donsmrs

donsmrs's Recent CancerCompass Activity

• donsmrs has replied to a post on the message board

  Hi PiperPilot!   Just FYI our onc i9s starting to get on board about sugars feeding cancer cells.    Hubby just had massive liver resection, a Roux En-Y, gall bladder removal, small intestinre resection and removal of  a mass from the diaphragm,. It was surgery with, "curative intent." He's doing great. When we get home, I will reread the material you sent to me, to see if we can't slown down th...

  May 09 at 4:49 PM view post

• donsmrs has replied to a post on the message board

  Forgot to add the Prevedent. Spouse only uses that when his mouth has any open skin over the jaw bone, and only until it heals over again. Pronamel seems to be enough otherwise.  There is some published link between fluoride overexposure and something else worse than tooth decay, I forget what it is, but it is why we went to Pronamel for routine brushing. Also, ACT now has a rinse with Bioten...

  April 05 at 12:11 PM view post

• donsmrs has replied to a post on the message board

  Dear Bob,   Have to agree with everyone who responded: Biotene will help a lot, especially the rinse. I want to add that to keep my husband comfortable at night, we finally started the Sutent at 0900 each morning, after the first two cycles. The drill was for him to take his Synthroid at 0700, his BP meds at 0730, his Omeprazole at 0815,  breakfast at 0845 and the Sutent at 0900, and whatever Gas...

  April 01 at 7:39 PM view post

• donsmrs has replied to a post on the message board

  Still awiating the path report, but this time, he didn't say no.

  March 14 at 1:49 AM view post

• donsmrs has replied to a post on the message board

  Well,  the Mayo surgeon now hopes to operate when before he said there was nothing else he could offer. BUT,  we await a mediastinal bioipsy tp allow the liver resection.  Bar nonhe, Sutent, for us, has been ther BOMB! Hope this helps!

  March 14 at 1:44 AM view post

• donsmrs has replied to a post on the message board

  Dear Charlie,   The hand-outs about chemo and hand-foot syndrome all support the sock thing and not going barefoot or wearing flip-flops. Agree fully that keeping the area well-lubricated is a big deal. Think it boils down to whatever works for you. I also think that good massage along with a good moisturizing cream or ointment on any reddened area at least twice a day will increase blood circulation to that ar...

  March 08 at 9:58 PM view post

• donsmrs has replied to a post on the message board

  Hi AyJayBeeGee,    Trigger joints are usually from arthritis which Arimidex can certainly aggravate/ exacerbate. But even people who don't take Arimidex get trigger joints with some forms of arthritis. The only real fix I know of is an outpatient surgery to release/ relax the tendon. It's less of a big deal than the surgery for hammer toes, but the surgery doies need to be done by an orthopedic surgeon wit...

  February 28 at 9:10 PM view post

• donsmrs has replied to a post on the message board

  Dear Clair,    RCC scatters with the slightest provocation, including a biopsy. I compare it to a dandelion blossom gone to seed in a slight breeze. Our oncologist was against any biopsy for that reason.     An example of the dandelion concept was that at a nationally-known facility, and without our surgeon's knowledge, the resident ordered a liver biopsy on my husband. We let it happe...

  February 18 at 5:30 PM view post

• donsmrs has replied to a post on the message board

  Just what I was going to say. I had 4 unopened syringe packages of medication to raise the WBC count, when I finished my own chemo. Each one was worth about $460, and I gave those to my onc for patients who just didn't have the funds. Not every doc wants to do this, but until future, ill-conceived legislation wrecks it for them, docs still do have the right to directly dispense medications from their offices.&nb...

  February 06 at 6:17 PM view post

• donsmrs has replied to a post on the message board

  Thank you! Will keep you posted! Greatly appreciate your response.

  February 05 at 5:44 AM view post