crob1024

crob1024's Recent CancerCompass Activity

• crob1024 has replied to a post on the message board

  Dear Suz222:  So sorry you are going through this, but take heart that the odds are in your favor to have at least several years following treatment before any possible recurrence.  Not many on this board have grade II.  Your chances of living many years are much better than for a GBM patient. My Husband was diagnosed with an astrocytoma grade II in 1996.  It was watch and wait and take seizure m...

  May 18 at 4:13 AM view post

• crob1024 has replied to a post on the message board

  Hi:  I don't know the whole reason I still come to this site, as my husband has been gone nearly 4 years, but I do seem to like to try to help those who suffer from low grade astrocytomas since most people on this site are dealing with GBM right from the start.  Anyway, I don't know if your friend has had any seizures, but Doug presented with partial complex seizures and was put on Dilantin, which made him ...

  August 21 at 2:21 PM view post

• crob1024 has replied to a post on the message board

  My husband also had a grade 2 astrocytoma and had surgery (90% removed) and then radiation like your friend.  The symptoms you mention she has now are likely radiation related.  Often doctors wait on using Temador with the low grade astrocytomas until and if there are signs of regrowth.  My husband did not take temador until six years after surgery and radiation.  All told he survived 12 years fro...

  August 20 at 11:43 PM view post

• crob1024 has replied to a post on the message board

  Oh, I forgot your other question.  He took medication for seizures right away, which got changed over the years.  The watching and waiting was in terms of surgery. Carol

  July 28 at 9:05 PM view post

• crob1024 has replied to a post on the message board

  He had his surgery at Memorial Sloan Kettering... Dr. Gutten was the surgeon.  We stayed with the doctors there throughout his journey and felt he got very good care.  His first neurologist at MSK has now retired, I think. His second one was Dr. Givrilovic (sp?).  Best of luck to you. Carol

  July 28 at 9:03 PM view post

• crob1024 has replied to a post on the message board

  Paz:  I totally understand your conflicted feelings about leaving a brain tumor untreated while also fearing an operation on your brain.  My husband had a very similar story to yours early on.  He too was diagnosed with a slow growing, low grade (2) astrocytoma (his was in the right frontal lobe).  He too was advised to watch and wait, and he really didn't want to "open up his head" right off. &nb...

  July 27 at 2:39 PM view post

• crob1024 has replied to a post on the message board

  Hi Suz:  My husband was 54 when he was diagnosed with a Grade 2 Astrocytoma (found due to a partial complex seizure).  He opted to watch and wait until it started to enhance which was 4 years later.  We were told that with low grade astrocytomas the tumor is almost a bit amorphous..hard to get it all as there are almost microscopic tenacles hard to detect.  When they did operate they got 90% of it...

  July 01 at 1:20 AM view post

• crob1024 has replied to a post on the message board

  My husband had astrocytoma stage II diagnosed at age 54.  He lived 12 years and had six good years after surgery (his surgery wasn't done until four years after diagnosis as it was too diffuse, not large and didn't enhance, and he was told he could watch it closely and take anti seizure medication) He had radiation after surgery and six good years before he started Temador with regrowth. ...

  June 27 at 1:13 AM view post

• crob1024 has replied to a post on the message board

  Allyson:  You and John definitely have a big week ahead of you with lots of decisions to make once you have been to both hospitals.  One little local knowledge suggestion:  the MSKCC cafeteria has really good food for very little money...they subsidize their food, and relative to any deli or little restaurant in NYC, it is well worth checking out, especially since John may have several different appoin...

  April 30, 2012 view post

• crob1024 has replied to a post on the message board

  AllysonM:  To think that your husband is not even 30 yet, makes your battle all the more poignant.  It is not fair that you and he should have to deal with a brain tumor of any kind.  My heart goes out to both of you.  I know how frightening these early days and choices of treatment are. However, I am hopeful that even without a biopsy, the likelihood that John has a low grade tumor at this point...

  April 27, 2012 view post