dalles11's Recent CancerCompass Activity

  • dalles11 has replied to a post on the message board

    Thanks to all of you for your kind words and widsom.  It does help to have this forum to vent a little.  Today is a new day.  I'm focusing on getting things done around the house and have decided to hold off on cleaning out the rest of her things, I think...I want to get it done but I think I need to take a day off after all the crying yesterday.  My swollen eyes need to recover. 

    January 13 at 3:54 PM view post
    • dalles11 has created a new message board discussion

      It's been 6 months.  I thought that would be long enough to handle going through some old boxes and purses, but I am having such a hard time.  And, she saved everything!   Property tax assessments all the way back to the 70's.  Carbon copies of checks from the 80's on, and, letters I mailed to her when we were apart when I was 15.  That was the hardest.  Reading what my 15 year old ...

      January 12 at 8:45 PM view discussion
      • dalles11 has replied to a post on the message board

        Hi- Your post was well written.  We are 8 1/2 years post the Gr III oligoastrocytoma that should have taken my mom's life.  Her radiation was obviously well targeted, and her drugs worked wonders, but we too are dealing with the terrible after effects of radiation.  She has been in a memory care facility for 2 1/2 years now.  She's almost out of money.  Her care is $8000 month.  You woul...

        June 04, 2013 view post
        • dalles11 has replied to a post on the message board

          I have not posted in a long time, but I sneak back occasionally to read what is happening.  My mom is now living in a closed Alzheimer's unit.  We moved her out of our house about 9 months ago, after the second stroke.  The dementia is stable, and her brain has not had further shrinkage in over a year, but she is a mess.  In a wheelchair most of the time (can stand/pivot), forgets she needs help c...

          June 25, 2012 view post
          • dalles11 has created a new message board discussion

            I have not been on in a while.  Life has been challenging, as usual.  I was in the process of looking for a different place for my mom to live because the 24/7 caretaking was taking a toll on my family.  I was hoping and praying for a sign that it was ok for me to move her out, and she had two small strokes which landed her in the hospital for a few days.  Anyway, the sign was there.  I moved...

            July 21, 2011 view discussion
            • dalles11 has created a new message board discussion

              Mom's keppra level has been too high for two months now.  The reason I had it checked was because she had become more and more sluggish and flat.  It was 78 (according to NO should be between 15 and 45), so we cut the Keppra 500 mg a day.  She seemed to be much better for about a week, then back to the sluggish behavior.  So, had the MRI last Thurs (which was clear) and had the level tested again....

              April 19, 2011 view discussion
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              About dalles11

              Brain Cancer
              Emotional Support, Spiritual Support

              I am the primary caregiver for my mom who struggles with the day to day effects of radiation from her brain cancer (oligoastrocytoma grade III-not operable. Treated with radiation and chemo. Not currently on any chemo) 6 years ago. She moved in with my family in April 2010. She had been doing really great until she had a stroke end of July. She lost a lot of function on her left side. I am just looking for some support and words of encouragement to get me through. It has been a rough journey. UPDATE: Mom passed peacefully July 18, 2014.

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