flwdlw

flwdlw's Recent CancerCompass Activity

• flwdlw has changed their profile photo

  May 13 at 6:16 PM

• flwdlw has changed their profile photo

  February 21 at 6:35 PM

• flwdlw has replied to a post on the message board

  I've been trying to add more veggies into things but he doesn't like that to much.  I will look up the ketogenic diet though.  Thanks.

  February 11 at 8:44 PM view post

• flwdlw has replied to a post on the message board

  So sorry for your loss. My husband has a few side effects. His doctor wants him on it for at least a year. He went 5 mon. had to have a break. March will be one year than he has another MRI in April.  His side effects are mostly loss of appetite, he still eats decent, just not as much food, memory issues, and temper problems which also has to do w/ where the tumor is located. He did radiation as well ...

  February 10 at 7:53 PM view post

• flwdlw has replied to a post on the message board

  He did the Temodar 1 week on 3 off. Avastin, cpt11. He is currently taking Temodar 3 weeks on 1 week off.  After the surgery in 11 they said it wasn't quite a III so they still call it a II. He does have the 1p19q crom deletion, they say the temodar is the best thing for it but so far it's still growing.

  January 24 at 8:41 PM view post

• flwdlw has created a new message board discussion

  My husband was diagnosed in 2002 w/ an oligodendroglioma II.  He had surgery (95% resection), 5 years later it grew back (2007) he had radiation treatment for six weeks then an MRI every year after. in 2011 it grew once more he did about 9 months of chemotherapy (3 differant types) and it kept slowly growing.  In Jan. 2012 he had his second resection again 95% resected.  He is currently taking Temodar ...

  January 23 at 6:51 PM view discussion