM view post

• cpnmorgan has replied to a post on the message board

  I spoke with one of the oncologists today who is seeing my husband at our cancer center. We looked at his MRI and he is seeing edema around one of the new areas, tumor. This has him concerned and leads him to believe this is the reason my husband is having so many issues. He recommended 2mg of Decadron twice a day at least for 5 days to see if things improve. Unfortunately this tumor which is showing up on the righ...

  February 12 at 4:09 AM view post

• cpnmorgan has created a new message board discussion

  My husband is at 3 1/2 years surviving gbm. Recurrence began in June of last year. Gamma knife was done in November on three new spots and original(active) tumor area. On Avastin every two weeks and has done two doses of ccnu. He has also started the Novocure device(9 days). Currently within the last week his health has change drastically. He can barely walk. Is falling down. Weak and extremely fatigued. Last MRI jan...

  February 11 at 3:03 AM view discussion