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donsmrs's Recent CancerCompass Activity

  • donsmrs has replied to a post on the message board

    Ask about rinsing the veggies in  a mild bleach solution. We had to do that when we lived overseas and the water was not safe to drink (and the farmers used night soil). Nobody got sick from that. Another consideration is that the rules are not one-size-fits-all. I read that I was to avoid seafood when I was getting chemo for breast cancer. So, I asked the oncologist (not the nursing staff) and he said as long a...

    July 23 at 7:47 PM view post
    • donsmrs has replied to a post on the message board

      Suspect that Interferon must have had some positive benefit for you to be managed on Sutent for so long at such a low dose.

      June 24 at 10:19 AM view post
      • donsmrs has replied to a post on the message board

        Our onc says that drugs like ProCrit (erythropoietin) given to stilulate bone marrow to make more blood, actually feeds RCC tumors in particular and makes them grow, bigger and faster. It's in the disclaimers that it can do this. So, if you are offered an erythropoietin type of drug for your anemia, plan to quention the onc about it, in detail. My husband only gets transfusions. Which have their own set of ...

        June 24 at 10:17 AM view post
        • donsmrs has replied to a post on the message board

          Did you have any problems with anemia as a result of the Sutent? That's what finally ended almost 2 years on Sutent, for my husband, so am curious. Only the 50mg. dose worked for him and caused much anemia.

          June 24 at 1:50 AM view post
          • donsmrs has replied to a post on the message board

            Excellent advice. Also, there is a clinical trial for the Anti PD-L1 going on at NIH. Piperpilot on the CancerCompass web site is in the trial and giving us near-daily reports. I would encourage the mother of the 31 year old to try to address piperpilot on the current web site or join Smartpatients as was suggested by another responder and look for him there (Neil is the name to seek). He's a really savvy f...

            April 14 at 2:54 PM view post
            • donsmrs has replied to a post on the message board

              Hypothyroidism IS frequently a factor in both scalp hair loss and eyebrow loss near the temple areas. There are new testing standards for the TSH and Free T3 and Free T4, so you might  find that you need some synthroid, where 10 years ago, with the same test result numbers, you didn't. In my case, I found out I was hypothyroid 2 years before I got breast cancer. But, after diagnosis, surgery andcompleting c...

              March 21 at 6:02 PM view post
              • donsmrs has replied to a post on the message board

                When I was getting chemo for breast cancer, my husband only drove me to the first appointment for the Adriamycin and Cytoxan and again the first appointment for the 12 weeks of Taxol. I told the onc that because my husband was a fully-employed pilot, I would have to drive myself. Then we reviewed the drugs needed to prevent reactions, added Zofran and eliminated the Emend, (caused terrible, unrelenting headaches for ...

                March 20 at 12:42 PM view post
                • donsmrs has replied to a post on the message board

                  Absolutely! One of the homeopathis I used while getting the first 2, (Adriamycin, Cytoxan) of trio (and Taxol) was for "chemo throat." I was sure it was strep, because of how much it hurt. But the onc said it was from the chemo. He wanted to prescribe Magic Mouthwash and I said no, no extra drugs and I asked didn't he know of anything more natural?  (He was born and raised in China, so of cou...

                  March 14 at 4:59 PM view post
                  • donsmrs has replied to a post on the message board

                    I agree. Was very angry myself, but only because I had breast cancer, so I channeled my wrath to the cancer. Each day, I got up, got dressed, put on make-up, and did everything in my power to ignore the cancer, and live normally. On the chemo days, those were treated as necessary evils, and I tried to keep those days as positive as possible. Many drugs to control side effects have their own side effects, and whe...

                    March 13 at 2:57 PM view post
                    • donsmrs has replied to a post on the message board

                      Excellent advice. Would add that if you could get the wife to channel the rage in the proper direction, it would possibly help her health and everyone else. I am also a Type A, so I controlled every aspect of my care that I could, reading all research and info as was available, and refused to allow anyone else to make those decisions except my doctors. My husband was wise enough to just step back and not second-guess...

                      March 13 at 3:10 AM view post
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