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daydreamer19's Recent CancerCompass Activity

  • daydreamer19 has replied to a post on the message board

    Jeff, That is such an awesome and inspiring story! I'm truly glad to hear how well folfirinox worked for your wife and will hopefully work that well for my dad! Thank you so much for sharing! I knew when he was diagnosed that the statistics were terrible, but I also knew there were people with stories of hope and survival! I'm so glad I've joined and I'm so grateful to keep hearing more and more positive outcom...

    February 20, 2013 view post
    • daydreamer19 has replied to a post on the message board

      Oh good. I hope the folfirinox has worked well and slowed if not shrunk the cancer :) I'm not sure as to when to start screening. With most cancers they recommend 10 years before your family members diagnosis. So if your dad was diagnosed at 58 they may recommend 48 but with this cancer it may be sooner. Please let me know how your dads results are :)

      February 20, 2013 view post
      • daydreamer19 has replied to a post on the message board

        I don't know where you live but the GI doctors I work with say that if you have two or more first degree relatives with PC then they recommend and I think insurance will cover yearly endoscopic ultrasounds. Please keep me posted as to how your dad is doing :)

        February 20, 2013 view post
        • daydreamer19 has replied to a post on the message board

          It definitely is making things busy that's for sure. My Dad is only 52 & I think he's doing well managing the psychosocial stuff but I know he's scared and very angry. My Grandpa, his father, died at 48 from what I'm guessing may be a misdiagnosis considering it was 1971. Dad remembers that his Dad complained of back pain, they opened for surgery, called it colon cancer and closed cause it was so widespread. He p...

          February 19, 2013 view post
          • daydreamer19 has replied to a post on the message board

            I'm already struggling with the bitter sweetness but I'm really happy he can be here for it. What's worse is I'm an only child and I desperately want him to meet my babies so I've put a rush on getting pregnant as soon as the wedding is over. No he's not a smoker. He doesn't fit any of the risk factors. Otherwise entirely healthy, worked out everyday and had a healthy weight. Now he's down to 141# from 158# but g...

            February 19, 2013 view post
            • daydreamer19 has replied to a post on the message board

              It is a very cruel disease that's for sure. I'm glad you were able to have your dad at your wedding but I'm sure you want many more years and milestones with him too! Keep your head up. Medicine is advancing each day!

              February 19, 2013 view post
              • daydreamer19 has replied to a post on the message board

                Thank you all so much for the support and for sharing! Just an update dad is on his second cycle if folfirinox, he does this every other week, and he's wiped out but only vomited once on the first cycle and has not had any vomiting with this cycle! No other side effects at this time ! Plus his blood counts stayed good in between cycles! 3 weeks till my big day and I feel that my Dad is doing great!

                February 19, 2013 view post
                • daydreamer19 has replied to a post on the message board

                  I'm happy to hear of the better results with the change in chemo. My dad has 4-5 masses in the liver that the surgeon could visualize and he had his first cycle of folfirinox thus week. I'm hopeful this will provide us with just as good results! Keep us posted!

                  February 08, 2013 view post
                  • daydreamer19 has changed their profile photo
                    February 06, 2013
                    • daydreamer19 has replied to a post on the message board

                      Not to be a downer but my dad was thought to have stage 1 pancreatic cancer, PET scan was negative for any mets. 3 weeks later he went in for the whipple procedure and was found to have multiple 1 cm masses on his liver. I'm a nurse and rely on diagnostic testing but thus far the CTs have been more helpful than that PET scan.

                      February 06, 2013 view post
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                      About daydreamer19

                      Caregiver, Nurse
                      Pancreatic Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet, Emotional Support

                      I have been thrown into this disease from both a nursing standpoint and now a personal standpoint. My father, age 52, and otherwise completely healthy, was diagnosed with pancreatic cancer in nov/dec of 2012. Originally though to be caught early, attempted the whipple only to find multiple liver masses. Dad started Folfirinox Feb 4, 2013. I'm just looking for support, information and hope.

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