One patient with glioblastoma still alive nine years later
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by doingfine - March 23 at 3:31 PM
I am an 11 year survivor. I had chemo, radiation and surgery. It was all worth it. Tough first year, but after the last 10 of feeling very good and enjoying life, I would do it all over again. Yes, being very strong is important. I was in very good physical shape and had been working out at a gym 3 days a week. I was 58. My prayers go out for your hubby and your family, but with Stage 2, his chances are excellent. Very excellent. Keep encouraged. If they suggest feeding tube while he is in treatment, be sure to go with it. It is temporary nourishment until he is cancer free. Yes, I was toldI am totally cancer freeand that diagnosis came 5 years after the surgery, however, I knew I was cancer free before that. He will be cancer free also. Best wishes.
by doingfine - February 04 at 8:46 PM
I could not take Nexium. I don't recall pain, but I had terrible stomach issues. There are lots of other meds so talk to your doctor. Prilosec works well for me and I use the generic brand called Omeprazole. Best wishes.
by doingfine - January 15 at 2:25 PM
I am on Prilosec and I watch what I eat. Acid reflux is still a problem sometimes but I try to avoid foods that make it worse. Everyone is different. Peanut butter is a real offender for me and I have to be careful which brand of coffee I drink. Other than that, I eat well.
by doingfine - January 15 at 2:19 PM
The PET scan will tell the extent of the cell involvement and whether there is cancer present. If, after the PET scan, the doctor schedules you for the treatment, go with it. I wish I had known I had Barretts before it went malignant, but I had no idea GERD would cause EC. Sounds like you are getting good treatment. You will learn more as you go forward and the doctor sees the results of the PET. Oh, they took out all but about 1-1/2 inches of my esophagus and 25% of my stomach. That was in 2004. Life is still good after treatment and surgery. Best wishes and prayers.
by doingfine - January 15 at 1:48 PM
I'm right here with you, my beloved husband passed into the arms of Jesus on November 8th, 2014. I feel everything you are feeling. We were sweethearts and next door neighbors all our lives. I was 13 when we began doing thing together, like just taking a walk. By 15 I was smitten and he and I could hardly wait until I turned 18 to be married. We were also inseparable and he was my caregiver when I went through the EC. I was supposed to go first! We celebrated 51 years and on our 51st anniversary we learned he had lung cancer. That was October 18 and by November 8th he was gone. I still talk to him and kiss his photo also. Yes, if I could only feel his lips on mine one more time........but that would not be enough either. I only ask that we spend eternity together when I get there.
There is nothing comforting the huge hole in my chest where my heart used to be and I am a very dedicated Christian, so I find the comfort I longed for is not there yet. The one thing I have a lot of isContentment. I don't do a lot. My heart is also broken and if you want to talk, send me a private message and we can try to support one another.
by doingfine - January 15 at 1:38 PM
I am glad you are going through with the dreadded surgery. Mine was 10 almost 11 years ago and I was 58. Being 60, you will have many, many more years of a good quality of living. I will not lie.....the first year after surgery is very tough, but I know you will get through it with the help of everyone here. You have a lot to look forward to so "fight with all you have" to get through this and by next year this time......actually, by Thanksgiving of this year, it will all be behind you and you will be well mended. God bless. You will get lots of strength from the good folks on this board.
PS. It is a good time to have it done because Feb. & March are dreary months and by April you will feel like getting out to walk and do things outside. My surgery was in May and by end of July I was up to walking 5 miles a day and taking some nice day trips with my hubby. Had side effects, but no cancer cells anywhere because they threw out my disease ridden esophagus.
by doingfine - January 14 at 10:43 PM
You struck a nerve so I am going to post. It bothers me that lots of ads are on TV about smoking causing EC. MY EC was also caused by GERD and only GERD. If I had known about EC as a result of acid reflux I probably would have been treated long before it turned to cancer and would not have had to go through all I did. I believe the ads are good to warn people about smoking, BUT they should also direct people taking Tums and all those acid home remedies that acid reflux is a big cause of EC also. Thanks for letting me vent.
by doingfine - January 14 at 10:38 PM
I agree. Get a second opinion at a specialized cancer facility if possible.
by doingfine - January 07 at 12:59 AM
I was stage 2b in 2004. There was a t number also, but I would have to go upstairs to look it up. My tumor was not through the wall and had no mets. I am still here and strong and in good health. Still have after effects of the chemo/radiation and surgery, but I can deal with it. Certain foods cause too much acid reflux and bile. I still have neuropathy in my feet, but it is very tolerable. You need to be prepared that this is a long journey. From my first surgery when I got the port and a feeding tube until the feeding tube was out was from early Feb. 2004 until Thanksgiving of 2004. By Thanksgiving 2005 we were on our way for a 7 week trip through 22 states having a great time. Keep tuned to this message board because you will need the tips. It will be okay and you will have lots of friends here to help you.
by doingfine - December 29 at 8:05 PM
I was 58 when I went through it. I had the old fashioned kind with 3 incisions, called McKewon (?) Surgery and my surgeon told me I was a slow poke in getting off the feeding tube, etc.
That was 10 almost 11 years ago. It was worth it because my hubby and I had wonderful times after that. 7 weeks on the road touring the U.S., swimming, fixing the home, mowing grass and enjoying our grandchildren. I exchanged 8 months of misery for 11 years of great times. Have side-effects, but I have my life.
Oh, I was scared to death also. MY surgeon told me she would give me enough drugs to get through it. Glad she did. Best wishes as you go forward.
My EC battle began in 2004. Still going in 2014.
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