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donsmrs's Recent CancerCompass Activity

  • donsmrs has replied to a post on the message board

    Excellent advice. Also, there is a clinical trial for the Anti PD-L1 going on at NIH. Piperpilot on the CancerCompass web site is in the trial and giving us near-daily reports. I would encourage the mother of the 31 year old to try to address piperpilot on the current web site or join Smartpatients as was suggested by another responder and look for him there (Neil is the name to seek). He's a really savvy f...

    Monday at 2:54 PM view post
    • donsmrs has replied to a post on the message board

      Hypothyroidism IS frequently a factor in both scalp hair loss and eyebrow loss near the temple areas. There are new testing standards for the TSH and Free T3 and Free T4, so you might  find that you need some synthroid, where 10 years ago, with the same test result numbers, you didn't. In my case, I found out I was hypothyroid 2 years before I got breast cancer. But, after diagnosis, surgery andcompleting c...

      March 21 at 6:02 PM view post
      • donsmrs has replied to a post on the message board

        When I was getting chemo for breast cancer, my husband only drove me to the first appointment for the Adriamycin and Cytoxan and again the first appointment for the 12 weeks of Taxol. I told the onc that because my husband was a fully-employed pilot, I would have to drive myself. Then we reviewed the drugs needed to prevent reactions, added Zofran and eliminated the Emend, (caused terrible, unrelenting headaches for ...

        March 20 at 12:42 PM view post
        • donsmrs has replied to a post on the message board

          Absolutely! One of the homeopathis I used while getting the first 2, (Adriamycin, Cytoxan) of trio (and Taxol) was for "chemo throat." I was sure it was strep, because of how much it hurt. But the onc said it was from the chemo. He wanted to prescribe Magic Mouthwash and I said no, no extra drugs and I asked didn't he know of anything more natural?  (He was born and raised in China, so of cou...

          March 14 at 4:59 PM view post
          • donsmrs has replied to a post on the message board

            I agree. Was very angry myself, but only because I had breast cancer, so I channeled my wrath to the cancer. Each day, I got up, got dressed, put on make-up, and did everything in my power to ignore the cancer, and live normally. On the chemo days, those were treated as necessary evils, and I tried to keep those days as positive as possible. Many drugs to control side effects have their own side effects, and whe...

            March 13 at 2:57 PM view post
            • donsmrs has replied to a post on the message board

              Excellent advice. Would add that if you could get the wife to channel the rage in the proper direction, it would possibly help her health and everyone else. I am also a Type A, so I controlled every aspect of my care that I could, reading all research and info as was available, and refused to allow anyone else to make those decisions except my doctors. My husband was wise enough to just step back and not second-guess...

              March 13 at 3:10 AM view post
              • donsmrs has replied to a post on the message board

                Agreed. But, on rare occasions, another cancer, one that does show up well on PET scans might develop.  Peace of mind from ruling this out or having an early detection, might be worth the PET scan effort.

                March 02 at 8:45 PM view post
                • donsmrs has replied to a post on the message board

                  Try Amazon or ebay for unrefined shea butter, for the best price. A pound will last about 9-12 months.

                  February 23 at 3:23 PM view post
                  • donsmrs has replied to a post on the message board

                    You are welcome! Just remember that from the second you see pink areas on hands or feet, you need to apply the stuff every night of the "on" cycle even if the reddened spots never progress. Otherwise, instead of preveting the proble, you will probably be chasing it.  All the best! donsmrs

                    February 16 at 9:53 PM view post
                    • donsmrs has replied to a post on the message board

                      Hogwash. Hubby has clear cell and has had 2 PET scans. He has not had any IL-2 however. But han't see any medical reason why that would interfere with a PET scan. Ask again or ask somewhere else! donsmrs

                      February 16 at 4:37 AM view post
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