One patient with glioblastoma still alive nine years later
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by drea1409 -
My dad was diagnosed with Stage III RCC (clear cell) after having his kidney removed a week ago. There were only a handful of microscopic cancer cells in his renal vein. The urologist who did the surgery said it's quite possible that those cells were moved there when the kidney was removed, which really would make him a Stage I due to the size of his tumor--5.5 cm. He was asymptomatic and found this accidentally (thankfully!).
His urologist said he's not a typical Stage III patient, but he offered him the Assure clinical trial. My dad is weighing his options at this point--trying the drugs and/or going the more holistic route--nutrition, exercise, and acupuncture.
There is a lot of information out there about the drugs, but I'm wondering if any of you have tried nutrition specifically for kidney cancer? My dad is especially interested in the fact that cancer feeds on sugar. He is cutting back on eating sugar and is interested in hydrazine sulfate as well. Any thoughts? We are in a stage of gathering information and research before his next meeting with the urologist and oncologist before April 24.
Thank you for any help, links, etc. you can provide! :)
My dad was diagnosed with RCC (clear cell), Stage III, Grade II on Wednesday. This came as a bit of a suprise as his tumor was 5.5 cm and was described as "well-encapsulated" and "away from the renal vein" due to his CT scan. He had a radical nephrectomy through the laparoscope. According to the pathology report, there were a few microscopic cells in the renal vein that took his supposed Stage I RCC to Stage III. The urologist who did the surgery said that there have been instances when the kidney and interior tumor are squished when removed through the small incision on the belly; as a result, some of the cancer cells come off and end up in the nearest exit--the renal vein.
So...my dad is being treated as a Stage III case although he's been told he doesn't fit the profile. The urologist and oncologist he'll be working with are offering up a clinical trial of Sutent/Nexavar/placebo. I think it's the Assure trial. He is considering trying this, but he's also thinking about looking into a holistic MD who would work on nutrition with him.
What are your thoughts? I see Sutent and Nexavar on this message board, but I'm not seeing much about nutrition and diet. I'm curious to see what research, personal stories, info all of you have to share. I know his doctors will push the drugs, while the holistic doctor he consults will push the nutrition and herbs. He is weighing all of his options before making a decision about how to move forward.
Thank you for your help and be well!
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