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doingfine's Message Board Messages

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RE: Life after an Esophagectomy

by doingfine - June 27 at 8:35 PM

Aoife,

So nice to see your post.  Doesn't seem possible your first baby is now 5.  Glad you are doing well and pray you will see your grandchildren born also.  Live Long, Love Life, Laugh Lots!  I am now 11+ years post surgery.  Lost my husband to lung cancer last November so all the yard work, etc. is done by me.  Must be I am really strong.  For all of you EC sufferers out there.  Hang in there....as Aoife said...It does get better.

I am also sorry to learn about your dad's difficult time after surgery.  Everyone is different, but I was a very slow healer and I had those symptoms.  Hiccups, nausea, vomiting, dumping, mucous, coughing and dry heaves.  At one month, this is still very soon.  It took me 8 months to get to a point of feeling good.  I am now 11 year survivor headed for 70 in July.  Hang in there.  It should get much better in another month and then better in another month after that.

I am also 11 years past surgery and treatment.  I have a great appetite and have gained lots of weight.  Some foods still bother me, but I know what to eat and how much.  YES,  I actually get hungry and enjoy it.  Give it one more year and you will not believe the difference.

I had irinotecan/cisplatin chemo concurrently with radiation.  It is very rough.  Perhaps the doctor does not think your husband will survive having them both at once.  The targeted chemo is the latest.  My doctor is very encouraged with these new treatments. http://www.cancercenter.com/  These hospitals do use the new techniques. 

RE: Chemo or No

by doingfine - May 04 at 8:10 PM

I had the McKewon surgery 11 years ago.  I had chemo and radiation before surgery and was Stage 2B.  My tumor was totally inside the wall of the esophagus and had not spread anywhere else.  I don't know where you live, but second opinions are great.  A good doctor will not be upset by your second opinion either and then you will have real peace of mind. http://www.cancercenter.com/  These folks give second opinions.  A friend of mine went to Phila CTCA and was really happy she did.  Best wishes.

RE: Diet

by doingfine - March 23 at 3:31 PM

Hi  Amie,

I am an 11 year survivor.  I had chemo, radiation and surgery.  It was all worth it.  Tough first year, but after the last 10 of feeling very good and enjoying life, I would do it all over again.  Yes, being very strong is important.  I was in very good physical shape and had been working out at a gym 3 days a week.   I was 58.  My prayers go out for your hubby and your family, but with Stage 2, his chances are excellent.  Very excellent.  Keep encouraged.  If they suggest feeding tube while he is in treatment, be sure to go with it.  It is temporary nourishment until he is cancer free.  Yes, I was toldI am totally cancer freeand that diagnosis came 5 years after the surgery, however, I knew I was cancer free before that.   He will be cancer free also.  Best wishes.

RE: Nexium and side effects

by doingfine - February 04 at 8:46 PM

I could not take Nexium.  I don't recall pain, but I had terrible stomach issues.  There are lots of other meds so talk to your doctor.  Prilosec works well for me and I use the generic brand called Omeprazole.  Best wishes.

RE: Dazed and Confused....My Story

by doingfine - January 15 at 2:25 PM

I am on Prilosec and I watch what I eat.  Acid reflux is still a problem sometimes but I try to avoid foods that make it worse. Everyone is different.  Peanut butter is a real offender for me and I have to be careful which brand of coffee I drink.  Other than that, I eat well.

The PET scan will tell the extent of the cell involvement and whether there is cancer present.  If, after the PET scan, the doctor schedules you for the treatment, go with it.  I wish I had known I had Barretts before it went malignant, but I had no idea GERD would cause EC.  Sounds like you are getting good treatment.  You will learn more as you go forward and the doctor sees the results of the PET.  Oh,  they took out all but about 1-1/2 inches of my esophagus and 25% of my stomach.  That was in 2004.  Life is still good after treatment and surgery.   Best wishes and prayers.   

RE: 4 months 1 week

by doingfine - January 15 at 1:48 PM

Cyndi,

I'm right here with you, my beloved husband passed into the arms of Jesus on November 8th, 2014.  I feel everything you are feeling.  We were sweethearts and next door neighbors all our lives.  I was 13 when we began doing thing together, like just taking a walk.  By 15 I was smitten and he and I could hardly wait until I turned 18 to be married.  We were also inseparable and he was my caregiver when I went through the EC.  I was supposed to go first!   We celebrated 51 years and on our 51st anniversary we learned he had lung cancer.  That was October 18 and by November 8th he was gone.   I still talk to him and kiss his photo also.  Yes, if I could only feel his lips on mine one more time........but that would not be enough either.  I only ask that we spend eternity together when I get there.

There is nothing comforting the huge hole in my chest where my heart used to be and I am a very dedicated Christian, so I find the comfort I longed for is not there yet.  The one thing I have a lot of isContentment.  I don't do a lot.  My heart is also broken and if you want to talk, send me a private message and we can try to support one another.  

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About doingfine

Survivor
Esophageal Cancer

My EC battle began in 2004. Still going in 2015.

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