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douglas135's Recent CancerCompass Activity

  • douglas135 has replied to a post on the message board

    I understand; they forgot to tell me of the possibility that my immune system could be damaged from chemo.  I was sick for 8 months after chemo, coughing and fevers along with hospital stays of 4 days at a time.  They could not figure out what was wrong with me.  Finally, my oncologist took a much closer look.  He found an antigen that had passed through my immune system; it was the same bacteria ...

    June 11 at 12:38 AM view post
    • douglas135 has replied to a post on the message board

      Hi:  I am still doing well.  Have had to go in monthly for immune system therapy; but, that is not so bad really.  The increase in exercise and careful eating habits have truly helped.  My routine of taking vitamins also is a good idea.  Thanks for asking, I am enjoying life one day at a time.  Some fatigue issues have come up, I sought help for that. 

      June 10 at 7:35 PM view post
      • douglas135 has replied to a post on the message board

        Hello:   I did not like the chemo treatments at all, a very difficult period for me.  My experience got worse after the treatments however.  There was a bacterial infection I picked up and nobody could figure out what was wrong with me.  I had lung specialists, 4 week-long stays in the hospital, scopes down my nose, several other specialists--all the way up to the infectious disease doctors; it t...

        May 24 at 7:38 PM view post
        • douglas135 has replied to a post on the message board

          I have been stable now for almost two years.  the chemo treatments messed up my immune system however, it took 8 months of being sick for the doctors to finally figure out what was wrong with me.  After all that, I got IVIGG treatments monthly which has helped me keep from catching virus related illnesses.  Currently, i have been diagnosed with prostrate cancer and am planning on getting that treated. ...

          September 15 at 5:46 PM view post
          • douglas135 has replied to a post on the message board

            This has been nice to hear about, thanks for submitting your personal story.  I have been doing pretty good lately too, I have luekemia and went through a 6 month program of chemo treatments.  It has been 6 months ago since the last treatment, and I have 98/% remission.  So, there is hope in these treatments, who knows: maybe a new therapy will come along and make a cure possible.  I am willing to...

            January 18, 2013 view post
            • douglas135 has replied to a post on the message board

              Yes, I am lucky to have had many people praying for me.  I know it has helped immensly.  The therapies have all been discussed with a real oncologist before any trial, that is a good suggestion you made.  I enjoyed hearing about some that are new to me, that gives me more to ask about.  Who knows, maybe there will be some progress made in B-cell lymphatic luekemia through alternative treatments. &...

              January 11, 2013 view post
              • douglas135 has replied to a post on the message board

                Thanks for writing this educated perspective, I will look into the suggested alternative treatments.  this comes across as very encouraging, I am always hoping for some breakthroughs, before it is too late.

                January 11, 2013 view post
                • douglas135 has replied to a post on the message board

                  I get cramps in my legs frequently, it really hurts some times.  This is real hard to stop, I have to roll out of bed at times and stretch my feet in the opposite direction to get the pain to stop, very inconvenient.  Not sure what this is from, but your message makes me think it could be related to CLL.  I asked about the drugs I take, but there is not supposed to be any side effects from the therapy ...

                  January 10, 2013 view post
                  • douglas135 has replied to a post on the message board

                    Good luck with the treatments, my friend had several rounds of radiation treatment for breast cancer.  She is keeping a good attitude and full of faith, that makes things better for herself as well as those around her.  Hard to imagine that a person in such a tough spot can still laugh and be nice.  She has set the example for me to follow as I also have this journey to endure (luekemia).  So far,...

                    January 10, 2013 view post
                    • douglas135 has replied to a post on the message board

                      I took chemo for 6 months on a 3 day/month injection (full days); it did reduce my lymphnodes in 98% of the problem areas.  My immune system was compromised so much that I picked up a rare antigen that took 9 months to discover and start treatment.  I was in the hospital 4 times and could not get an answer to what was wrong with me, until my oncologist located the antigen.  I am on a 4 month program to...

                      January 10, 2013 view post
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                      About douglas135

                      Patient
                      Lymphoma, Non-Hodgkins Lymphoma

                      I have been going along ok so far, stage 4 is what I have been told. Some bumps in the back of my neck have been appearing and not going away. Most of the time I am able to get through days without too much trouble, still scared though

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