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donsmrs's Recent CancerCompass Activity

  • donsmrs has replied to a post on the message board

    Well, when my GYN wanted to do my first ever D & C in 1994, I already had endometriosis, my husband and I were enjoying the freedoms of nearly grown kids, so we didn't want any more babies, and I was REALLY tired of the cramps. I told my GYN, "You only get to put me under one time. So, while you are in there, I want you to clean house, including the ovaries. Otherwise we face serial D&C's and as you know, we ...

    February 16 at 4:15 PM view post
    • donsmrs has replied to a post on the message board

      It is also worth knowing that if your BC was estrogen receptor positive, you should avoid anything high in phytoestrogens, such as soy, cranberries in any form, prunes and prune juice, red grapes and any and all resveratrol products. Read those OTC labels carefully, too. I was just prescribed a product to help reduce scarring after aq non-cancer surgery. I take prescription B12, prescription D3, and my BC was ER+. Th...

      February 14 at 7:14 PM view post
      • donsmrs has replied to a post on the message board

        Great advice. Evista used to cause so much pain I hurt all day, so I got my family doc to put me on another drug to protect my bones since I refused estrogen. Had I known that Claritin and Clarinex (without the D) taken daily would address the neuropatic pain, I might have stayed on Evista and maybe prevented BC. I take Arimidex. I get a Prolia injection every 6 months to prevent ostoporosis and I take calcium and a ...

        February 13 at 6:38 PM view post
        • donsmrs has replied to a post on the message board

          Cranberry products are the next highest to soy in phytoestrogens, and prunes and red grapes are next. That used to put my CA27-29 in the 35 range until I read up. So, no cranberry or prune products and I raraly eat grapes or drink much wine. Latest research from 2014 says that if your CA was Estrogen positive, then soy, which is high in phytoestrogens, will raise your estrogen level and cause trouble. I would say, wi...

          February 12 at 3:55 PM view post
          • donsmrs has replied to a post on the message board

            I agree. My onc was talking about 5 years on Arimidex but the surgeon said some of his BC patients say on it for life. I have learned to control all the SE's  so, if it means no more chemo or anything else, I am good with that.

            February 12 at 3:48 PM view post
            • donsmrs has replied to a post on the message board

              If you are in the US, the best place we ever found for that was Mayo Clinic, Jacksonville. Their GI surgeon, Dr. Horacio Asbun, is one of the top 4 in the country, and he saved my husband's life, and the life of a good friend of ours. Any of your doctors could call Mayo-Jax and get a referral appointment but if you get an appointment there (or any Mayo), before you go, be absolutely sure it is for the surgi...

              January 22 at 4:01 PM view post
              • donsmrs has replied to a post on the message board

                Mine grew back, then a year later, it started falling out again. Lots of it. I suspect I have female pattern baldness, and it comes from taking Arimidex. I finally got a consultation with a PhD nutritionist who put me on additional vitamins. He said 3 more months on these, and the hair should be better. I can't tell yet except it did quit falling out on clumps, after 2 months on it. If it does grow back, I will share...

                January 18 at 11:07 PM view post
                • donsmrs has replied to a post on the message board

                  Have you had a nerve block done at a pain management center? Over time, as I understand it, the effects of successive block injections become permanent. Best part it, it has no effect on the CNS, unlike pain medications and medical-grade substances.

                  November 06 at 12:03 PM view post
                  • donsmrs has replied to a post on the message board

                    My oncology RN told me, at the onset of my chemo that their patients, for wahtever the reason, seemed to have had much less neuropathy by taking Claritin, the plain 24-hour type, every day. Well I was already on prescription Clarinex every night. Had no neuropathy. To test it, I quit taking the Clarinex for about 3 days. Foot tingling becan after the first 24 hours. I notice that Arimidex seems to produce t...

                    August 05 at 12:17 PM view post
                    • donsmrs has replied to a post on the message board

                      Not sure if this will work for you or not, but seems to work for me. I use "One," a hair cleanser for straight hair (there is also one for curly hair) which I bought for around $13.00 a bottle at Sally's. ("One" is Sally's Beauty Supply's answer to the WEN products). I only wash my hair twice a week, and "lather," up twice when I do it. Then I follow with  a nickel-sized daub of Original Argan Oil...

                      August 04 at 2:59 PM view post
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