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elfprincess's Recent CancerCompass Activity

  • elfprincess has replied to a post on the message board

    I would contact your pharmacy.  They might be able to help you.  There are many regulations out there for prescription medications so donation might not be an option.

    August 08 at 12:37 AM view post
    • elfprincess has replied to a post on the message board

      Definitly call your insurance company to see if you need a referal or another doctor near by.  I tried a neurosurgeon locally first but was not pleased with her manner.  She didnt let us ask questions and left us sitting staring at the 1st mri for over 30 minutes before she came in to talk to us about it.  Her office then dropped the ball with my insurance company while trying to set up a functional mr...

      August 08 at 12:33 AM view post
      • elfprincess has replied to a post on the message board

        The waiting game sucks.  I was diagnosed just a month shy of 2 years ago with either a grade 2 astro   or oglio.  Unfortunately mine is in the motor scensory area of the brain so surgery is not an option unless I want to be paralyzed on my right side.  Would need to have a biopsy to determine exact diagnosis, but still risky.  I started out with mris every 3 month and due to scheduling errors...

        August 08 at 12:06 AM view post
        • elfprincess has replied to a post on the message board

          First of all how old is your son?  If he is at the age that he can decide which is more important to him: quantity over quality?  Then that is a decision HE needs to make.  I know it is frustrating as a parent to have to watch them make a decision like that, but let me tell you something.  Having to be the one to make that decision for yourself and adding on the expectations of parents and other l...

          August 05 at 7:53 PM view post
          • elfprincess has replied to a post on the message board

            I am sorry to hear about your husband's diagnosis.  I want to pass a long something that I read about here on this message board.  It is something that I wish I would have known about 9 months ago when I got my diagnosis.  It is a book called "Navigating Life with a Brain Tumor"  it is available through amazon.com or B&N.com.  It answered a lot of questions and gave some very helpful info...

            June 03, 2013 view post
            • elfprincess has replied to a post on the message board

              I go to Mayo in Rochester for my brain tumor and I have been happy with my doctors.  My problem is that there are some office staff in the neuro department that couldn't care less.   I also have to disagree with your statement about "if you have money you can get anything, and you can be cured of this dreaded 'c word'.  Otherwise, you're a nothing to them, and they would prefer you just 'go away'". &n...

              June 03, 2013 view post
              • elfprincess has replied to a post on the message board

                I did end up going to an estate lawyer as well.  at the time it was the one thing that I could control and I needed that.  I signed the papers on the will, living will, health care initiative and my dnr on 12/31/12, what a way to start a new year.  I just want to make sure that certain people get certain things and I know my parents will make sure that happens but some of the things are going to go to ...

                March 30, 2013 view post
                • elfprincess has replied to a post on the message board

                  I agree with RobinMB.  remeber things that you are thankful for and laughter helps a lot.  Maybe it's because I'm an odd ball, or perhaps its the fact that the last 3 years have been really crappy but when I was diagnosed 6 months ago I was just completely stunned.  expecting one thing to be told you have a brain tumor is like a mac truck running over you.  I mean how are you supposed to resp...

                  March 11, 2013 view post
                  • elfprincess has replied to a post on the message board

                    When I was diagnosed with a brain tumor 6 months ago my NO and both Neurosurgeons I talked to said that my "episodes" as we call them were partial seizures which consisted of numbness and tingling on just the right side of my body.  I was given a low dose of Keppra twice a day.  The last few months I have noticed more "episodes" of numbness or just tingling that lasts for about 30 seconds to a few minutes, ...

                    March 01, 2013 view post
                    • elfprincess has replied to a post on the message board

                      I am sorry that nobody told you what was going on.  I understand how you feel in a way.  I was told my diagnosis (low grade glioma-no biopsy as of yet- 6 month anniversary of diagnosis in a few week) over the phone.  I got a second opinion with the number 2 neuro hospital in the nation.  They have worked wonders at making me feel better.  I have more problems with the doctors back in my ...

                      February 22, 2013 view post
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                      About elfprincess

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                      Brain Cancer

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