One patient with glioblastoma still alive nine years later
I would suggest going to the website www.brainhospice.com , that is what I did when we were told and I think it gives you a general idea of what to expect and how to handle it best you can. When we were told to go on hospice they gave my dad 2 to 4 weeks and he actually survived 3 months and we made sure the whole family was around him doing all the things that he loved for these 3 months. It is a very ha...
My father was being treated by Dr. Patrick Wen at Dana Farber and I must say that he is a wonderfull and very caring doctor, he was always available to answer any questions at any time. I highly recommend the Dana Farber team I don't think we could have done this without them, the staff are very caring and supportive.
Dear Karen ,
After 2 years of treatment Chemo/ Radiation Avastin CPT11 the tumor starting growing and my father decided to stop treatment due to the side effects. They told us initially that he had 2 to 4 weeks and he survived 3 months. Similar to you we went on Hospice and got the hospital bed downstairs. He was fine for 2 months still communicating but needed alot of help getting in and out of bed, during th...
My Dad dx 8/09 with GBM. Had surgery/radiation/Temodar + Zactima clinical trial. Clean MRI until April 10 regrowth , started Avastin. Most recent MRI June 1 is stable ... Hoping for a victory
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