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ernie58's Recent CancerCompass Activity

  • ernie58 has replied to a post on the message board

    I use magnesium tablets ( this is the main ingredient in all laxatives), pysillium and stool softeners. With me, it usually takes a few hours to start but works great. I did not have an illeostomy but did  wear a bag for a year and then had it reversed. Good luck as I know this can be very painful.

    June 20 at 5:06 PM view post
    • ernie58 has replied to a post on the message board

      Not nosey at all. I am glad to pass on anything that i have to offer. I have had reoccurences since the cyberknife procedure that i went through in '09 ( i was diagnosed in 05). The pain was not that bad and coud be managed with meds without resorting to taking meds that make you sleepy. The nausea lasted a few weeks unfortunately. I did not have repeat treatments. Today, i am undergoing thru ch...

      March 28, 2013 view post
      • ernie58 has replied to a post on the message board

        i had cyberknife several years ago for colorectal cancer that spread to my liver. my side effects were nausea and some pain in that are  . i hope it helps.

        March 28, 2013 view post
        • ernie58 has replied to a post on the message board

          try dr. john marks in philadelphia. He has taught many people this technique so look him up and see if he or his past students are near you

          March 14, 2013 view post
          • ernie58 has created a new message board discussion

            I have had stage 4 colo-rectal cancer since 2005. This year I have had 2 chemo-embolizations in my liver but they did not get the lesions outside of my liver ( lungs, peritineal wall). I have given all of the conventional chemo drugs withradiation (cyberknife) I know I should be happy with the time that I have been given but I want more to be with my five kids ( youngest are 10). Any thoughts? experiences?

            December 20, 2012 view discussion
            • ernie58 has replied to a post on the message board

              I am a stage 4 survivor since 2005. I have had several reoccurences and can relate to your husbands issues. I would ask that you talk to your dr about a drug LEVSIn. It stopped my "leaking". Unfortunately the other side effects are going to take time. Regarding the rash try CALMOSEPTINE. It is a cream and is sold in some drug stores. Has your husband restricted his diet ? namely limiting fruits and veggies....

              September 06, 2012 view post
              • ernie58 has replied to a post on the message board

                Did u contact Dr. John Marks @ Lankenau hospital in wynnwood pa. ( wynne wood Pa is a few hundred yards over the city line of philadelphia). I would recommend it. It i snot easy to get an appointment but if you have your dr do it it may be better. Also ask if DR marks has trained anyone in your area as Lankenau is a teaching hospital Good luck and god bless

                August 04, 2012 view post
                • ernie58 has replied to a post on the message board

                  I had it done in may of this year. I have had colo-rectal cancer - stage 4 since 2005. Chemo-embolization is the process where the radiation oncologist "snakes" a tube through the femural artery directly into the artery that is feeding the tumor. Through that tube chemo drugs are injected directly into the tumor. I go back in a few weeks for my 3 month visit but my tests in early June indicated things went very wel...

                  August 01, 2012 view post
                  • ernie58 has replied to a post on the message board

                    Have you looked into chemo-embolization?

                    August 01, 2012 view post
                    • ernie58 has replied to a post on the message board

                      Have u gotten a 2nd opinion?  There are many surgereons that can save you from a permanent colostomy. I had one done in philadelphia Dr. John Marks = lankenau hospital. Good luck and God bless. 

                      June 28, 2012 view post
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                      About ernie58

                      Patient
                      Rectal Cancer

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